Treading Water

I’m having trouble writing.

Yes, again.

It’s not because i’m going through a bunch of crud and i’m waiting for it to be done so i might over analyse it and package it up prettily, replete with a spiffy bow for your easy consumption. I’ve shared before that i struggle with this – i hesitate to share when i’m in the trenches, because it can get so damn dark and cold down there, and i’m trying to bring a message of hope. But i’ve learned that the truth can bring hope, even if the truth is ugly. I’ve also learned that it’s not my responsibility to save the world. As all my children are now grown, i’m no longer responsible for anyone but myself, and my dog.

The best i can do is throw life buoys in the water. They’ll keep you afloat for a while. Allow you to rest. But i can’t make you swim over to it, or grab onto it, or keep holding on. I hope you do, though. I want us all to make it.

I’m having trouble writing because i’m tired. The effort it requires for me to stay present in my body and resist dissociation is maximal. I don’t seem to have much left over for anything else. That’s okay, because i’ve tailored my life to accommodate this kind of thing. I have a very supportive partner, my kids aren’t kids anymore, and i live on a farm. I enjoy private space all around me, and the people in my life all know that “just popping by” is not an option.

So yeah, i’ve got an excellent setup for the work i’m doing, and i’ve settled into a groove. Well, it’s less groove than zombie-shuffle, but i’m gettin’ through it.
Except life has this way of happening, and life has gone and done happened on me.
My life has absolutely and utterly changed. To what extent, and whether for good or ill i don’t yet know, but i’ll never be the same.

It’s not appropriate to talk about it yet. I’m gathering information and sitting with it for a while, first. It’s not a diagnosis; i’m not sick. Well, nothing has been added to my current laundry list, and nothing has intensified or become life-threatening, at least. And my primary relationship is solid. So for any of my readers who’re inclined to worry – don’t. It’s a big deal, but it’s not bad. It’s just BIG. I don’t have any energy left over for anything besides functioning in the day-to-days, listening to my body and trying not to dissociate.

But life isn’t a consciousness. It has no feelings or intents or plans. It’s not trying to mess with me. It’s not laughing at me. I’m not a rat in its maze. Life just lives until it doesn’t. It doesn’t care about timing. It isn’t concerned with how many spoons i have in my coping drawer. It just rolls along and happens. And oh boy, has it ever happened.

What i’m going to do here is just update. Just mention some things and check in with how i’m doing. Living stuff. Coping. Processing. Thoughts and sundry.

My physical health is okay. Not great, but manageable. I’m learning to live with osteopenia (low bone density, not severe enough to be classified osteoporosis) by taking prophylactic medication and the right exercise. The result has been a reduction in pain, and far less of the “crunching” that i was hearing by late afternoon. The pain wasn’t terrible, but the noise was quite disturbing. I’m currently working on bringing up my fitness level. I started with walking.

Walking is something i’ve been doing a lot of, since i was able to do it. When we lived in cities, my mother would send me to the corner store for snacks and cigarettes, and out to panhandle. One of the best ways for me to escape from my home life for a while was to be outside, so i was outside a LOT. Whatever the weather, and long after other children had gone home, you could find me outside. When we moved into more small town living, we tended to live far away from the school. We were a wrong-side-of-the-tracks sort of family, so there was usually a few miles between me and the school. Another thing i did to stay out of her hair/way/path (although i didn’t see it that way at the time), was to join clubs. I was in lots of clubs growing up: girl scout type clubs, choirs, drama troupes, sports clubs, military clubs… I didn’t do too much school oriented after school activities, because bullies, but other clubs seemed mostly populated with nerds and misfits like me, so i didn’t get picked on much.

Walking is where i come closest to a quiet state of mind, too. Meditation is beyond the capabilities of many multiples. My brain is never silent, even when i’m dreaming i can pick up background chatter if i’m lucid enough. After decades of having professionals and non alike tell me that meditation could fix a number of my issues (even cure my anxiety, tap into my deeper intellect, and become a spiritual giant!), i finally found a therapist i could work with, who told me straight away that my being unable to meditate at even the most basic level was not at all uncommon for those diagnosed with DID.

