Treading Water

I’m having trouble writing.

Yes, again.

It’s not because i’m going through a bunch of crud and i’m waiting for it to be done so i might over analyse it and package it up prettily, replete with a spiffy bow for your easy consumption. I’ve shared before that i struggle with this – i hesitate to share when i’m in the trenches, because it can get so damn dark and cold down there, and i’m trying to bring a message of hope. But i’ve learned that the truth can bring hope, even if the truth is ugly. I’ve also learned that it’s not my responsibility to save the world. As all my children are now grown, i’m no longer responsible for anyone but myself, and my dog.

The best i can do is throw life buoys in the water. They’ll keep you afloat for a while. Allow you to rest. But i can’t make you swim over to it, or grab onto it, or keep holding on. I hope you do, though. I want us all to make it.

I’m having trouble writing because i’m tired. The effort it requires for me to stay present in my body and resist dissociation is maximal. I don’t seem to have much left over for anything else. That’s okay, because i’ve tailored my life to accommodate this kind of thing. I have a very supportive partner, my kids aren’t kids anymore, and i live on a farm. I enjoy private space all around me, and the people in my life all know that “just popping by” is not an option.

So yeah, i’ve got an excellent setup for the work i’m doing, and i’ve settled into a groove. Well, it’s less groove than zombie-shuffle, but i’m gettin’ through it.
Except life has this way of happening, and life has gone and done happened on me.
My life has absolutely and utterly changed. To what extent, and whether for good or ill i don’t yet know, but i’ll never be the same.

It’s not appropriate to talk about it yet. I’m gathering information and sitting with it for a while, first. It’s not a diagnosis; i’m not sick. Well, nothing has been added to my current laundry list, and nothing has intensified or become life-threatening, at least. And my primary relationship is solid. So for any of my readers who’re inclined to worry – don’t. It’s a big deal, but it’s not bad. It’s just BIG. I don’t have any energy left over for anything besides functioning in the day-to-days, listening to my body and trying not to dissociate.

But life isn’t a consciousness. It has no feelings or intents or plans. It’s not trying to mess with me. It’s not laughing at me. I’m not a rat in its maze. Life just lives until it doesn’t. It doesn’t care about timing. It isn’t concerned with how many spoons i have in my coping drawer. It just rolls along and happens. And oh boy, has it ever happened.

What i’m going to do here is just update. Just mention some things and check in with how i’m doing. Living stuff. Coping. Processing. Thoughts and sundry.

My physical health is okay. Not great, but manageable. I’m learning to live with osteopenia (low bone density, not severe enough to be classified osteoporosis) by taking prophylactic medication and the right exercise. The result has been a reduction in pain, and far less of the “crunching” that i was hearing by late afternoon. The pain wasn’t terrible, but the noise was quite disturbing. I’m currently working on bringing up my fitness level. I started with walking.

Walking is something i’ve been doing a lot of, since i was able to do it. When we lived in cities, my mother would send me to the corner store for snacks and cigarettes, and out to panhandle. One of the best ways for me to escape from my home life for a while was to be outside, so i was outside a LOT. Whatever the weather, and long after other children had gone home, you could find me outside. When we moved into more small town living, we tended to live far away from the school. We were a wrong-side-of-the-tracks sort of family, so there was usually a few miles between me and the school. Another thing i did to stay out of her hair/way/path (although i didn’t see it that way at the time), was to join clubs. I was in lots of clubs growing up: girl scout type clubs, choirs, drama troupes, sports clubs, military clubs… I didn’t do too much school oriented after school activities, because bullies, but other clubs seemed mostly populated with nerds and misfits like me, so i didn’t get picked on much.

Walking is where i come closest to a quiet state of mind, too. Meditation is beyond the capabilities of many multiples. My brain is never silent, even when i’m dreaming i can pick up background chatter if i’m lucid enough. After decades of having professionals and non alike tell me that meditation could fix a number of my issues (even cure my anxiety, tap into my deeper intellect, and become a spiritual giant!), i finally found a therapist i could work with, who told me straight away that my being unable to meditate at even the most basic level was not at all uncommon for those diagnosed with DID.

Walking is also my system’s response to extreme stress. I was programmed to “go home” if i got in a bad spot, and it’s still a hard reflex inside me. I’ve taken off hundreds and hundreds of times, and probably logged thousands of kilometres.
All this to say – i can walk, honey.
So i’m walking, and it’s good, and i’m good at it, and it’s good for me.

Except for the fibro flare it’s causing, of course. That’s the crap part of it. I’ve been living with this chronic pain since 1995, so i’m fairly educated on my condition, and i know this is to be expected. The key is to increase gently, with long periods of status quo in between. I’ve also taken up some beginners yoga stretching, which i’m finding calms me rather nicely, while warming up my muscles for the distances i put in during the day.

(This is where my dark and twisty sense of humour comes in handy, because it’s just so **ME** to be working on my fitness and pushing through the resultant uptick in pain, while also trying to cut back/eliminate dissociation. I have this built in ability to distance myself from pain, and i can’t use it. I mean, i can, but i choose not to. Ah well, the hard way is just a way in the end, amirite? Heh.)

My diet is good. I’m calorie restricting for weight loss, but i eat soundly. My FitBit is helping with keeping me mindful of what i eat, although i don’t use any of their programs – that stuff can easily trigger obsession in me. I’m just logging my calories so that i can keep track. Sometimes i weigh and measure just to give me a better idea where my calories are being spent. Sunday i take the FitBit off, i don’t exercise per se, and i have a slight cheat day, food wise. I don’t go all out cheat though, because i find that hard to bounce back from sometimes, and i need the momentum i’ve built up to cruise me through while i’m dealing with this overwhelming exhaustion.

