The Door

Sometimes i wanna just lay this body down
float away and leave it behind
It’s heavy, this flesh
this warm and soft skin-wreath that hangs on my door
It beckons
This toothy smile, these sparkling eyes
like a lit doorbell in the night
My hands spread open, palms up
A welcome mat

I’m hiding behind the door
peeking through the curtains
The fire behind me illuminates my form
Stop knocking, i’m not here
The hearth is hot and the blue light bids me come
I step in and dance, rippling pink and golden, white, orange
Then grey and wispy, like air with fur,
I rise up and float away
My body lies below me, still warm and waiting

Suddenly, a torrent, and i am acrid
wetness,
Tears in hot ash, sss-ing
Someone’s at the door and they won’t stop knocking
Pushing the doorbell that fairly tinkles my name
while i sweep myself into a pile and inch towards the door
Taking shape, heavier with each step
Light and shadow filling the carved wood of the door
My door, my face, my flesh… Hullo?

Sometimes i wanna just lay this body down

Huh.

I missed my last counselling appointment… Kinda. My body was there, but i was not in the face.* At the time, i was in full-on chaos mode, and my therapist had to deal with some Littles and some Angries. Yesterday, she filled me in on how it went. I came in small, got very big and pissy, and tried to leave.
I’m a leaver, a take-off-er, a skedaddler of the highest order. I get stressed, anxious, scared, and i vacate the face and then the premises. Fortunately, my therapist deals with people like me for a living, and has done so for more than 20yrs. Apparently, she used mom-voice on me and it worked.
Mom voice.
Huh (not the question huh, the onomatopoeia huh). Who’da thunk it?

She ordered me to sit back down, told me i wasn’t going anywhere, and then informed me she was putting her weighted blanket on me.
Dudes – i do NOT do weighted blankets. I do NOT like any heaviness on me at all. In bed, i’ll usually even throw off the duvet and just use the sheet, my nightwear, and my husband’s body heat for warmth, because the weight on me triggers anxiety.**
Apparently, i tolerated it, and although i pouted and wore a sour face, i admitted that it made me feel a bit better.
Huh. Well, don’t that beat all?

While i don’t remember arriving there or leaving, when she described the part of the session with the blanket a bit of it came back to me. Sometimes, i’m completely gone when someone else is in the face, and i can’t find/feel an internal connection to the goings on being related to me, that i was involved in. Sometimes though, i’m not fully switched, and it’s like i’m in the corner of my brain, half asleep. When i’ve withdrawn but not left completely, a report of events can often trigger some recollection, or at least a tangible emotional connection. It’s like when you burp hours after a meal and are reminded of what you ate, maybe? Heh.

After the update, she asks me how i’m doing. I shrug and say, “Meh. But it’s a good meh.”
And it is good.

I think (hopehopehope) i’ve emerged from this period of pure, unadulterated panic that i’ve been operating in. It might be more accurate to say i’m hoping to avoid another one, because i don’t feel panicky, although my sense is that it’s not as far away as i’d like. These last few months have been exceptionally difficult as far as my mental health and maintaining a decent level of day-to-day function are concerned.

Way back i knew what i was undertaking was going to be hard, but not this hard.
I knew it was going to hurt, but not this much.
And i knew it would be scary, but didn’t anticipate abject terror.
I suppose i couldn’t have known until i was in it, and i was as prepared as i could have been. I’ve put in one heckuva lotta work.
It ain’t easy to bring a dead body back to life.

Yes okay, i’m the first one to admit i’m a bit on the dramatic side (my name is Histrionica after all), but when you spend most of your first decade of life literally trying not to die – i think you get some accommodation. I gave myself permission regardless, and i try to keep it on a relatively short leash, except in times like these. Therapy. Digging deep. Performing surgery on myself hurts like a motherfucker, and i get to emote, damn it.

Reestablishing the connections between my brain and my body is the hardest inner work i’ve done to date, and i’m never not exhausted.

Let’s backtrack a sec.

I was raised religious, but more than that, i was created by my parents to be obedient, above all other things. So, although i’d had it suggested to me a number of times, i rejected the MPD diagnosis (never went back to any p-doc type that suggested it). Dogma said it didn’t exist, and my mother both counted on me being multiple, and relied on it being hidden from me that i was one. It wasn’t until my mother’d been dead for some time that i considered it. When the social worker from my church who was counselling me told me i clearly was, and the psychologist who also attended our church agreed with her diagnosis, i finally accepted (or at least began the process) that i “had multiple personalities”. (Ooh, that stuff in quotes makes me cringe hard. I’ve developed my own slang surrounding multiplicity over the years, or i might never have been able to talk about it; my reaction to commonly used words and phrases regarding it is still so visceral.)

The lady who treated me was kind and sweet and worked with me for a few years, but it was still heavily centred on our shared faith. I think i was switched most of the time. I was starting to believe i was a multiple, but i still wasn’t really aware of it happening. Along the way i had weight loss surgery, became an apostate, and stopped seeing her.
I also went batshit crazy.

The bipolar disorder became obvious first – being thin for the first time in my adult life brought up a tonne (harhar) of issues that being in a food coma and surrounded by a wall of fat had kept at bay. Before the year following my surgery was up, i was tits-deep in mania. Mania is characterised as “a state of heightened overall activation with enhanced affective expression together with lability of affect” (Source: Wikipedia), and labile is an adjective meaning unstable, fluctuating wildly. Sounds about totally, yep, uh-huh.