Walking is also my system’s response to extreme stress. I was programmed to “go home” if i got in a bad spot, and it’s still a hard reflex inside me. I’ve taken off hundreds and hundreds of times, and probably logged thousands of kilometres.
All this to say – i can walk, honey.
So i’m walking, and it’s good, and i’m good at it, and it’s good for me.

Except for the fibro flare it’s causing, of course. That’s the crap part of it. I’ve been living with this chronic pain since 1995, so i’m fairly educated on my condition, and i know this is to be expected. The key is to increase gently, with long periods of status quo in between. I’ve also taken up some beginners yoga stretching, which i’m finding calms me rather nicely, while warming up my muscles for the distances i put in during the day.

(This is where my dark and twisty sense of humour comes in handy, because it’s just so **ME** to be working on my fitness and pushing through the resultant uptick in pain, while also trying to cut back/eliminate dissociation. I have this built in ability to distance myself from pain, and i can’t use it. I mean, i can, but i choose not to. Ah well, the hard way is just a way in the end, amirite? Heh.)

My diet is good. I’m calorie restricting for weight loss, but i eat soundly. My FitBit is helping with keeping me mindful of what i eat, although i don’t use any of their programs – that stuff can easily trigger obsession in me. I’m just logging my calories so that i can keep track. Sometimes i weigh and measure just to give me a better idea where my calories are being spent. Sunday i take the FitBit off, i don’t exercise per se, and i have a slight cheat day, food wise. I don’t go all out cheat though, because i find that hard to bounce back from sometimes, and i need the momentum i’ve built up to cruise me through while i’m dealing with this overwhelming exhaustion.

Socialising is hard for me right now. It happened suddenly, but that’s not out of the ordinary. I don’t want to go out and i don’t want to see anyone, but it’s slightly different now; i’m less extreme. In the past, i would hole up in my Little Crooked House and just hermit. No phones, no answering the door, no leaving the house except when unavoidable. Now i can see someone if i need to, for instance, i know a lovely woman who’s helping me with eyelash extensions while mine grow out after nuking them and my eyebrows in the Burning Barrel Incident that i mentioned a few posts ago. She’s softspoken and very kind and low key, and i don’t want to scream when she touches my face. If only there were eyebrow extensions. <insertruefulexpressionhere>

A dear friend invited me out to supper last Saturday  and i said Yes. When i got there, my body and brain started acting up immediately, and i knew i couldn’t stay. I did a quick negotiation with my Peanut Gallery: Yo, if y’all will just STFU and let me touch base with my friend, i won’t stay any longer than an hour. So i ordered my food to go, and had a nice chat with my friend while it was being prepared.
That’s some gold standard problem solving for me, right there.

I think what i’m seeing is, i can do one-on-ones, but i’m finding any more than that quickly saps what little energy i have. I love humans and enjoy their company – except when i don’t, and these last couple of weeks i’ve occasionally felt almost misanthropic. That’s a neon sign that my stress level is high.

I don’t like ending on a low note, but yeah… As i mentioned to my online group of friends yesterday, i’ve gotta look up to see dirt. Depression is seeping in, making me sluggish and mopey. These last couple of days i’ve felt sad and alone. There’s some self-pity there, sure. I can hear the sad trombone. But i’m going to allow myself a bit of ass-dragging, because i’ve learned if i don’t acknowledge what’s happening and just let myself BE™, a little, my condition will just get bigger and bigger until i pay attention. I must give it some space to breathe, and move, and act in accordance with my emotions (scared, mad, sad, etc.) and sensations (pain, ache, emptiness, etc.). I must listen to what my brain and my body are trying to tell me.

I haven’t been this down and heavy in my bones for a long time.
I can hang on until therapy tomorrow. Little goals.
My body is heavy and slow, so i do a few things around the house, with long breaks of doing sweet fuck all in between. My brain is foggy and fuzzy and full of low thoughts, so i read for entertainment only, and limit who i share space with, and i curate conversations to avoid topics that will feed my depressive feelings. I’m watching emotional stuff that helps me cry, because tears want to come, but i have trouble crying for myself. I can always cry for someone else, so sappy movies it is. I start crying because The Fisher King or RENT, but i keep crying because holy shit am i ever going through it right now.