Socialising is hard for me right now. It happened suddenly, but that’s not out of the ordinary. I don’t want to go out and i don’t want to see anyone, but it’s slightly different now; i’m less extreme. In the past, i would hole up in my Little Crooked House and just hermit. No phones, no answering the door, no leaving the house except when unavoidable. Now i can see someone if i need to, for instance, i know a lovely woman who’s helping me with eyelash extensions while mine grow out after nuking them and my eyebrows in the Burning Barrel Incident that i mentioned a few posts ago. She’s softspoken and very kind and low key, and i don’t want to scream when she touches my face. If only there were eyebrow extensions. <insertruefulexpressionhere>

A dear friend invited me out to supper last Saturday  and i said Yes. When i got there, my body and brain started acting up immediately, and i knew i couldn’t stay. I did a quick negotiation with my Peanut Gallery: Yo, if y’all will just STFU and let me touch base with my friend, i won’t stay any longer than an hour. So i ordered my food to go, and had a nice chat with my friend while it was being prepared.
That’s some gold standard problem solving for me, right there.

I think what i’m seeing is, i can do one-on-ones, but i’m finding any more than that quickly saps what little energy i have. I love humans and enjoy their company – except when i don’t, and these last couple of weeks i’ve occasionally felt almost misanthropic. That’s a neon sign that my stress level is high.

I don’t like ending on a low note, but yeah… As i mentioned to my online group of friends yesterday, i’ve gotta look up to see dirt. Depression is seeping in, making me sluggish and mopey. These last couple of days i’ve felt sad and alone. There’s some self-pity there, sure. I can hear the sad trombone. But i’m going to allow myself a bit of ass-dragging, because i’ve learned if i don’t acknowledge what’s happening and just let myself BE™, a little, my condition will just get bigger and bigger until i pay attention. I must give it some space to breathe, and move, and act in accordance with my emotions (scared, mad, sad, etc.) and sensations (pain, ache, emptiness, etc.). I must listen to what my brain and my body are trying to tell me.

I haven’t been this down and heavy in my bones for a long time.
I can hang on until therapy tomorrow. Little goals.
My body is heavy and slow, so i do a few things around the house, with long breaks of doing sweet fuck all in between. My brain is foggy and fuzzy and full of low thoughts, so i read for entertainment only, and limit who i share space with, and i curate conversations to avoid topics that will feed my depressive feelings. I’m watching emotional stuff that helps me cry, because tears want to come, but i have trouble crying for myself. I can always cry for someone else, so sappy movies it is. I start crying because The Fisher King or RENT, but i keep crying because holy shit am i ever going through it right now.

This work is hard and it’s taking everything i have to do it. And life just has no heart, no mercy, no grace for me – it just keeps doing its thing and that’s just how life does things and i’ve gotta get with the program, man.
I’m plodding along, but it’s forward.
I’m doing the minimum, but i’m DOING.
I’m standing here on the shore as the tide advances, lapping at my feet, then swirling around my knees, and now it’s pulling me out, out into the deep…
And i’m letting it pull me.
I’m treading water for now, but i’ll get to swimming at some point.
I will.
You watch me.

Love and Peace,
~H~

Inside My Skin

There is a part 3 for I’m Not A Bitch, but today i’m posting a little blurp-up on how i’m doing right now.

Last year i had a schedule, with routines, regimens, and rituals aplenty, and i was hummin’ along like a vintage car that’s still with and well cared for by its original owner. I was as functional as i’d ever been in. my. life. and i was proud of what i’d accomplished and excited for more and better in my very near future.

That was when my body started poking my brain and saying, Ahem? Ah, excuse me?
I need some help.

It’s a little on the airy-fairy side for a firm atheist like me, but i have come to believe that it’s possible that it’s not just my brain that houses my memories, but my body, as well. Like, when i feel threatened, i can feel it immediately in my feet, my calves, my knees – the urge to run, to get away. The memories of being trapped by my abusers and unable to leave might be there, i think. Nestled in there with my muscles and tendons, lying dormant until a situation triggers old thoughts and feelings about the past and my fast-twitchers spark awake, GOGOGONOW!

I recognise that this may not be measurable in a scientific sense as of yet, but that’s okay. I’ve been working on getting down into my feelings,
<feelfreetorollyoureyesherebecauseicertainlyam>
and the deeper into them i get, the more i experience how connected my thoughts and emotions are to my physical body, when i feel safe enough to allow it.

As a highly dissociative human, i put distance between emotion and sensation and thought, because they have historically been too much for me to cope with all at once. I also never had a person safe enough and knowledgeable enough to teach me how to process these things; the why-am-i-like-this and the how-do-i-fix-it. Now that i do, when she (my therapist) suggests that my memories are not just in my brain, but in parts of me that exist in real time below the neck, well…
I experience, observe, and exist consciously in those moments when i sit down in the armchair by the window in her office, and my girl parts are buzzing like they’re covered in a thousand bumblebees, and she asks how i’m doing today, and my vagina starts to burn, like the bees are stinging me, so she has me take a big pillow and hide myself behind it, and wrap my arms around that pillow and pull it in tight, hugging my genital area, protecting it with a soft, warm barrier and my loving arms, and she asks me,

“How does that feel?”

And i roll my teary eyes and say, “I don’t know. Weird. Better… I guess. Good.”

Or how i pull my legs up onto that armchair, fanning them out alongside me because if i put them on the floor, they’ll start bouncing like corn popping, wanting to run. I feel safe with her in her office, and i come ready to be conscious of my body and be in it in real time. But other people that live in my brain, especially those that exist in a painful moment from the past, come wide awake and all they feel is trauma, and they want it to stop, so badly; they want to get away, nownownow. So my therapist has me put my feet back on the floor and bounce my knees and flex my feet and sometimes i’ve even placed the bottoms of my feet on the bottoms of hers and pumped my legs, HARD, like i’m riding a bicycle away – away from pain, away from danger, away from evil.