It is my uneducated and purely experiential opinion that the mania blew the doors off in my brain that were keeping me from knowing my system, and kept them somewhat controlled in their behaviour. What followed was a free-for-all that kept me scrambling for the face, for years. I barely slept and mostly ran on booze and drugs and manic juice.

Back to present, now.

The thing that has thrown me for a loop is just how much i dissociate. I had no idea until i took on this work of being as present in my body as i can be, which becomes harder the further i am from the face, that i’m at a measurable level of dissociation most of the time. This all leaves me invariably exhausted, with no special juices to keep me going.

So i tell my therapist about how tired i am, and how much my body hurts, but how the fear no longer has me in a chokehold, and i’m strangely fine with it all. I say i think i might have an idea why that is, and i share my hypothesis.
That’s for next post, though.
Have the best week you’re able to, and i’ll do the same.

Peace and Love,
~H~

*For the uninitiated, “in the face” is a phrase i use to describe who’s currently in control of my system, i.e. the part who’s seeing/speaking and has physical agency.
**Upon proofreading, that’s a bit of a misnomer. I also sleep on an old disco waterbed where i keep the heat cranked – it helps my fibromyalgia pain. So i’m nice and warm and don’t need the duvet, even if i was fine with the weight of it.

Baby, I’m On Fire

I set myself on fire last week. Yes, literally.

This last 2wks i’ve been either slidey* or outright switched. I’ve required near constant supervision, lest i leave, or get up to other sorts of destructive behaviours. Unfortunately, after 5 or 6yrs of no interventions, the police and ambulance were called to determine if i was a danger to myself or others. Although it was determined i was definitely not a threat to others, i did a small stint in the hospital, where i received good care. The doctor offered (or perhaps urged, heh) that i stay longer for more assistance, but i was allowed to leave when it was clear i have family/friend/therapist support at home. He prescribed some medications to help ease my anxiety, and they’ve helped.

I saw my therapist and she always calms me. She helps me see my path more clearly and refocus, but unfortunately, she’s a real, live human, with other clients, a family and a life of her own, and thusly i cannot carry her with me wherever i go.

If you’re a regular reader, you know that this stage of my therapy involves learning to feel my feelings without dissociating. I’m not looking for perfection. I’m not looking for “integration” (i’m not even sure what that word means with regards to multiples), but i am looking for a higher level of day-to-day functionality, and a greater degree of healing.

To put it a little more clearly, when i was abused as a child, my brain severed the connections between my thoughts, my emotions, and my physical sensations, in order to survive trauma so great that i simply had no ability to understand, let alone process it. Without connection, without the means to apprehend what had happened/was happening to me, some of those thoughts and emotions, even some moments frozen in time in my mind, developed their own personalities, from flat and static, to a couple who’re more fully rounded than some people i’ve known. (That was snarky i know, but i’m leaving it, because it’s true. Pfft.)

Continuing on then, i leave the safety and support of my counsellor’s office, and step out into a world that is currently full of triggers. I’ve lived my life either not noticing, or quickly dissociating from these things. I had to, or i simply wouldn’t’ve been able to function at all. I would’ve been stuck in trauma-response, unable to work, to have relationships, to care for myself or others, in other words, to participate in what it means to be alive. I myself would’ve been frozen in time.
The gazelle that freezes when she sees the tiger.

The ability to dissociate not only saved my life growing up, it allowed me to be somewhat effective as an adult. However, as time passed i could see it was only minimally helpful, and in certain cases quite harmful. I wanted more from life, especially once i had children.

I learned to live my life as a multiple, the insight into how my brain works making my life easier and better than it had ever been before… Until a little over a year ago. I was living a reasonably happy and successful life, when i suddenly crashed. It wasn’t like my Thelma&Louise crashes of the past, thankfully. (I play both parts, just fyi.) But i wanted to party, which is something i don’t much care for now, and i felt that old childhood imperative that my abusers had programmed into me to GO HOME; a place that doesn’t exist anymore, and would be beyond dangerous for me if it did.

I had the sense to get my ass back into therapy. When i asked her what i was doing wrong, she said, “Not a thing. You are taking such good care of your brain that your body is now wanting that same care and attention.”
My body is tired of being numbed out and alone. It wants to rejoin my brain. It wants me to listen to it as diligently and lovingly as i did my brain.
And i want to. I know it’s the good and right thing to do for me, but it is a haaaard thing.
It is perhaps, the hardest thing i’ve done in my life, to date.

I stay in my body and feel my emotions and physical sensations, while knowing what i know — that i was repeatedly traumatised from birth, until my mother died when i was in my early 20s.

This was a difficult concept for me to grasp, so i can imagine that it may be for others, as well. I’ll provide an example to help explain:
One of my abusers would always jingle the change in his pocket. As an adult, i would often hear the sounds made by coins jingling together, and when i’d hear it i was bothered, unsettled somehow. But the memory of the man who did that was held by a part of me that i wasn’t personally connected to, and so the pain of what he did to me didn’t consciously affect me, it just left me with a vague sense of unease. The reason it upset me was kept from me by both the little girl bit that lives in my brain who remembered, and the part of my body that he had hurt, and while i’ve now connected to the girl who’s held that memory, i hadn’t yet connected to the pain that he’d caused in my body.