This work is hard and it’s taking everything i have to do it. And life just has no heart, no mercy, no grace for me – it just keeps doing its thing and that’s just how life does things and i’ve gotta get with the program, man.
I’m plodding along, but it’s forward.
I’m doing the minimum, but i’m DOING.
I’m standing here on the shore as the tide advances, lapping at my feet, then swirling around my knees, and now it’s pulling me out, out into the deep…
And i’m letting it pull me.
I’m treading water for now, but i’ll get to swimming at some point.
I will.
You watch me.

Love and Peace,
~H~

The Door

Sometimes i wanna just lay this body down
float away and leave it behind
It’s heavy, this flesh
this warm and soft skin-wreath that hangs on my door
It beckons
This toothy smile, these sparkling eyes
like a lit doorbell in the night
My hands spread open, palms up
A welcome mat

I’m hiding behind the door
peeking through the curtains
The fire behind me illuminates my form
Stop knocking, i’m not here
The hearth is hot and the blue light bids me come
I step in and dance, rippling pink and golden, white, orange
Then grey and wispy, like air with fur,
I rise up and float away
My body lies below me, still warm and waiting

Suddenly, a torrent, and i am acrid
wetness,
Tears in hot ash, sss-ing
Someone’s at the door and they won’t stop knocking
Pushing the doorbell that fairly tinkles my name
while i sweep myself into a pile and inch towards the door
Taking shape, heavier with each step
Light and shadow filling the carved wood of the door
My door, my face, my flesh… Hullo?

Sometimes i wanna just lay this body down

Huh.

I missed my last counselling appointment… Kinda. My body was there, but i was not in the face.* At the time, i was in full-on chaos mode, and my therapist had to deal with some Littles and some Angries. Yesterday, she filled me in on how it went. I came in small, got very big and pissy, and tried to leave.
I’m a leaver, a take-off-er, a skedaddler of the highest order. I get stressed, anxious, scared, and i vacate the face and then the premises. Fortunately, my therapist deals with people like me for a living, and has done so for more than 20yrs. Apparently, she used mom-voice on me and it worked.
Mom voice.
Huh (not the question huh, the onomatopoeia huh). Who’da thunk it?

She ordered me to sit back down, told me i wasn’t going anywhere, and then informed me she was putting her weighted blanket on me.
Dudes – i do NOT do weighted blankets. I do NOT like any heaviness on me at all. In bed, i’ll usually even throw off the duvet and just use the sheet, my nightwear, and my husband’s body heat for warmth, because the weight on me triggers anxiety.**
Apparently, i tolerated it, and although i pouted and wore a sour face, i admitted that it made me feel a bit better.
Huh. Well, don’t that beat all?

While i don’t remember arriving there or leaving, when she described the part of the session with the blanket a bit of it came back to me. Sometimes, i’m completely gone when someone else is in the face, and i can’t find/feel an internal connection to the goings on being related to me, that i was involved in. Sometimes though, i’m not fully switched, and it’s like i’m in the corner of my brain, half asleep. When i’ve withdrawn but not left completely, a report of events can often trigger some recollection, or at least a tangible emotional connection. It’s like when you burp hours after a meal and are reminded of what you ate, maybe? Heh.

After the update, she asks me how i’m doing. I shrug and say, “Meh. But it’s a good meh.”
And it is good.

I think (hopehopehope) i’ve emerged from this period of pure, unadulterated panic that i’ve been operating in. It might be more accurate to say i’m hoping to avoid another one, because i don’t feel panicky, although my sense is that it’s not as far away as i’d like. These last few months have been exceptionally difficult as far as my mental health and maintaining a decent level of day-to-day function are concerned.

Way back i knew what i was undertaking was going to be hard, but not this hard.
I knew it was going to hurt, but not this much.
And i knew it would be scary, but didn’t anticipate abject terror.
I suppose i couldn’t have known until i was in it, and i was as prepared as i could have been. I’ve put in one heckuva lotta work.
It ain’t easy to bring a dead body back to life.

Yes okay, i’m the first one to admit i’m a bit on the dramatic side (my name is Histrionica after all), but when you spend most of your first decade of life literally trying not to die – i think you get some accommodation. I gave myself permission regardless, and i try to keep it on a relatively short leash, except in times like these. Therapy. Digging deep. Performing surgery on myself hurts like a motherfucker, and i get to emote, damn it.

Reestablishing the connections between my brain and my body is the hardest inner work i’ve done to date, and i’m never not exhausted.