And i’ll be damned if it doesn’t help. I think my body is purging the memories of all the terrible things that were done to me when i was little. When i was with my mother and dependent on her for everything – helpless and unable to get away from the things that she did and allowed to be done to me.
It’s like i’m shedding “psychic” pounds.
I know, another metaphysical word coming from me, but i use it as a poetic description of what i’m experiencing, rather than an actual, tangible thing that exists.
What i mean is, i feel lighter in my feelings and my mood and my outlook on life, when i do these things –when i directly address the sensations in my body, and act out the movements it seems to be itching to do– i feel better.

So this is what i’ve been doing. Learning to tune in to my body, rather than distance myself from it. Letting my fists ball up, kicking my legs, covering my breasts, my belly, my nethers, with blankets, pillows, honouring the need for a barrier. Pulling my big dog into my lap and wrapping my arms around her, burying my face in her neck and feeling her warmth, her weight, her protection.

And walking again. Not taking off. Not getting away.
Recognising and honouring the need of my feet, my calves, my knees, my thighs, to move. The memories of wanting and needing so badly to get away from what was happening to me all those years ago and being unable to, all trapped there in my flesh and fascia. Pumping it out of me with each determined step, the pain and the fear pouring down into my toes and out, like i’ve lanced an infection and i’m draining the pus, leaving a trail on the dirt road behind me.

Lighter. Healthier. Cleaner. Freer.

It’s constant work but i don’t mind. I can see and feel the benefits. Unlike the brain work, where i slogged and slogged through the muck, such slow-going. Putting in so much time with little to no change, but hoping. And then seeing that which had been unravelled, ever so slowly knit back together.
The body work yields refreshingly immediate results. They don’t always last, but i can do it again, and the good stuff lasts a bit longer each time. One day, it might just settle right into my bones and that will be that.

So here i am today.
I’m sober. I’m not doing anything to numb myself, neither brain nor body. I’m living my life as simply as i can so that i might teach myself to be present and feel it all. To make conscious, thoughtful decisions on how to handle and cope with the day-to-days, and those times when life just happens. I mean, i wish it wouldn’t do that, but even to have the presence and awareness inside this skin sack in real time to think, Geez, Universe, now why’dja have to go and do that?! is a priceless gift.

I’ve lost the booze bloat and the grey cast to my skin. I’m back to managing my food choices and eating at a calorie deficit, nutritionally sound and designed for slow and steady weight loss, my goal of a single digit clothing size before summer hits is doable.
I often wear my clothes a bit on the tight side because:

1) I like having my business held in, hugged, and smoothed out;
2) It boosts my self-esteem and motivation to be wearing smaller sizes; and
3) It keeps me consciously in my body, that tight squeeze, that occasional escape of flesh over the top of my jeans.

Understand, this is not a shaming technique. I’m proud as heck of what i’ve accomplished, and any shame i carry about my body is due to childhood stuff, which i’m working through, tyvm. I’m also not suggesting anyone else do what i do for my weight, my body, my brain, my relationships – none of it, period. What i’m doing is sharing my process, in every way and on every level (save sexual and spiritual, although that may come some day), not so that you can do what i do, but so you can see that it can be done. 

I’m 52yrs old, and there’s no shame in that, either.
I am not who i was born to be.
It’s taken a lot of hard, intense, terrifying work to get where i am today.
Nobody could do it for me and a lot of it i did alone because i couldn’t find the right person to do it with me. But i persevered, taking little nuggets of wisdom from this place and that person, knocking on door after door, taking class after class, asking “professional” after professional? for help.
(That word though, what a loaded word in this particular field, heh.)

I got disheartened, led down wrong paths, misunderstood, misdiagnosed, ignored, unfairly judged, and many times, told i was Just fine! and/or Highly functional! because i was so willing to open up and do the work, and already had so much self-knowledge and personal insight and i’m clearly intelligent and have a large vocabulary and i’ve never been arrested or lived on the street, so… What’s your problem?

With such narrow definitions, it’s a wonder anyone gets any, let alone enough help, but some of us do.
If you have stuff inside you that needs work, i want you to see that i’m doing it, and so maybe you can, too.
If you need help with that work (and who doesn’t?), i want you to see that i found some (FINALLY!), and so maybe you can take heart and keep trying until you find that good fit: that person, that place, that program, that system -whatever it is- that clicks with you and helps you get your feet underneath you and walking forward. Or running, swimming, flying – however it works for you to figure your shit out and get through it. Whatever gets you moving towards something that you’ve always wanted for yourself.

I did it and i’m still doing it.
I should be either dead, or locked up, or completely non-functional, or just a shitty, awful human. I am none of those things.

Every time i blog it’s for me first, because it’s been very effective.
But it’s for you, second – because i want you to hang in there. I want you to find help, answers, love, success, happiness. All of it.
I wish i could do more, but i’m a lot of work, and this is what i can manage.
So far, anyway.

I’m pluggin’ away. It’s what works for me. I go through some tough, scary shit, but i just keep plodding along, learning about myself and how i work and doing the work that’s in front of me.

Then there are moments, beautiful, transformative, life-affirming moments, where i can see, not only how far i’ve come, but the depth and the breadth and the weight of what i’ve been able to achieve. It may not look like much to the rest of the world, but that no longer matters to me. What i’ve been able to do with my brain, my body, my life, is incredible and amazing. TO ME.

I hope that i can inspire others to just hang in there and keep trying. Stop and rest and feel how hard it is when you need to, you deserve that, but as soon as you can muster, try some more.

Love and Peace and So Much Thanks,
~H~

Image: Reclining Nude (c1887), George Hendrik Breitner

The Garden and the Gate

WARNING: Contains specific references to childhood neglect, physical assault, sexual assault, and incest. This piece is a bit brutal and a bit odd. Be certain you’re in a good place and/or have good support before proceeding.