So now, today, when i hear change jingling, i remember the man and what he did, but i also feel the pain in my body: the terror making my heart beat faster, the violation of my genitals, the itch in my legs to run away. I don’t just remember, i feel it, and although this may not make sense, in a way it is for the first time.

This has been my life for the last few months. I’m triggered frequently, repeatedly, daily, and i sit with it and i remember and i feel it and i hang on for dear fucking life, until the connection has been made. My Bits N’ Pieces are being reconnected to my body and so am i.
I’ve lived my life playing dead so the bear won’t eat me, but the bear’s long gone and it’s time for me to rise up and join the living.

It’s terrifying, painful work, and i’m physically and psychically exhausted.

So last week, i get it in my head that i must purge the clutter in my house. I’m convinced that i’m drowning my entire family in hoard (i don’t come remotely close to such a diagnosis), and i’ve got to get it out of the house or everyone’s going to get sick and die. While my family’s been great at helping me with this (we’ve been slowly decluttering over the last few months), i had some angry, protective parts come out and start throwing out everything they could get their hands on, including some heavy items that i have no business lifting, given my current fibro flare and the osteopenia in my lumbar region.
Once their rage was spent, as is my system’s way, a little part came out to be a “good girl”, to try to assuage any hurt feelings the angry ones may have caused. She came out to help.

I was raised part urban, part rural, and i know how to use a burning barrel. It was my job as a kid to use it, and save us a trip or 3 to the dump.
But i didn’t know how to do that when i was 5.
She wanted to help, and there was some paper/cardboard trash that needed burning.
So she poured gasoline all over everything in the burning barrel and lit it with a little cigarette lighter.

I was slammed back into the face by her terror and pain and i heard the WOOF! as the fumes lit. I felt the fire kiss my face from my hairline to my top lip. The fire lingered a little longer on my right hand and danced about halfway to my elbow. It took a couple of seconds, no more, but it seemed longer. Every emotion was intensified by me having not been there before it happened.
Which has happened to me countless times, and it’s never not been scary.
To find myself in a completely different situation from the one i last remember, with no consciousness of the passage of time, where in fact it seems like 1 second one thing is happening, and the very next second i’m somewhere else entirely doing a completely unrelated thing… Well, i would imagine that would scare just about anyone.

I singed off a fair bit of my hairline, and most of my eyebrows and eyelashes. (Which i’ve spent time and money regrowing due to trichotillomania. /majoreyeroll) The tip of my nose got it pretty good, so i’ve referred to myself as Rudolph for the last week, heh. There’s a bit of scabbing on my upper lip, but not noticeable, i just feel it. It was my hand that got the worst of it, with significant blistering and lizardy feeling skin across my hand about a third of the way to my elbow, plus 2 second degree burns on my fingers, and a third degree on my thumb.
I’m sure we all realise this could have been much, much worse.

In this blog i share my day-to-days: adventures, misshaps, and ho-hums all, to help myself sort my shit out, to help foster understanding of those of us living with mental illness (like me), and those of us considered neuroatypical (also me). I also write to reach out to those like me, to let them know they aren’t alone, and to offer hope that they might too, find their way to a place of functionality and happiness that works for them.

My point with this post is quite specific, and of utmost importance for me to understand.

Sometimes, no matter how much work i’ve done or how far i’ve come, shit’s gonna happen. I’m not a danger to others – for instance, if i’d been around children, angries and littles wouldn’t have come out that day, only protectors.
But sometimes, sometimes my brain is just gonna do what my brain’s gonna do.
I am who i am, and i’m finally starting to like me. Not just accept, not just love, but i’m growing attached to me. I’m rather fond of myself. I’d hang out with someone exactly like me.
Crazy, broken, occasionally completely dysfunctional me.**
Yes, i’m working hard AF to get to what i consider to be a higher level of function – i’m seeking more happiness and more usefulness and just, i don’t know, more presence and availability to the world around me and the beings sharing space with me in it.

BUT

I’m absolutely fine and right and good already.

Love and Peace,
~H~

*What i call a dissociative state where i’m some level of conscious of what’s happening to and around me, but i’m unable to affect my own actions and have little to no agency – it’s sort of like watching myself on tv.
**I know some of these descriptors don’t work for everyone, but they do for me.

The Elephant

WARNING: This contains some specific references to childhood sexual abuse and integration with regards to DID/MPD. Consider speaking with your p-doc or mental health go-to before proceeding. Take good care.

**********

I’ve been ruminating over what’s happening to me through this recent therapy.
I mean, of course i have – duh. What else does one do when one is getting their head shrunk?
I’m navel-gazing.

I’ve been in the hospital twice since getting back into therapy this last fall. Nothing as glamourous as being placed in a soft room wearing a sweater with extra long sleeves that tie up in the back.
Just detox.
Not at all pretty, with no romantic wash of the tortured poet.
Just a woman whose demons are so terrifying and whose memories so fantastically ugly that i’ve been hiding in the oblivion of alcohol.

Alcohol and drugs were used to keep me compliant as a child.
I won’t go into lurid detail, but
— Here, drink this —
** SMILE **

As an adult i didn’t have much use for it.
I mean, i could party, but i didn’t much care for the blotto, head-hanging-over-the-toilet, devastating hangover the next day, sort of drinking i saw in others.
I was the one who held your hair out of your face.
I was the one who made sure you got home.