Let’s backtrack a sec.

I was raised religious, but more than that, i was created by my parents to be obedient, above all other things. So, although i’d had it suggested to me a number of times, i rejected the MPD diagnosis (never went back to any p-doc type that suggested it). Dogma said it didn’t exist, and my mother both counted on me being multiple, and relied on it being hidden from me that i was one. It wasn’t until my mother’d been dead for some time that i considered it. When the social worker from my church who was counselling me told me i clearly was, and the psychologist who also attended our church agreed with her diagnosis, i finally accepted (or at least began the process) that i “had multiple personalities”. (Ooh, that stuff in quotes makes me cringe hard. I’ve developed my own slang surrounding multiplicity over the years, or i might never have been able to talk about it; my reaction to commonly used words and phrases regarding it is still so visceral.)

The lady who treated me was kind and sweet and worked with me for a few years, but it was still heavily centred on our shared faith. I think i was switched most of the time. I was starting to believe i was a multiple, but i still wasn’t really aware of it happening. Along the way i had weight loss surgery, became an apostate, and stopped seeing her.
I also went batshit crazy.

The bipolar disorder became obvious first – being thin for the first time in my adult life brought up a tonne (harhar) of issues that being in a food coma and surrounded by a wall of fat had kept at bay. Before the year following my surgery was up, i was tits-deep in mania. Mania is characterised as “a state of heightened overall activation with enhanced affective expression together with lability of affect” (Source: Wikipedia), and labile is an adjective meaning unstable, fluctuating wildly. Sounds about totally, yep, uh-huh.

It is my uneducated and purely experiential opinion that the mania blew the doors off in my brain that were keeping me from knowing my system, and kept them somewhat controlled in their behaviour. What followed was a free-for-all that kept me scrambling for the face, for years. I barely slept and mostly ran on booze and drugs and manic juice.

Back to present, now.

The thing that has thrown me for a loop is just how much i dissociate. I had no idea until i took on this work of being as present in my body as i can be, which becomes harder the further i am from the face, that i’m at a measurable level of dissociation most of the time. This all leaves me invariably exhausted, with no special juices to keep me going.

So i tell my therapist about how tired i am, and how much my body hurts, but how the fear no longer has me in a chokehold, and i’m strangely fine with it all. I say i think i might have an idea why that is, and i share my hypothesis.
That’s for next post, though.
Have the best week you’re able to, and i’ll do the same.

Peace and Love,
~H~

*For the uninitiated, “in the face” is a phrase i use to describe who’s currently in control of my system, i.e. the part who’s seeing/speaking and has physical agency.
**Upon proofreading, that’s a bit of a misnomer. I also sleep on an old disco waterbed where i keep the heat cranked – it helps my fibromyalgia pain. So i’m nice and warm and don’t need the duvet, even if i was fine with the weight of it.

Baby, I’m On Fire

I set myself on fire last week. Yes, literally.

This last 2wks i’ve been either slidey* or outright switched. I’ve required near constant supervision, lest i leave, or get up to other sorts of destructive behaviours. Unfortunately, after 5 or 6yrs of no interventions, the police and ambulance were called to determine if i was a danger to myself or others. Although it was determined i was definitely not a threat to others, i did a small stint in the hospital, where i received good care. The doctor offered (or perhaps urged, heh) that i stay longer for more assistance, but i was allowed to leave when it was clear i have family/friend/therapist support at home. He prescribed some medications to help ease my anxiety, and they’ve helped.

I saw my therapist and she always calms me. She helps me see my path more clearly and refocus, but unfortunately, she’s a real, live human, with other clients, a family and a life of her own, and thusly i cannot carry her with me wherever i go.

If you’re a regular reader, you know that this stage of my therapy involves learning to feel my feelings without dissociating. I’m not looking for perfection. I’m not looking for “integration” (i’m not even sure what that word means with regards to multiples), but i am looking for a higher level of day-to-day functionality, and a greater degree of healing.

To put it a little more clearly, when i was abused as a child, my brain severed the connections between my thoughts, my emotions, and my physical sensations, in order to survive trauma so great that i simply had no ability to understand, let alone process it. Without connection, without the means to apprehend what had happened/was happening to me, some of those thoughts and emotions, even some moments frozen in time in my mind, developed their own personalities, from flat and static, to a couple who’re more fully rounded than some people i’ve known. (That was snarky i know, but i’m leaving it, because it’s true. Pfft.)