Note: I’m very vague regarding the current situation i’m dealing with, in order to protect myself and my loved ones. Stuff can and does happen between me and people i care about. One of the most effective ways for me to maintain a decent grip on my mental/emotional health is to talk and write about my life. This current therapy i’m in makes it even more important to be diligent in cleaning the clutter out of my head. I must listen to what my system has to say and be mindful of their thoughts, feelings, and needs.

While i am the one who’s written this piece, i’ve done so in a highly dissociated state. I wasn’t completely switched (i.e. i didn’t lose time), but there were a few particular Bits N’ Pieces that dictated the more vague, analogy-driven parts at the end. It’s like, if my brain was a starship, the inside of my forehead feels like the bridge right now. I’m Data at the helm, and Captain Picard, Commander Riker, and Counsellor Troi are discussing where to go, what course to plot, and at what warp speed to travel. (Okay, i’m not Data. I’m very emotional today. I’m Wesley, which is fine, because i love Wesley. So there.)

**********

I was brought into the world for a selfish purpose. My mother wanted someone to love her, which is not unreasonable in and of itself, but her definition of love was twisted and sick. She expected me, from infancy, to fill all her needs.

I should love her, no matter what. Even if she often failed to meet my most basic needs, like food, clean diapers, protection from harm, soothing, medication/care when sick, vaccinations, play times, clothing that was clean, and proper according to the weather, and warm human contact.

I should love her, no matter what. Even if she slapped me, punched me, kicked me, pulled my hair out, pushed me down flights of stairs, bashed my face into walls, doors, cupboards, stove tops, twisted my arm, pinched me, bit me, bent my fingers backwards, threw things at me, broke things on me, even if she choked and suffocated me, sometimes to unconsciousness.

I should love her, no matter what. Even if she sent me out on the street to beg for money. Even if she sent me to the store to steal food. Even if she rented out my body for favours and gifts and cash.

I should love her, no matter what. Even if she used me as a receptacle for every feeling she couldn’t/wouldn’t express in a healthy way: fear, shame, guilt, and angerangeranger RAAAAGE. Even if i was her vessel into which she poured an endless stream of poison/venom/bile/shit.

I should love her, no matter what. Even if she spoke to me like i was a grownup since i remember comprehending speech. Even when she talked to me like I was her counsellor/confessor/best friend. Even when she had me touch her like I was her husband.

And i did, with my whole heart and mind and body. I loved her; she was my world. She was the best mom ever. And no one ever loved a child like my mom loved me. She’d had such a terrible childhood, i knew. She regaled me with stories* in lurid detail, stories that i might have identified with if she’d not already consciously, purposefully, carefully, and skillfully, helped me split apart and compartmentalise my brain.

How wonderful, how fortunate, how blessed i was to have such a special mother. So unique, so highly evolved, so triumphant over the evil that had surrounded her. So decent, so kind, so good.

She told me what to think, what to do, what to feel, whom to like and dislike.
I obeyed, i followed, i acquiesced, i surrendered, i died. I died over and over again, cutting off little bits of myself and shoving them into some black void inside me. Junk drawers and overstuffed closets and garbage bins inside my brain, and yes, i see now, inside my body too. Chunks of unacceptable personality tossed onto a compost heap and rotting, decomposing into some rich pile of shit that started talking to me when i was alone and in silence. Monsters morphing behind those closet doors, mostly muppet-like, but not all. Some terrifying and filled with rage and capable of destroying anything and anyone. Clawing at the door and rattling the knob, roaring to be set free, seeking apocalypse – annihilation.

I knew not to speak about how it was between us when the 2 of us were alone and behind closed doors, but not because it was bad or shameful or wrong. I knew how she treated me was special and we were highly evolved and incredibly intelligent and meant for a purpose. I knew the rest of the world was meaningless, and other people were dumb and stupid and incapable of understanding our ways.
I was indoctrinated, brainwashed, and Stockholmed. Fully. Completely. Utterly.

In the years since i first fell in love, accepted my multiplicity, got fat, got thin, got mania, got apostated, and lost or walked away from all friends and relatives, i’ve come to realise and own and carve out a reasonably functional and happy life from this washed up driftwood – to chip out a recognisable figure from this implacable slab of marble, this obdurate pile of refuse, this intransigent fabric.

It’s been the hardest work I’ve ever done; i’ve sweated and toiled and ached beyond measure to create and feed and grow this garden of mine, and it has yielded the most beautiful fruit.
Yes, i’m asserting that i’m amazing and colourful and worth a great deal. My fruit is too rare and precious to ever be put on sale, or for my location to be marked as a destination, though. One must be invited here, and my fruit is by offer only, although free to whom i would give it.

Another weird post, i know. It protects me and those i would shelter to be so arcane.
I’m HistrionicaButterfly, and i’m multifaceted AF, and sometimes it pleases and soothes me to be poetic and mysterious.
Today i’m being so because i’m sad and scared.
Someone i love is causing me a great deal of heartsickness and vexation.

I have a dragon who lives in my brain and he’s like an angel with a sword in that he oversees and protects all my lands and watches the gate.
I might have to banish someone i love, and my heart feels so laden and heavy and burdened. It feels as if it’s sinking into a yawning pit of emptiness that lies behind my heart. The ache reaches out of the muscle and into my bones; my sternum, my ribs, my scapulae.

This is not what i was born to be, or how i was raised to behave.
To tolerate is not even a consideration, and yet i’ve considered, and i’ve called it by that name. I’ve extended myself in grace that i was assured i never possessed.
I’m preparing to put my loved one out of this garden that i’d tended so long for my mother. This garden that was never hers and was always mine.
No matter how loved or how once welcome, you cannot dig up my flowers, my plants, or my trees. You cannot shit in my garden, and you can’t pick or partake of my fruit without permission.