Then came my devolution.
A sweet social worker in service to a crazy pastor at the cuckoo church i was attending was finally able to convince me of my multiplicity.
I fell in love with and married a beautiful atheist.
I freaked right the fuck out and promptly gained over 200lbs.
I had weight loss surgery and lost it all plus more.

And then i had my first bipolar mania, and i discovered booze.
Food and fat had been my medication and my protection, keeping the pain and the fear and the people who live with me in my brain at bay.
When that fell away, i felt completely exposed and vulnerable – but of course i lacked that insight at the time. All i knew was everyone thought i was beautiful and sexy and wanted to be close to me and give me things.
Mostly attention.
Sexual attention.

I was easily lured into working in the entertainment industry. I’d had some experience as a child and enjoyed some success. My mother’s abuse and neglect of me, coupled with her own dysfunction and envy/jealousy, made certain i never got very far with it. I’d get involved in something, get noticed, get offered opportunities, and she’d either put the kibosh on them straight away, or we’d be moving soon to escape creditors/social workers anyway.

But the problem was i wasn’t a child anymore, and my system hadn’t been more than minimally active for a long, long time.

I was quite unprepared to be struck with crippling stage fright. My job came to the rescue because it revolved around making sure people spent money on –yep, you guessed it– alcohol.
Guess what made my stage fright disappear?
Guess what made all the sexual attention i got tolerable, even enjoyable?
Guess what took away the fear of being exposed and vulnerable because i no longer took up as much space?

The booze and the mania swept me along for years. I practically abandoned my children and nearly destroyed my marriage. In a brief moment of clarity (sometimes referred to as a DUI), i realised i needed to get away from the place i lived and the industry i worked in.
The geographical change wasn’t the cure, but it made the disease more easily treatable.
This was the place where i finally found a mental health professional i could trust; i could work with her and figure my shit out and get my feet planted firmly on the ground and begin my slow, dogged plodding toward a decent level of function and some semblance of normalcy.

I got to a place where my body, my marriage, my children, and my home, were all in a manageable, reasonably healthy place. I was even handling my system. I was in the face most of the time. There was a bit of sliding around, but not much switching. I’m highly dissociative (naturally, heh), so i was always coping with that as best i could, but there was very little chaos.
Except for relationships outside my husband and children.

While learning to live as a multiple, i either lost or walked away from every friendship i had, and became completely estranged from any family.
Don’t misunderstand – that is not a bad thing. My life is better for it, but i did want some new friends.
The difficulty was i couldn’t do it.
I had absolutely zero experience with making friends. In the past, i’d just fallen into them, or the other person had pursued the friendship and i’d just gone along with it.
I barely knew who i was, let alone how to be myself and make a friend.

It was then i discovered yet another serious mental/emotional problem of mine – social anxiety.
I HAZ IT.
If i’m the engine of my train, i’m pulling plenty of cars, y’all. I carry passenger cars with a profusion of riders, but i’ve also got more than a few hoppers full of a combustible black rock called ANXIETY. It’s fueled nearly every social interaction i’ve ever had.
I’ve always found it difficult to people, but being a multiple at least made it less obvious to me. Being dissociative tamped down the nervousness and dampened the awkwardness.

And being morbidly obese gave me a doctor’s note excusing me from gym class, indefinitely.

When i found myself out and about in the world again, not just without the body armour of fat, but armed with the knowledge that i was my own army…
I was boots on the ground with no lieutenant and no orders.

Once again, alcohol made everything easier.
HA.
Until, of course, it didn’t.
I found a lot of drinking buddies, but no one knew me, and i didn’t know them. That’s certainly not their fault – all the booze did for me was make it easier to hide myself and therefore less scary to be around people. It gave me the illusion of friends.

Speaking frankly (why should i stop now, and also, my name is Shirley), i know folks who navigate that lifestyle well. They meet at the bar for a few drinks after work, sometimes they get loaded on the weekend, they have friends over for supper and they crack open a few beers or uncork some wine… They do these things with their genuine friends who truly know them and their relationships are strong and do not revolve around drinking.

I couldn’t manage my intense fear and crippling social anxiety without it – so i pulled away from everyone and hermitted in my Little Crooked House for years.
Not to hide. Not to avoid.
To do the work required to learn who i am and how to live as functionally as possible as more than one person occupying the same body. To hang out with and get to know my precious Bits N’ Pieces.
To know myself, so that when i was ready to return to real life social interactions, i would be able to stay present, in the face, in my body, and engage with people.
And who knows, maybe make a friend or 2.

I discovered i could socialise without drinking with no problem.
It was a transformative and cathartic experience.
I pursued a friendship with someone who is now my best friend.

So why have i needed hospital help to detox, twice in the last few months?

My childhood experiences taught me that using alcohol made scary situations not-scary.
This new round of therapy i’m in is all about feeling all the things that my abusers gave me alcohol and drugs to not feel.
The fear, the pain, the hopelessness, and awful, terrible aloneness that they visited upon me – over and over and over again, for years and years and years.

So now, while grownup me no longer needs or even wants the crutch of being chemically numbed, there are little scraps and wisps and snippets of lovely little creatures inside me, for whom that is all they know.