Continuing on then, i leave the safety and support of my counsellor’s office, and step out into a world that is currently full of triggers. I’ve lived my life either not noticing, or quickly dissociating from these things. I had to, or i simply wouldn’t’ve been able to function at all. I would’ve been stuck in trauma-response, unable to work, to have relationships, to care for myself or others, in other words, to participate in what it means to be alive. I myself would’ve been frozen in time.
The gazelle that freezes when she sees the tiger.

The ability to dissociate not only saved my life growing up, it allowed me to be somewhat effective as an adult. However, as time passed i could see it was only minimally helpful, and in certain cases quite harmful. I wanted more from life, especially once i had children.

I learned to live my life as a multiple, the insight into how my brain works making my life easier and better than it had ever been before… Until a little over a year ago. I was living a reasonably happy and successful life, when i suddenly crashed. It wasn’t like my Thelma&Louise crashes of the past, thankfully. (I play both parts, just fyi.) But i wanted to party, which is something i don’t much care for now, and i felt that old childhood imperative that my abusers had programmed into me to GO HOME; a place that doesn’t exist anymore, and would be beyond dangerous for me if it did.

I had the sense to get my ass back into therapy. When i asked her what i was doing wrong, she said, “Not a thing. You are taking such good care of your brain that your body is now wanting that same care and attention.”
My body is tired of being numbed out and alone. It wants to rejoin my brain. It wants me to listen to it as diligently and lovingly as i did my brain.
And i want to. I know it’s the good and right thing to do for me, but it is a haaaard thing.
It is perhaps, the hardest thing i’ve done in my life, to date.

I stay in my body and feel my emotions and physical sensations, while knowing what i know — that i was repeatedly traumatised from birth, until my mother died when i was in my early 20s.

This was a difficult concept for me to grasp, so i can imagine that it may be for others, as well. I’ll provide an example to help explain:
One of my abusers would always jingle the change in his pocket. As an adult, i would often hear the sounds made by coins jingling together, and when i’d hear it i was bothered, unsettled somehow. But the memory of the man who did that was held by a part of me that i wasn’t personally connected to, and so the pain of what he did to me didn’t consciously affect me, it just left me with a vague sense of unease. The reason it upset me was kept from me by both the little girl bit that lives in my brain who remembered, and the part of my body that he had hurt, and while i’ve now connected to the girl who’s held that memory, i hadn’t yet connected to the pain that he’d caused in my body.

So now, today, when i hear change jingling, i remember the man and what he did, but i also feel the pain in my body: the terror making my heart beat faster, the violation of my genitals, the itch in my legs to run away. I don’t just remember, i feel it, and although this may not make sense, in a way it is for the first time.

This has been my life for the last few months. I’m triggered frequently, repeatedly, daily, and i sit with it and i remember and i feel it and i hang on for dear fucking life, until the connection has been made. My Bits N’ Pieces are being reconnected to my body and so am i.
I’ve lived my life playing dead so the bear won’t eat me, but the bear’s long gone and it’s time for me to rise up and join the living.

It’s terrifying, painful work, and i’m physically and psychically exhausted.

So last week, i get it in my head that i must purge the clutter in my house. I’m convinced that i’m drowning my entire family in hoard (i don’t come remotely close to such a diagnosis), and i’ve got to get it out of the house or everyone’s going to get sick and die. While my family’s been great at helping me with this (we’ve been slowly decluttering over the last few months), i had some angry, protective parts come out and start throwing out everything they could get their hands on, including some heavy items that i have no business lifting, given my current fibro flare and the osteopenia in my lumbar region.
Once their rage was spent, as is my system’s way, a little part came out to be a “good girl”, to try to assuage any hurt feelings the angry ones may have caused. She came out to help.

I was raised part urban, part rural, and i know how to use a burning barrel. It was my job as a kid to use it, and save us a trip or 3 to the dump.
But i didn’t know how to do that when i was 5.
She wanted to help, and there was some paper/cardboard trash that needed burning.
So she poured gasoline all over everything in the burning barrel and lit it with a little cigarette lighter.