I’m prepared to send my Dragon-Angel to swoop down upon this once-welcome visitor –to be swooped up by the talons and be deposited on the other side of my gate– to be guarded against as one might an interloper. I’m prepared to harden my heart until such time as they return with hat in hand, to humbly ask for reentrance.

No one, no matter how much I love them, will ever be allowed to abuse me again, and i will fight anyone for my safe space, no matter who they are or what they mean to me.

I have hope that all will be well, and in not too much time.
Nevertheless, i’m as prepared as i can be to say No and bar them from the safety and beauty of the space that i’ve built inside me and around me.

Y’all Take Care,
Love and Peace,
~H~

*Some that i’ve been able to verify, some that i’ve been able to debunk, some that i’ll never know for sure.

Image: Expulsion from the Garden of Eden, Thomas Cole (1828)

Imagination

Writing through the bad.

It struck me as maybe an important and helpful thing i could do.
I think i’m right about that – i think.
I fully intend to get to the other side of this, this current pile of crap i’m slogging around in, but sweet, smilin’ Buddha on a bicycle i didn’t know it was gonna be like this.

I’ve worked so hard to get control of myself  – to harness the power of this brain and channel it for good. My therapist says all multiples have a mutant superpower, and as soon as she said what it was i felt it in my bones.

IMAGINATION.
<insertSpongebobmemehere>

My brain is a place that’s hard to describe, even i don’t quite understand.
Years ago, my therapist asked me if i could make a place for one of my people to live. She prefers to be alone. She loves to read and listen to dark music. She’s obsessed with the supernatural and loves the forest.
I immediately made a cabin in the woods for her, a few miles away from the mansion where everyone else lives.
I do not know how to explain that these places exist inside my head. I can see them right now. Outrageously weird and stupid, right? I know.
My imagination is a mutant superpower.

I can make myself sick.
If i were to tell myself i have a terrible headache, one will manifest in a matter of minutes. And i’m not faking it. I’m feeling the pain in my head. I currently have a headache, heh. It’s a doozy.

I’ve had this thumper for months now.
Ever since i returned to therapy.
My head throbs and my legs itch to walk. To go home. To get away from people.

My head hurts. It’s so full. So many people are talking and i know this is my imagination at work. I know these people that live in my brain aren’t real. I know that my brain did an amazing thing to get me through my childhood. It separated my thoughts, my emotions, and my sensations from each other, so that i could survive what was happening to me. And these disconnected thoughts and experiences floated around in my head for so long they became something almost tangible…

My mutant brain had no trouble ascribing identities to them.
These weird and disembodied, precious Bits N’ Pieces.
I know they aren’t real.
Some of them even know it, too.

But here’s the thing. All i have is my own experience to go by.
I may be a brain in a jar, but i have no evidence of that — what i have is experience, and what i experience is other people living inside my brain. Most of them live in a mansion surrounded by a moat. One lives in a cabin. One stomps around the forest like a sasquatch.

And you’d better believe i have a dragon.
When you’ve got these mutant superpowers, of fucking course you get yourself a dragon.

This is the most exposed and vulnerable i’ve been since i disclosed my story all those years ago. I’m sharing this because, what happened to me as a child made me so dysfunctional that i haven’t been able to accomplish much of anything that looks like success by the world’s current metric. This is all i have to give. I made it through and i’m here and i’m a fairly decent human and i’m learning and growing and getting better every single day.

My head is throbbing and bursting with voices. They leak out my ears and spill down my body like a bloody waterfall. Blood in the water.
I survived what happened to me because i became a multiple.
My head is bleeding thoughts because i’m not supposed to talk about this. I was programmed for secrecy. I love my system, but they’re shouting at me SHUT UP! NO! YOU’RE NOT ALLOWED! PRIVATE!

I’m walking around waiting for the beating because i’m not allowed to tell.
I’m a guitar string stretched too tight. Every muscle in my body is on hyper-alert. There’s a terror inside me that they’re going to take me away from my mom.
She’s been dead for nearly 30yrs.

This is writing through the bad. I’ve just gotta get this shit out; if it stays in my brain it rots, putrifies, poisons me. My brain is too dangerous a neighbourhood to walk through on my own. I am holding your hand, reader, so tight.
So many shadows and wisps and slivers of people inside my brain, yet i’ve always felt so alone.

This is reaching out into the dark for a hand – any hand. Anybody.
I know this will be okay. I know i will be okay. I already survived the worst of it – i can be all naked and weird and vomity. One foot in front of the other. One word and then the next.

Thanks for reading. You have no idea how much it means to me.

X-Rays and Asian Supermarkets

There are opportunities even in the most difficult moments.
~ Nobel Peace Prize winner Wangari Maathai.

Yesterday was an adventure, and since i’m trying to write through this tough period rather than after, i’mma tell you about it.

I have myriad health concerns, mental and physical. There’s both nature and nurture involved in them, which i suspect is true for many of us. For me, the primary physical issue has quickly become my back. I was morbidly obese for many years, which i’d guess is a large part of the problem, if not all, but at this point, i don’t know. What i do know is that after i lost most of the excess, i could hear my back making some noise, but i thought it was normal for someone of a more average weight. Over the last, say 6mos or so, the cracking and popping has become much more frequent, and in the last 6wks, downright painful. I saw my doctor, who ordered a series of x-rays. I went to my local hospital for them yesterday.

The preamble to my adventure is significant. I’ve been finding it increasingly difficult to be around people as i delve into this deeper level of therapy. Listening to my body, learning to read its signals, does not come naturally to me. I survived the abuse i suffered in childhood by turning off physical sensations and hiding in my brain. As an adult i’ve continued this practise, mostly due to a combination of not being fully conscious that i’ve been living this way, and being regularly triggered by the sorts of events and occurrences that happen to us all.