On the way to every appointment with my therapist, my throat starts to ache, i feel like i need to puke, to defecate, my genitals burn.
I sit in a chair in her office with my legs tucked up underneath me and a pillow clutched tightly against me, covering my girl parts – so i won’t run. So i can sit there with her and ride out the pain and the abject terror.

So that i might be more than just in control of the way my brain works.
So that i might be more than just the Captain of this ship of fools.
So that i might be more than just able to function in the world, on the world’s terms.

So that i might be 1 engine
1 retired soldier, a celebrated veteran of a war long over
1 beautiful tapestry with all the threads intricately and astoundingly woven together
1 song, with a thousand voices in perfect unison
Kintsugi
Not just to navigate the world, but to be a living, breathing, integral part of the world.

It’s excruciating work for me, let alone for children. These programmed, invaluable wee ones want their medication. Numbness. Oblivion.
And i have been overwhelmed and exhausted by this process and unable, and yes, often unwilling, to resist their demands.

Today i am detoxed and sober* and renewed.
Sometimes it takes me a long time to learn something, but by sticking with this process i believe i have arrived at a place of relatively calm acceptance of what i’m currently doing and what is coming.
I have gained purchase and am slowly inching towards my centre.

This is the unvarnished truth of it.
It’s enough for me. In fact, i don’t want it any other way, anymore.

Love and Peace Always,
~H~

*Respectfully, i’d ask that there be no 12-step commentary, plzkthx.

X-Rays and Asian Supermarkets

There are opportunities even in the most difficult moments.
~ Nobel Peace Prize winner Wangari Maathai.

Yesterday was an adventure, and since i’m trying to write through this tough period rather than after, i’mma tell you about it.

I have myriad health concerns, mental and physical. There’s both nature and nurture involved in them, which i suspect is true for many of us. For me, the primary physical issue has quickly become my back. I was morbidly obese for many years, which i’d guess is a large part of the problem, if not all, but at this point, i don’t know. What i do know is that after i lost most of the excess, i could hear my back making some noise, but i thought it was normal for someone of a more average weight. Over the last, say 6mos or so, the cracking and popping has become much more frequent, and in the last 6wks, downright painful. I saw my doctor, who ordered a series of x-rays. I went to my local hospital for them yesterday.

The preamble to my adventure is significant. I’ve been finding it increasingly difficult to be around people as i delve into this deeper level of therapy. Listening to my body, learning to read its signals, does not come naturally to me. I survived the abuse i suffered in childhood by turning off physical sensations and hiding in my brain. As an adult i’ve continued this practise, mostly due to a combination of not being fully conscious that i’ve been living this way, and being regularly triggered by the sorts of events and occurrences that happen to us all.

Attempting to stay present, and by that i mean not dissociate, and check in to my body’s reactions to what is going on around me is scary AF, and takes a great deal of energy. Even going through the checkout at a grocery store can be difficult. I’m known at every store i frequent (there’s one where i’m not, but it’s too bloody expensive, and i probably know people who work there too, anyway), and so i’m going to have to make some kind of small talk.

NOTE: Look, i know i don’t technically have to say anything, but beyond that, yeah, i kinda do. These are decent, hardworking people, who have their own lives going on at home, too. They may be in the weeds as well, but i don’t know about it because they’re in customer service, and so they put on a nice smile and ask how i’m doing. They may not actually give a crap, but i wouldn’t know that either because they’re damn good at their job. I don’t want to pass through that till without a single word. Even if i just tell them the truth and say that life stinks right now, i’m going to have some kind of verbal interaction with them. They see me every week. They perform a service for me very well. They’ve been unfailingly nice to me, and so that’s that – conversation is gonna happen.

Now comes the case where it’s not necessary. Heh.

My favourite grocery store is in the city, which is some distance from where i live. It’s my favourite because it’s an Asian supermarket, and because i’m not required to act the same way as i am in my small town offerings. Many of the customers speak broken English at best, and i am Amazon-sized and don’t speak their language at all, so small talk simply doesn’t happen very often. The cashiers don’t speak to me except to say Thank you! when they hand me my receipt. It’s fucking glorious.

I had an opportunity to go on Sunday, and it had been a couple of months, so there were things i needed that i can only get there, like the seaweed snacks we like for a reasonable price, and roasted soybean flour, and yellow rock sugar, and 2X spicy chicken volcano ramen. My husband and son had business in the city, so they dropped me off first, that i might take my time there, as is my wont. I love looking at all the different food choices, and i love trying new things, and i lovelovelove that i don’t have to talk to anyone – they don’t even expect me to say Excuse me, or Sorry! (although i still do – i’m Canadian, okay?)
I thought it would be the perfect venue for peopling and being present in my body, because it’s the least stressful.
But i have never been there on a weekend. On the weekend i am not the only non-Asian in the store. With my friendly face (it’sacursejustkiddingimostlylikeit) and my cart full of items that say i can cook more than ramen and pre-made bao buns, i’m getting approached. A lot. When a woman actually taps. me. on. my. shoulder. i’m done.