I was slammed back into the face by her terror and pain and i heard the WOOF! as the fumes lit. I felt the fire kiss my face from my hairline to my top lip. The fire lingered a little longer on my right hand and danced about halfway to my elbow. It took a couple of seconds, no more, but it seemed longer. Every emotion was intensified by me having not been there before it happened.
Which has happened to me countless times, and it’s never not been scary.
To find myself in a completely different situation from the one i last remember, with no consciousness of the passage of time, where in fact it seems like 1 second one thing is happening, and the very next second i’m somewhere else entirely doing a completely unrelated thing… Well, i would imagine that would scare just about anyone.

I singed off a fair bit of my hairline, and most of my eyebrows and eyelashes. (Which i’ve spent time and money regrowing due to trichotillomania. /majoreyeroll) The tip of my nose got it pretty good, so i’ve referred to myself as Rudolph for the last week, heh. There’s a bit of scabbing on my upper lip, but not noticeable, i just feel it. It was my hand that got the worst of it, with significant blistering and lizardy feeling skin across my hand about a third of the way to my elbow, plus 2 second degree burns on my fingers, and a third degree on my thumb.
I’m sure we all realise this could have been much, much worse.

In this blog i share my day-to-days: adventures, misshaps, and ho-hums all, to help myself sort my shit out, to help foster understanding of those of us living with mental illness (like me), and those of us considered neuroatypical (also me). I also write to reach out to those like me, to let them know they aren’t alone, and to offer hope that they might too, find their way to a place of functionality and happiness that works for them.

My point with this post is quite specific, and of utmost importance for me to understand.

Sometimes, no matter how much work i’ve done or how far i’ve come, shit’s gonna happen. I’m not a danger to others – for instance, if i’d been around children, angries and littles wouldn’t have come out that day, only protectors.
But sometimes, sometimes my brain is just gonna do what my brain’s gonna do.
I am who i am, and i’m finally starting to like me. Not just accept, not just love, but i’m growing attached to me. I’m rather fond of myself. I’d hang out with someone exactly like me.
Crazy, broken, occasionally completely dysfunctional me.**
Yes, i’m working hard AF to get to what i consider to be a higher level of function – i’m seeking more happiness and more usefulness and just, i don’t know, more presence and availability to the world around me and the beings sharing space with me in it.

BUT

I’m absolutely fine and right and good already.

Love and Peace,
~H~

*What i call a dissociative state where i’m some level of conscious of what’s happening to and around me, but i’m unable to affect my own actions and have little to no agency – it’s sort of like watching myself on tv.
**I know some of these descriptors don’t work for everyone, but they do for me.

Come With Me

Come with me, I said, and no one knew
where, or how my pain throbbed,
no carnations or barcaroles for me, 
only a wound that love had opened.
~Pablo Neruda, Come With Me, I Said, And No One Knew (VII)

Surprise twist movies have been done to death. I’m over them, especially when there’s nothing much going for it besides the twist, which is often the case these days. There are some that stand out because the story is masterfully told, the buildup too subtle to notice until it’s revealed. With them it’s like suddenly, the entire landscape of the story changes, becoming something you hadn’t foreseen, and looking back you almost can’t see what it once was. And now, oh! how you see all the little clues, and feel a fool, for you’re certainly clever enough and experienced enough in these things to have seen it coming.

I should have seen it coming.

I’m not exactly full of myself about it, but i am proud of all the hard work i’ve done. I’ve accomplished more than i’d thought i could, or perhaps it would be more accurate to say that i was afraid that i wouldn’t be able to get this far. Yet i’m here. I stubbornly, doggedly, resolutely, and with no small amount of backing myself into a corner and its resultant terror, have managed to be able to navigate the day-to-days of an almost-normal life. I must do a great many things that most others do not in order to achieve this, but these things have become a part of my daily routine, my mental toilette, if you will. My life is ordinary and average, and by me being me and it being so, it is absolutely not.
Well! Heh. I guess i do sound a bit conceited.

It’s funny (peculiar AND haha), i’ve almost always guessed correctly and way ahead of time when the twist is that someone’s a multiple (what a sad, tired trope that is, UGH). Not only do i know personally what it’s like, but i’m a smug and jaded movie lover from way back who has pissed off many a friend and family member by guessing the end, and taking an annoying amount of satisfaction in how smart i am. (Don’t hate me – i don’t do it anymore unless i’m with my husband, who must legally tolerate it, or someone who also loves guessing.)