Attempting to stay present, and by that i mean not dissociate, and check in to my body’s reactions to what is going on around me is scary AF, and takes a great deal of energy. Even going through the checkout at a grocery store can be difficult. I’m known at every store i frequent (there’s one where i’m not, but it’s too bloody expensive, and i probably know people who work there too, anyway), and so i’m going to have to make some kind of small talk.

NOTE: Look, i know i don’t technically have to say anything, but beyond that, yeah, i kinda do. These are decent, hardworking people, who have their own lives going on at home, too. They may be in the weeds as well, but i don’t know about it because they’re in customer service, and so they put on a nice smile and ask how i’m doing. They may not actually give a crap, but i wouldn’t know that either because they’re damn good at their job. I don’t want to pass through that till without a single word. Even if i just tell them the truth and say that life stinks right now, i’m going to have some kind of verbal interaction with them. They see me every week. They perform a service for me very well. They’ve been unfailingly nice to me, and so that’s that – conversation is gonna happen.

Now comes the case where it’s not necessary. Heh.

My favourite grocery store is in the city, which is some distance from where i live. It’s my favourite because it’s an Asian supermarket, and because i’m not required to act the same way as i am in my small town offerings. Many of the customers speak broken English at best, and i am Amazon-sized and don’t speak their language at all, so small talk simply doesn’t happen very often. The cashiers don’t speak to me except to say Thank you! when they hand me my receipt. It’s fucking glorious.

I had an opportunity to go on Sunday, and it had been a couple of months, so there were things i needed that i can only get there, like the seaweed snacks we like for a reasonable price, and roasted soybean flour, and yellow rock sugar, and 2X spicy chicken volcano ramen. My husband and son had business in the city, so they dropped me off first, that i might take my time there, as is my wont. I love looking at all the different food choices, and i love trying new things, and i lovelovelove that i don’t have to talk to anyone – they don’t even expect me to say Excuse me, or Sorry! (although i still do – i’m Canadian, okay?)
I thought it would be the perfect venue for peopling and being present in my body, because it’s the least stressful.
But i have never been there on a weekend. On the weekend i am not the only non-Asian in the store. With my friendly face (it’sacursejustkiddingimostlylikeit) and my cart full of items that say i can cook more than ramen and pre-made bao buns, i’m getting approached. A lot. When a woman actually taps. me. on. my. shoulder. i’m done.

My wa is shattered, i’m dissociating. I can feel my face going numb and the edges of my vision blurring. I help her, and then my shopping is over. I can’t even walk down any more aisles, i just hit the checkout line, pay and get out. It’s when i walk out of the store and into the general mall area that my numbness breaks enough to tell me that i can’t carry my purchases much further. My back is making grinding noises and i’ve got to go sit down. I find the food court area and sit with my back to a makeshift wall, behind which an Asian man is selling mobile subscriptions, and a crotchety old white dude is pontificating on how he gets his for 30 bucks cheaper and would prove it if he could find his Blasted bill that’s in here somewhere, dang it! I don’t think the salesman understands him very well, and the old man leaves, exasperated. It’s enough of a distraction that i’m able to chuckle to myself, which grounds me and i’m able to fill out my body a little better. I flow back into the empty spaces and i can feel my feet on the floor. I’m still feeling sketchy though – i can see other people glancing sideways at me, which lets me know i’m probably ticcing a fair bit. I text the hubs to come get me.

Once i’m home and ensconced for the night, i start worrying about how in the actual frickety-frack i’m gonna go get these x-rays at my local hospital where i know the receptionist and i’m bound to run into others as i go through the intake that’s stationed right at Emerg. I barely sleep.

<insertBLARGHhere>

In the morning, the plan is for my husband to drive me to the gas station where he gets fuel for himself (COFFEE!) and his vehicle, and i’ll walk the rest of the way to the hospital. It’s a fair distance, but i love to walk, and have been itching to get back at it since i broke my ankle last November. My back should be fine, as it only starts making crunchy noises when i bend over or swivel my hips a lot.

I’ve barely gone 100yds before sciatic nerve pain starts shooting down both legs. My tenuous hold on my brain breaks immediately. I love walking, and so do my Bits N’ Pieces. I’ve used it as the foundation of my physical fitness, and a healthy way to cope with depression. It’s taken some work, because as a child i was programmed to return “home” at the first sign of trouble, and when i switch, the first thing i’m likely to do is hit the road walkin’, but i’ve found a way to make it fun and therapeutic for my whole system. To lose the walking when i’ve been waiting and hoping for months is crushing, and i start to cry…

I open my eyes and i’m no longer outside. I’m sitting in my girlfriend’s living room, and i’m still crying. Well, how about that, eh? I’m an old hand at pretending i’m fine. I’ve come back to the face many times when no one has had any idea that i was even gone. I mean, most people don’t know i’m a multiple, so for them, they may notice i’m behaving a bit strangely, but probably not even that. People are incredibly self-focused (no judgment here) and have no idea what i’m doing or going through, and don’t much care. And the healthier i get, the more i appreciate the ignorance of others. I’ve gone from this incredibly broken and dysfunctional person, who desperately wanted someone to notice and HELP ME! to a relatively normally functioning woman who’s grateful to be unnoticed. That being said, this girlfriend is my closest girlfriend, and she knows me and has seen me both in and out of the face. She’s chased me across the city, around the town we live in, saved me from frostbite, and pulled me from ditches. She’s seen me when it’s been very clear that i am not myself.