My wa is shattered, i’m dissociating. I can feel my face going numb and the edges of my vision blurring. I help her, and then my shopping is over. I can’t even walk down any more aisles, i just hit the checkout line, pay and get out. It’s when i walk out of the store and into the general mall area that my numbness breaks enough to tell me that i can’t carry my purchases much further. My back is making grinding noises and i’ve got to go sit down. I find the food court area and sit with my back to a makeshift wall, behind which an Asian man is selling mobile subscriptions, and a crotchety old white dude is pontificating on how he gets his for 30 bucks cheaper and would prove it if he could find his Blasted bill that’s in here somewhere, dang it! I don’t think the salesman understands him very well, and the old man leaves, exasperated. It’s enough of a distraction that i’m able to chuckle to myself, which grounds me and i’m able to fill out my body a little better. I flow back into the empty spaces and i can feel my feet on the floor. I’m still feeling sketchy though – i can see other people glancing sideways at me, which lets me know i’m probably ticcing a fair bit. I text the hubs to come get me.

Once i’m home and ensconced for the night, i start worrying about how in the actual frickety-frack i’m gonna go get these x-rays at my local hospital where i know the receptionist and i’m bound to run into others as i go through the intake that’s stationed right at Emerg. I barely sleep.

<insertBLARGHhere>

In the morning, the plan is for my husband to drive me to the gas station where he gets fuel for himself (COFFEE!) and his vehicle, and i’ll walk the rest of the way to the hospital. It’s a fair distance, but i love to walk, and have been itching to get back at it since i broke my ankle last November. My back should be fine, as it only starts making crunchy noises when i bend over or swivel my hips a lot.

I’ve barely gone 100yds before sciatic nerve pain starts shooting down both legs. My tenuous hold on my brain breaks immediately. I love walking, and so do my Bits N’ Pieces. I’ve used it as the foundation of my physical fitness, and a healthy way to cope with depression. It’s taken some work, because as a child i was programmed to return “home” at the first sign of trouble, and when i switch, the first thing i’m likely to do is hit the road walkin’, but i’ve found a way to make it fun and therapeutic for my whole system. To lose the walking when i’ve been waiting and hoping for months is crushing, and i start to cry…

I open my eyes and i’m no longer outside. I’m sitting in my girlfriend’s living room, and i’m still crying. Well, how about that, eh? I’m an old hand at pretending i’m fine. I’ve come back to the face many times when no one has had any idea that i was even gone. I mean, most people don’t know i’m a multiple, so for them, they may notice i’m behaving a bit strangely, but probably not even that. People are incredibly self-focused (no judgment here) and have no idea what i’m doing or going through, and don’t much care. And the healthier i get, the more i appreciate the ignorance of others. I’ve gone from this incredibly broken and dysfunctional person, who desperately wanted someone to notice and HELP ME! to a relatively normally functioning woman who’s grateful to be unnoticed. That being said, this girlfriend is my closest girlfriend, and she knows me and has seen me both in and out of the face. She’s chased me across the city, around the town we live in, saved me from frostbite, and pulled me from ditches. She’s seen me when it’s been very clear that i am not myself.

And so i tell her it’s me, and she smiles and reassures me that everything’s okay; that i’m okay and she’s okay and fills me in on what i’ve missed. (She picked me up for x-rays and then brought me to her house afterwards.) I cry a little more and then breathe into it, i breathe myself back into those pockets that are empty when i’m not there. The places no one can feel but me – my existential guts and girl parts. I settle in and the ache of fibromyalgia fills my neck, shoulders, arms, hands, and the pain radiating from my lumbar region floods down my buttocks and legs, the kind of back pain that makes a woman feel like she’s menstruating. Ah yes, this is the body i live in, it is home, and i know this place. It’s a fixer-upper, but it’s got hella potential and the renovations are coming along nicely.

My friend takes me home after gently caring for me and making sure i’m all right. Once there i think over the events of the last couple of days and take stock: what happened, how i felt, how i reacted, what did i do right, what could have been done better. I can see that things went fairly well overall, but they could have gone more smoothly had i had clearer communication with my partner, so i text him at work and schedule a talk session. I used to just pounce on the poor man when he came home. I’d be thinking about things for hours and just vomit all my thoughts and feelings about whatever all over him as he’s barely in the door. Heh. I’m far more able to consider him and his thoughts and feelings now, so i give him a heads up.

He picks me up and we go for a short drive, to a place where we have a lovely private view and can talk without interruption. I shared and he responded and shared things too, and i felt heard and understood. Then we went out for a spicy chicken sandwich. Home was quiet and uneventful, and i was able to fall asleep relatively easily.

I woke up though, and it brings me to something i’ve been wanting to explore a little deeper. If all goes well, i’ll post again tomorrow. I know this is long, and a bit plodding, with not much in the way of grand observations and stunning conclusions. However, i think it’s some of the most important stuff i can post, in that it relates the day-to-days of a regular life, lived by a regular person. I have a brain that works in a non-typical fashion, as so many of us do. Life happens, and i try to figure out how to have the best outcomes and get the most enjoyment and happiness that i can, all while also trying to be as useful and good a human as i can manage. This is slogging through the trenches stuff, and i’m doing it. Although your brain may work differently and you may require different coping skills and tweaks, i believe you have a chance to figure your shit out and enjoy a better quality of life, too. I want that for you, very much.