I see dead people.
Just kidding, i only hear people who aren’t actually real and am occasionally possessed by them. It’s no big deal. Not really. Not comparatively or relatively or even practically. I did all this work and now i have this life. There will very likely always be the odd hiccough here and there, but i have this life now and i made it, and i like it this way. I’ve had enough change, and turmoil, and chaos, and drama to choke a horse, feed an army, and slap your mama. I’m happy and satisfied with this quiet, bucolic existence.
I figured i’d plug along like this for the rest of my life. Well, i think that’s what i thought.

I try not to think too much on the future, as it tends to trigger anxiety and depression. Most of my long term successes have come from small tweaks to thinking or action, built upon slowly. Sweeping changes and massive lifestyle overhauls can easily kick me into mania, which usually finds me at least 3 steps back when the dust settles.
If life is Mario Bros., i play all the way through. I know i can skip through quickly and just ride that flag to the top, but i collect all the powerups and coins available before i level up. And I don’t skip any levels either, for the same reason. When i get up to those tougher levels (like Ice World – fuck that world, man), i know i’m going to need extra life, and all the mushrooms and stars i’ve got to make it out of there.
I need to be prepared with a strong foundation, and i need practise to succeed. I need to go slowly too, because i’m clumsy and i stumble – regularly, and hard.

I keep my eyes on the ground in front of me. I choose where to put my foot next. I do look up periodically, lest i walk off a cliff or run into a tree, but i’m more concerned with firm footing, and avoiding the odd stone or embedded root.
And i’m the type that does better by looking back and seeing how far i’ve come, rather than looking ahead to see how far i’ve yet to go.
I could see some potential for trouble up ahead, but what i couldn’t see was that i was slowly descending into a valley. The scenery changed very gradually, and it all looked fine until dusk. I look up and around me now, in all directions, and it’s all vaguely sinister. I’m standing here, trepidatious, afraid to take the next step. The warmth of the day is fading with the light, replaced with the chill that tags along with the bleeding of the night, seeping into my bones as dread.

I’m frozen here. I’m unable to move. I can’t tear my eyes away from what is ahead of me. It’s like the dirty snow on the screen of my tv when i was a child, at the end of the programming day. I’d stare at the funny coloured bars that would pop up after the playing of the national anthem. The fear would gather slowly in the pit of my stomach once the late night news was over. If i was lucky there’d be a movie, but often it was just some old cop show, like Barnaby Jones or Cannon. They scared me a little, but i suffered them because it was better than being alone. My mother would be out somewhere, doing whatever, and i was 4, 5, 6 (and older), and terrified of the dark and being alone. Of course i was, and that box filled with pictures and voices of people was company and distraction from the places my superpowered, mutant imagination could take me. Would take me. Even just with the snow, at least it was a beacon of light, and i’d stare at it, and imagine i could see figures and hear whispers… The movie Poltergeist triggered me so hard; those glowing, dancing specks were alive for me, too.

What i see before me is like that dirty snow – it buzzes fuzzily, like millions of bees crammed together yet still in flight. But it’s not greyish white with black flecks like that old tv with the foil wrapped bunny ears, it’s black. It’s dozens of shades of black, giving depth and detail, giving off heat like a fever or infected flesh. It’s insidious.

I can’t walk into that, let alone through it.

I can’t talk about the fear that’s in me and on me every day now. Sucking all my energy and wearing at my will, making me snappish and easily hurt. I hide and i switch and i often cannot get more than a half hour’s sleep at a time before dreams wake me. At least with dreams i can go back to sleep, but when the nightmares come i’m up, sometimes for an hour, sometimes until i get my family up and out for the day, when i’m sometimes able to nap a bit. I don’t know if i can do this work that’s presented itself for me to do.
I know myself and so i know i’m going to try – my hardest, my best – but i sincerely don’t know if i’ll succeed, or even if that’s possible.