And so i tell her it’s me, and she smiles and reassures me that everything’s okay; that i’m okay and she’s okay and fills me in on what i’ve missed. (She picked me up for x-rays and then brought me to her house afterwards.) I cry a little more and then breathe into it, i breathe myself back into those pockets that are empty when i’m not there. The places no one can feel but me – my existential guts and girl parts. I settle in and the ache of fibromyalgia fills my neck, shoulders, arms, hands, and the pain radiating from my lumbar region floods down my buttocks and legs, the kind of back pain that makes a woman feel like she’s menstruating. Ah yes, this is the body i live in, it is home, and i know this place. It’s a fixer-upper, but it’s got hella potential and the renovations are coming along nicely.

My friend takes me home after gently caring for me and making sure i’m all right. Once there i think over the events of the last couple of days and take stock: what happened, how i felt, how i reacted, what did i do right, what could have been done better. I can see that things went fairly well overall, but they could have gone more smoothly had i had clearer communication with my partner, so i text him at work and schedule a talk session. I used to just pounce on the poor man when he came home. I’d be thinking about things for hours and just vomit all my thoughts and feelings about whatever all over him as he’s barely in the door. Heh. I’m far more able to consider him and his thoughts and feelings now, so i give him a heads up.

He picks me up and we go for a short drive, to a place where we have a lovely private view and can talk without interruption. I shared and he responded and shared things too, and i felt heard and understood. Then we went out for a spicy chicken sandwich. Home was quiet and uneventful, and i was able to fall asleep relatively easily.

I woke up though, and it brings me to something i’ve been wanting to explore a little deeper. If all goes well, i’ll post again tomorrow. I know this is long, and a bit plodding, with not much in the way of grand observations and stunning conclusions. However, i think it’s some of the most important stuff i can post, in that it relates the day-to-days of a regular life, lived by a regular person. I have a brain that works in a non-typical fashion, as so many of us do. Life happens, and i try to figure out how to have the best outcomes and get the most enjoyment and happiness that i can, all while also trying to be as useful and good a human as i can manage. This is slogging through the trenches stuff, and i’m doing it. Although your brain may work differently and you may require different coping skills and tweaks, i believe you have a chance to figure your shit out and enjoy a better quality of life, too. I want that for you, very much.

Love and Peace to All,
~H~

Schmozzle

I usually write after the bad stuff has happened, but recently, i’ve been trying to write through it, to open myself up a bit more. I write for me, and for anyone reading this that might find benefit… The days following my last post were decent, i could feel myself settling in to what’s coming in therapy – going deeper and tuning in to the story my body wants to tell me about my childhood. I got back into some regular activities and regimens: housework, hygiene, communicating with family and even a couple of friends. Normalcy, and with it, some peace.

Unfortunately, my physical health has taken a nosedive. I’m in full fibro flareup, which is bad enough, but i’ve got some new issues as well and they’re sapping what little energy i have to cope. I’ve been handling it the way my therapist has encouraged me to, by tuning in to my body and listening to what it’s telling me: i’m hungry feed me, i’m aching rest me, i’m upset soothe me… It’s that last one that i struggle so hard with, though. I got through this last crisis and returned to my schedule, not pushing too hard, but doing my best. If i was too tired, i might skip my nighttime skincare, and i only brushed my teeth perfunctorily, rather than my full 2 minutes, because it was making me retch and triggering me. When sexual activity came up, my body went completely numb, and i heard and honoured the NO.

These are good things and i’m proud to be accomplishing them, but my physical issues are getting so big i’m having trouble hanging on to even this amount of progress. I arranged to see the doctors i need to, but i’ve a week left to wait, and i don’t know where i’m going to find what i need to hang on until then.

Last night i was short-tempered and weepy, and today i hit a wall. I’m panicking about the wait. I’m worried that i can’t hold my system together and function properly until i see my therapist and my doctors. My pain level is too high, and my compulsion to take off and walk is almost too strong to resist. I don’t want to do this anymore.

I’m trying to listen to my body, but i don’t know how. My body terrifies me, and today i’m not sure if i can bear what it wants to share with me. I’m feeling sorry for myself, i know, but goddamnit why do i have to have the mental AND the physical? Haven’t i been through enough?
I feel young and small and i’m stomping around in my head with balled up, chubby little fists, doing that pre-Kindergarten angry cry.
I feel angsty and awkward and my delicate, teenage heart cries crimson tears.
I feel emptiness gnawing inside, a yawning pit where i lay at the bottom and am slowly consumed by the ache of fear.
Any desire or inspiration i have to deal with all the brain stuff, is being steamrolled by all this motherchristing pain. It’s taken 3 1/2hrs to get this much bashed out, and my head is thumping so hard it feels like my skull might pop off.

There is something, though. Writing this has made me calmer. I had to settle down enough to gather together a few words that made sense. This isn’t dissociation either, which is what i’ve been trying to avoid. When things are this tumultuous in my thinking, and then the physical piles on, the temptation to hide in the insensate is strong. It beckons me with the safety of nothingness.

I want to stay present, so i practise mindfulness, which, lemme tell ya, ain’t a helluva lotta fun right now. There’s a whispering behind a door inside me, and it’s practically swelling in its frame with its desire to open for me. I can open that door, go through and disappear for a while. It’s not restful, because the rest of me is still conscious, and my Bits N’ Pieces use up more energy than i do. It’s not safe, because a number of them can, and ohmygod have, gotten me into some dangerous situations.

Behind that door lies nothing.

I step into a void where i stop existing, only to step back, more tired, and often with some kind of mess to clean up. Damaged relationships, sometimes property (although not for a loooong time), almost always my body. Then comes the shame and anxiety, which must be handled carefully. If i’m not careful i can push myself into another hard switch. If i don’t consciously deal with the feelings at all, a switch is likely. Switching is not what i want. I love my people and i’m grateful for their care and protection, but i’m ready, willing, and mostly able to take the reins and drive this wagon full time.

I suspect this is what the next few months are going to look like:

I can do this. It’s gonna be fine.

OMGWTFICANTDOTHETHINGBBQ!!!!

It’s okay. I can do the thing.