Love and Peace to All,
~H~

Friendship

I’ve developed a close friendship for the first time in many years. The kind of friend i check in with most days and hang out with every week.
She’s seen me switched, and had to deal with some of my shenanigans. It’s horribly embarrassing to me, but it’s also been good. She hasn’t walked away, and she hasn’t hurt me. I’ve lost some treasured friendships to bipolar disorder and multiplicity, and the way i coped was by keeping people at arm’s length, and hermitting in my Little Crooked House. I reached out to her for more friendship because i thought the cavalcade of crazy was pretty much over. Blargh.
She’s handled it better than anyone has, ever. Having a friend who accepts me exactly as i am is great, and having a friend who doesn’t treat me any differently after she’s seen my particular brand of cuckoo has been relaxing and healing and freeing. I’ve experienced the silent reaction (pretending the conversation never happened), the bullshit reaction (you are lying, that isn’t real), and the sideshow freak reaction (wow, how many alters do you have, what are their names, can i talk to one, what happened to make you that way).* Her reaction is relatively new. It’s a bit meh, and it’s nice.

Friendship has been a loaded issue my whole life. I’ve wanted connection, but the first half of my life i was running blind, and after that i pulled myself out of the race.
I’ve always been able to draw people in, i can make friends quickly and easily when i’m settled inside. Where i have trouble is building something deep and hanging on long term.

For the years since i accepted my diagnosis and began working on how to live with multiplicity, i’ve shouldered the blame for all my failed relationships.
I’m not easy to get to know.
It’s hard to get close to me.
I can be unreliable.
I’ve disappeared for weeks, even months, with no contact.
I can be histrionic and chaotic.
I can be emotionally unavailable, cold even.
I can be so focused on my own stuff, that i’m clueless about anyone else’s problems.

That’s not so much the case anymore, but back when i had a number of dear friends, those descriptors fit me rather well. I needed to know myself better in order to be able to function more effectively, and i studied it all, good, bad, or indifferent. I looked under every rock i found. It’s a tricky bit of business, trying to find the balance between being understandably broken because of how i was raised, and taking responsibility for the wreckage of my life. I wasn’t much of a success at life, beyond surviving. Don’t misunderstand me though, this is a balance thing, as i stated. I don’t believe in miracles, but the fact that i lived through my childhood and managed not to be a shitty human is as close to one as i’ve ever seen. I’m amazing, and i know it. I should either be far less functional and barely living, or a high-functioning, horrible person. But i’m not. I’m a likable, lovable woman who’s getting a little bit more awesome every day.

What i’m talking about here is an appropriate, adult level of personal responsibility.
And when it came to all the people i’ve lost, i took all the blame. I truly thought it was mine.

Recently, my new close girlfriend told me she’d been reading my blog, and bluntly stated that i’m too hard on myself. A couple of days later, someone who doesn’t know me but reads my blog offered up some similar commentary. I immediately bristled with my friend, but i noticed that i did, and so i went home and thought about it. By the time i received the second comment, i was more receptive, and more still when an online friend who’s known me for 15+yrs shared some lovely thoughts she had about my last piece. She also implied that i’m a harsh critic of my own work.

I’ve been pondering this for a week or 2 now, and i think it’s a valid criticism. I’m too critical of myself. (There’s a joke in there somewhere, but my current headache won’t let me find it. Pfft.) This is difficult for me to accept, as it runs contrary to my upbringing. I was the family scapegoat. I was bad, i was wrong, and i screwed it all up. My every move was scrutinised, and regularly and soundly criticised. I never met my mother’s expectations, nothing i did was good enough. There is constant chatter in my head from my Peanut Gallery, and someone is always picking at me: how i look, how i talk, how i cook, how i clean, how i write, how i mother, wife, friend… They sound like my mom.

I want to deal with this inner critic issue, but i have enough on my plate already. I do counter the voices quite often when the subject is how i look.

System: You look ridiculous in that outfit.
Me: I feel pretty, so it’s staying on.

I realise now that i don’t deal with the other stuff, though. I’ll try countering those voices where and when i can, but i won’t be pushing too hard right now. However, i do want to do one thing, it’s been percolating in my brain since that day in the car with my friend.

It’s not all my fault that i’ve lost the friends i’ve lost. Some of them naturally faded away, but a few were toxic to me in one way or another. The truth is they were shitty to me, and did me a favour by leaving. I was taught loyalty is all, and crappy treatment is to be expected. I didn’t see the behaviours until they were long gone, nevertheless i still saw the blame as mine.

But they used me, and i just loved them the best way i knew how, and when they weren’t getting enough from me to tolerate how sick i was getting, they left. I desperately needed help, and they left.

So there, i said it. I have a bowling ball in my belly and i feel like puking, but it’s out there. I may have sucked, but they also sucked.

There is my bit of growth for the day.
I’m not the bad guy, i’m the good guy. I also think i might be a pretty decent friend. It’s their loss, and they can kiss my pale, fallen ass.
Heh.

*I don’t particularly have a problem with any of these reactions. If it’s too much or you just don’t have the spoons to deal with my stuff, that’s okay, we can pretend i never said anything. I’m not lying, it is real, but i don’t blame you for thinking it’s a load of crap. I thought the same thing for most of my life. It’s cool to be curious, too. Feel free to ask me anything you’d like, just be aware that i might choose not to answer; some things i don’t share.

Schmozzle

I usually write after the bad stuff has happened, but recently, i’ve been trying to write through it, to open myself up a bit more. I write for me, and for anyone reading this that might find benefit… The days following my last post were decent, i could feel myself settling in to what’s coming in therapy – going deeper and tuning in to the story my body wants to tell me about my childhood. I got back into some regular activities and regimens: housework, hygiene, communicating with family and even a couple of friends. Normalcy, and with it, some peace.