Today i am leaning on my New Year’s Resolution to blog through the bad.
Sorry it’s mostly just a nonsensical mishmash of metaphor and analogy, seasoned liberally with histrionics, but it’s what i can do, for now.

the geysers flooding from deep in its vault:
in my mouth I felt the taste of fire again,
of blood and carnations, of rock and scald.
~Neruda

Image: Promotional poster from the movie Poltergeist (1982)

 

Perseverance

I’m not sure what’s going on in my brain, so i’m gonna write a bit, and see if i can figure it out. Let me say plainly that this may be a dog’s breakfast, and it may not end up with any answers for me or insights for you, but it’s a coping skill that has helped in the past, and it’s one i’ve committed to using, regardless. So, even if we both wind up empty-handed, i’ll at least have the behaviour more ingrained, and i can glean some pride and self-esteem from my sticktoitiveness.

I lost my mother-in-law about a week and a half ago. I tried to write about it, but i didn’t see myself in the draft, so it’s sitting in my folder, waiting for me to find myself and tell the story that’s there.
I’m tired, though. I am so fucking tired, and i don’t know why.
Okay, well, it’s probably depression, but this one feels different. I’m trying to get through it without checking out – no booze, no drugs. Food and sex are handled for now, but i can still stumble with the other 2. And switching.
I want to make it through this depression (?)

Yeah okay, it’s a fucking depression. It is. I know it is. Just because it feels different doesn’t mean it’s not a depression. I’m tired all the time, i have no oomph, no joy, no passion, and i have absolutely no fucks to give about anything.
It’s a depression.

I want to make it through this depression without alcohol, drugs, or switching. I’m okay with a bit of sliding (meaning i’m not in the face, but i can observe what’s happening – kinda like watching myself on telly), but no losing time.
If i don’t make it, i won’t punish myself or hate myself – i’ll give my performance a proper critique, tweak my technique, and prepare for the matinee showing.
That was poetic. Or at least a bit precious, eh?

My legs are heavy, leaden. My head feels like it’s filled with fresh cement that’s in the process of hardening. I went back to bed at 10 this morning, and i’ve only been up since noon and i already want to go back to bed at 2:30. The fibro has settled into my neck and shoulders, my forearms too. It’s moved down into my thighs, which almost never happens. My back feels out of place like it hasn’t in years. My sinuses are acting like they’re infected. I’ve broken my retainer and we’re too broke to afford a new one, so i’m grinding and clenching all night and the pain in my face is excruciating.
I have no sense of time.
My head is a burden, my thoughts are tribulation.
I want chocolate and bourbon and media distractions.
I want to hide in my dreams.
I do NOT want people.
A cabin in the deep woods with books and DVDs and enough fresh snow and firewood would be pure heaven.

As i type this out i can see the truth of it; this is something tangible and it helps to look at it. While i may be feeling heavy, i am not at all grounded. I am the lead balloon. I need my feet back down on earth. I must keep moving, even if it’s a plod, plod, shuffle-stumble, plod… My feet on the ground, the smell of the earth, the pricking grip of the frigid air…

YES.
I know what i’ll do.
I will take some strong pain reliever right now. Then the vacuuming and dusting. I will throw something in a pot for supper. Then i will drink some very hot tea -not my usual black- herb. Something soothing. I like Chamomile, or some delicate mint. Then i will watch a feel-good movie. A happy-cry movie. While i’m watching, i’ll finish up the ironing that’s making me feel bad by sitting there undone, and when that’s finished i will brush out my doggy. After that i will do nothing remotely productive until i must feed my family. I’m going to retire early with a good book.

Tomorrow i’m going to return to my walks. I’m not paranoid due to mania anymore. No hallucinations.
It was the metaphors about continuing on my path. The bite of the winter air.
Ohhh, THAT’S what i need! It’s what i’m now missing.
It’s time to start walking again. I have no doubt that it’s going to help.
Holy shit, i’m excited about something.

I am marking in words on this page made of technology and ether –

Writing works for me.
My thoughts are seeds. The harmful thoughts are born in fertile ground: isolation, darkness, fear. The helpful thoughts must be planted outside, under the open sky. In the sun, with the rain and the air and the other helpful thoughts that came before, that are already growing and blooming and bearing sweet fruits.

I’m going for a walk tomorrow, before breakfast.

“If you can’t fly then run, if you can’t run then walk, if you can’t walk then crawl, but whatever you do you have to keep moving forward.”
~Martin Luther King Jr.