Lather. Rinse. Repeat.

**********

I held onto this over the weekend, because i wanted to make sure that posting it was what i wanted to do. I know it’s not much of anything, because i’m scattered, enough so that, i think, it’s obvious i’m not quite all here. I’ve lost my voice. Whatever it is that identifies my writing as mine has slipped a little. I’m unsettled; rudderless. I’m anxious AF.

I want to edit/rewrite/punchup the entire thing, but i think that’s the wrong way to go. Reading my other stuff and reading this, may give you some insight. This is rambly, it’s trying to say something, but it doesn’t get there. It lacks cohesion.

Not to put too fine a point on it, but i am also currently lacking cohesion.
I’m scattered, and not quite all here.

I know i’m going to get through this and be better when it’s done. I also know there will be times when i’ll doubt that and be afraid i’m going to fail. I know that sometimes the pain and fear will be so intense that i’ll want to stop.
I have learned from being in the weeds many times before, that it will be okay. I will be okay. I lived through the actual experiences, anything after that is at least bearable.

It’s like when i used to smoke marijuana and hashish. Over the years i became more and more paranoid, but i could always handle it, because i knew, based on experience, that the high would end, and the feelings of paranoia were drug-induced.

So, with that in mind i’m going to post this meandering piece of weirdness, because i think it helps illustrate how my brain works. I think it could be a bridge between moments of clarity. How do i get from panic to peace? My brain isn’t always full of pithy observations and poetic imagery. Heh. Sometimes it’s on the mouthbreather setting. I’m fumbling around in here, trying to find meaning, trying to find something solid to stand on…

I’m not having much luck folks, but i’m not overly concerned at this precise moment. I think that writing has been instrumental in getting me from where i was when i first began writing this around 60hrs ago, to here, just about to smack that “publish” button.

This is part of my process. I recognise this place; i’ve been here many times before.
I can do this.

Pithiness will follow.

Image: Convergence, Jackson Pollack

UTI TMI

I’m angry. It doesn’t take me long to figure these things out anymore. This time was less than half the day.
First, i want to be alone. It’s a priority, even wanting to be away from those i love and need, and who love and need me, too. It’s a not wanting to be seen kind of feeling. Don’t look at me.
Next, i’m more emotional than usual. Like, if feelings had a volume, mine could be turned down a bit right now. It’s not loud, but it’s drowning out lesser sounds at this point. Which leads me to another sign that things aren’t right: my focus.
I’m snarky. I’m complaining about things that normally wouldn’t bother me, or if they do, they’re the kind of bother that i would purposely let go of, because i can’t affect it, or it doesn’t concern me, or it’s just bloody petty. I need to economise my emotional expenditures right now, and i can’t spare the energy. Sometimes it’s good for me to let loose with a pointless and/or shallow rant about things that don’t matter, like a bleed valve. This is not one of those times. It feels wrong, this morning chirping on social media.

This is about something else, and since i don’t have any reserves, i’d better deal with it before it throws a wrench in my current plans.
So yeah – i’m pissed off.

I’m tired of being in this much physical pain, for one thing.
My fibro flared up right away when all this -whatever the fuck you wanna call this- started coming up for me. The losing voices, losing face, losing time. It wavers between enough pain i almost long for my heavy drinking, pill popping days, and so much that i wish my shoulders, neck, and arms were detachable.
I have a headache that never leaves. In the morning it’s like a band of steel across my forehead and temples, but over the course of the day it travels to the base of my skull, where it becomes so intense it hurts to turn my head in any direction.

And there’s the thing that i don’t talk about. I’ve had bladder and kidney trouble since birth, and what i went through as a child likely made everything worse. I had dozens of yeast infections as a little girl, and it made me very susceptible to them ever after. I know how to avoid them now, but i have never been able to combat the UTIs. I’ve been plagued by them ever since i can remember. I’ve had so many, in fact, that i stopped seeing a doctor for them unless they were particularly painful. I would just resist the urge to pee, and drink great quantities of fluids, until i didn’t feel it anymore. I thought i’d flushed it out. When i confessed this to my GP recently, she told me that i was at an age where doing so was damaging my kidneys, and i needed to stop ignoring it and seek immediate treatment.
Pfft, i say to myself.
So of course i get a spectacular one that i can’t ignore.

Well, i can’t ignore it for long. I could feel one starting a couple of weeks ago, but even then i was wondering if it’s ever even totally gone away. I cycle in and out of the physical symptoms of having a mild one so often and i use my dissociative skills so reflexively and unconsciously for pain and discomfort… I don’t know wtf is going on down there.
My middle son was visiting this weekend, so i was focused on being present and enjoying every second he was here. I was happy to push it into the background, but by last night i knew it was going to need handling. When i woke this morning i knew immediately i’d waited too long. I’d been discussing its presence a few days before with a friend, and she shared her experience of them as “pissing razor blades”. I told her i remembered having some that serious, but they were a long time ago.
Ha. Am i that suggestible, or is it serious?
The visible pooch in my belly, and the feeling like a gorilla is sitting on it make me think it’s real and not the nocebo effect.

I’m going to emerg to get a ‘scrip.
Tffp. I’m taking back my pfft. I hope y’all are happy now.

See this? I’m testy, even with you.
I’m not sure why pain makes me angry. I could pop-psychology it easily i’m sure, but i’m going to give it the attention it deserves. The attention i deserve. Due diligence.

I’m also mad about more than this. I caught a whiff of it on Friday, and it’s been lurking in the background, conspiring with the pain, plotting more fuckery.
I’m sure i’ll get into that later.

I’m going to now spam my social media with unicorns and puppy dogs and syrupy poetry, in hopes of balancing out my wall full of grumpitudes this morning.

Ciao.
Italian makes me feel less rumpled, or at least like i’m a whiny sack of sad with some style. Heh.