Unfortunately, my physical health has taken a nosedive. I’m in full fibro flareup, which is bad enough, but i’ve got some new issues as well and they’re sapping what little energy i have to cope. I’ve been handling it the way my therapist has encouraged me to, by tuning in to my body and listening to what it’s telling me: i’m hungry feed me, i’m aching rest me, i’m upset soothe me… It’s that last one that i struggle so hard with, though. I got through this last crisis and returned to my schedule, not pushing too hard, but doing my best. If i was too tired, i might skip my nighttime skincare, and i only brushed my teeth perfunctorily, rather than my full 2 minutes, because it was making me retch and triggering me. When sexual activity came up, my body went completely numb, and i heard and honoured the NO.

These are good things and i’m proud to be accomplishing them, but my physical issues are getting so big i’m having trouble hanging on to even this amount of progress. I arranged to see the doctors i need to, but i’ve a week left to wait, and i don’t know where i’m going to find what i need to hang on until then.

Last night i was short-tempered and weepy, and today i hit a wall. I’m panicking about the wait. I’m worried that i can’t hold my system together and function properly until i see my therapist and my doctors. My pain level is too high, and my compulsion to take off and walk is almost too strong to resist. I don’t want to do this anymore.

I’m trying to listen to my body, but i don’t know how. My body terrifies me, and today i’m not sure if i can bear what it wants to share with me. I’m feeling sorry for myself, i know, but goddamnit why do i have to have the mental AND the physical? Haven’t i been through enough?
I feel young and small and i’m stomping around in my head with balled up, chubby little fists, doing that pre-Kindergarten angry cry.
I feel angsty and awkward and my delicate, teenage heart cries crimson tears.
I feel emptiness gnawing inside, a yawning pit where i lay at the bottom and am slowly consumed by the ache of fear.
Any desire or inspiration i have to deal with all the brain stuff, is being steamrolled by all this motherchristing pain. It’s taken 3 1/2hrs to get this much bashed out, and my head is thumping so hard it feels like my skull might pop off.

There is something, though. Writing this has made me calmer. I had to settle down enough to gather together a few words that made sense. This isn’t dissociation either, which is what i’ve been trying to avoid. When things are this tumultuous in my thinking, and then the physical piles on, the temptation to hide in the insensate is strong. It beckons me with the safety of nothingness.

I want to stay present, so i practise mindfulness, which, lemme tell ya, ain’t a helluva lotta fun right now. There’s a whispering behind a door inside me, and it’s practically swelling in its frame with its desire to open for me. I can open that door, go through and disappear for a while. It’s not restful, because the rest of me is still conscious, and my Bits N’ Pieces use up more energy than i do. It’s not safe, because a number of them can, and ohmygod have, gotten me into some dangerous situations.

Behind that door lies nothing.

I step into a void where i stop existing, only to step back, more tired, and often with some kind of mess to clean up. Damaged relationships, sometimes property (although not for a loooong time), almost always my body. Then comes the shame and anxiety, which must be handled carefully. If i’m not careful i can push myself into another hard switch. If i don’t consciously deal with the feelings at all, a switch is likely. Switching is not what i want. I love my people and i’m grateful for their care and protection, but i’m ready, willing, and mostly able to take the reins and drive this wagon full time.

I suspect this is what the next few months are going to look like:

I can do this. It’s gonna be fine.

OMGWTFICANTDOTHETHINGBBQ!!!!

It’s okay. I can do the thing.

Lather. Rinse. Repeat.

**********

I held onto this over the weekend, because i wanted to make sure that posting it was what i wanted to do. I know it’s not much of anything, because i’m scattered, enough so that, i think, it’s obvious i’m not quite all here. I’ve lost my voice. Whatever it is that identifies my writing as mine has slipped a little. I’m unsettled; rudderless. I’m anxious AF.

I want to edit/rewrite/punchup the entire thing, but i think that’s the wrong way to go. Reading my other stuff and reading this, may give you some insight. This is rambly, it’s trying to say something, but it doesn’t get there. It lacks cohesion.

Not to put too fine a point on it, but i am also currently lacking cohesion.
I’m scattered, and not quite all here.

I know i’m going to get through this and be better when it’s done. I also know there will be times when i’ll doubt that and be afraid i’m going to fail. I know that sometimes the pain and fear will be so intense that i’ll want to stop.
I have learned from being in the weeds many times before, that it will be okay. I will be okay. I lived through the actual experiences, anything after that is at least bearable.

It’s like when i used to smoke marijuana and hashish. Over the years i became more and more paranoid, but i could always handle it, because i knew, based on experience, that the high would end, and the feelings of paranoia were drug-induced.

So, with that in mind i’m going to post this meandering piece of weirdness, because i think it helps illustrate how my brain works. I think it could be a bridge between moments of clarity. How do i get from panic to peace? My brain isn’t always full of pithy observations and poetic imagery. Heh. Sometimes it’s on the mouthbreather setting. I’m fumbling around in here, trying to find meaning, trying to find something solid to stand on…

I’m not having much luck folks, but i’m not overly concerned at this precise moment. I think that writing has been instrumental in getting me from where i was when i first began writing this around 60hrs ago, to here, just about to smack that “publish” button.

This is part of my process. I recognise this place; i’ve been here many times before.
I can do this.

Pithiness will follow.

Image: Convergence, Jackson Pollack