I’ve Fallen and I Can’t Get Up

Depression has kicked my ass so hard i’m having trouble doing much of anything.

My house, yard, body, and relationships are basically okay, meaning clean enough, not cluttered or in disrepair, but that’s it.
I’m having a shit of a time writing.
My fibro pain is so bad i’m dissociating to get away from it.
I struggle in conversation; i can participate, but on the inside, i am freaking. out.
My system is banging around in my head so hard that i have a constant headache. The only time i’m not aware of it is when i’m sleeping.

Speaking of sleeping, it’s the only thing that’s going well in my life, which makes me wonder if i got sucked into an alternate universe where it’s Spongebob’s opposite day, every day. Because sleep is always a crapshoot for me. Maybe i’m finally on the right mix of meds? The only problem remains dreaming. I dream all night long, flowing from one dream into another and then another. I wake up to use the bathroom, and as soon as i’m back to sleep, my dream picks back up where it left off. They’re not nightmares, they’re not even particularly disturbing, but they are exhausting. They’re the kind of dreams i have when my stress level is too high.

My body is at the breaking point.

I saw the doctor last week to chat about my last round of blood work. My organs are functioning well, and my weight loss continues. My headaches have become debilitating, so she gave me a neurological exam.

When she was through, she said, “You are the tensest person i’ve ever examined.”

She thinks the problem might be stress, and i’m inclined to agree. The band around my forehead began tightening as soon as i started typing this post, and it’s already at the point where i’m having trouble concentrating. I’ve decided to cut this post short, but i will continue it tomorrow. It might be the only way i can produce consistently for this blog.

Some people in my brain do not want me to do this work i’m doing with my therapist. I was never supposed to talk about what happened to me, let alone survive this long. I’m coming up against some parts of my system that are allied with my abusers. I’ve spent years cleaning out the horde in my brain, and they don’t like it. I’m integrating (becoming fully co-conscious with my system), and some of the bits that split off when i was little have been… I don’t know what to call it. Reabsorbed?

It’s hard to describe; it’s all so esoteric.

I’ll elaborate tomorrow.

IMAGE: Caleb Woods

Schmozzle

I usually write after the bad stuff has happened, but recently, i’ve been trying to write through it, to open myself up a bit more. I write for me, and for anyone reading this that might find benefit… The days following my last post were decent, i could feel myself settling in to what’s coming in therapy – going deeper and tuning in to the story my body wants to tell me about my childhood. I got back into some regular activities and regimens: housework, hygiene, communicating with family and even a couple of friends. Normalcy, and with it, some peace.

Unfortunately, my physical health has taken a nosedive. I’m in full fibro flareup, which is bad enough, but i’ve got some new issues as well and they’re sapping what little energy i have to cope. I’ve been handling it the way my therapist has encouraged me to, by tuning in to my body and listening to what it’s telling me: i’m hungry feed me, i’m aching rest me, i’m upset soothe me… It’s that last one that i struggle so hard with, though. I got through this last crisis and returned to my schedule, not pushing too hard, but doing my best. If i was too tired, i might skip my nighttime skincare, and i only brushed my teeth perfunctorily, rather than my full 2 minutes, because it was making me retch and triggering me. When sexual activity came up, my body went completely numb, and i heard and honoured the NO.

These are good things and i’m proud to be accomplishing them, but my physical issues are getting so big i’m having trouble hanging on to even this amount of progress. I arranged to see the doctors i need to, but i’ve a week left to wait, and i don’t know where i’m going to find what i need to hang on until then.

Last night i was short-tempered and weepy, and today i hit a wall. I’m panicking about the wait. I’m worried that i can’t hold my system together and function properly until i see my therapist and my doctors. My pain level is too high, and my compulsion to take off and walk is almost too strong to resist. I don’t want to do this anymore.

I’m trying to listen to my body, but i don’t know how. My body terrifies me, and today i’m not sure if i can bear what it wants to share with me. I’m feeling sorry for myself, i know, but goddamnit why do i have to have the mental AND the physical? Haven’t i been through enough?
I feel young and small and i’m stomping around in my head with balled up, chubby little fists, doing that pre-Kindergarten angry cry.
I feel angsty and awkward and my delicate, teenage heart cries crimson tears.
I feel emptiness gnawing inside, a yawning pit where i lay at the bottom and am slowly consumed by the ache of fear.
Any desire or inspiration i have to deal with all the brain stuff, is being steamrolled by all this motherchristing pain. It’s taken 3 1/2hrs to get this much bashed out, and my head is thumping so hard it feels like my skull might pop off.

There is something, though. Writing this has made me calmer. I had to settle down enough to gather together a few words that made sense. This isn’t dissociation either, which is what i’ve been trying to avoid. When things are this tumultuous in my thinking, and then the physical piles on, the temptation to hide in the insensate is strong. It beckons me with the safety of nothingness.

I want to stay present, so i practise mindfulness, which, lemme tell ya, ain’t a helluva lotta fun right now. There’s a whispering behind a door inside me, and it’s practically swelling in its frame with its desire to open for me. I can open that door, go through and disappear for a while. It’s not restful, because the rest of me is still conscious, and my Bits N’ Pieces use up more energy than i do. It’s not safe, because a number of them can, and ohmygod have, gotten me into some dangerous situations.

Behind that door lies nothing.

I step into a void where i stop existing, only to step back, more tired, and often with some kind of mess to clean up. Damaged relationships, sometimes property (although not for a loooong time), almost always my body. Then comes the shame and anxiety, which must be handled carefully. If i’m not careful i can push myself into another hard switch. If i don’t consciously deal with the feelings at all, a switch is likely. Switching is not what i want. I love my people and i’m grateful for their care and protection, but i’m ready, willing, and mostly able to take the reins and drive this wagon full time.

I suspect this is what the next few months are going to look like:

I can do this. It’s gonna be fine.

OMGWTFICANTDOTHETHINGBBQ!!!!

It’s okay. I can do the thing.

Lather. Rinse. Repeat.

**********

I held onto this over the weekend, because i wanted to make sure that posting it was what i wanted to do. I know it’s not much of anything, because i’m scattered, enough so that, i think, it’s obvious i’m not quite all here. I’ve lost my voice. Whatever it is that identifies my writing as mine has slipped a little. I’m unsettled; rudderless. I’m anxious AF.

I want to edit/rewrite/punchup the entire thing, but i think that’s the wrong way to go. Reading my other stuff and reading this, may give you some insight. This is rambly, it’s trying to say something, but it doesn’t get there. It lacks cohesion.

Not to put too fine a point on it, but i am also currently lacking cohesion.
I’m scattered, and not quite all here.

I know i’m going to get through this and be better when it’s done. I also know there will be times when i’ll doubt that and be afraid i’m going to fail. I know that sometimes the pain and fear will be so intense that i’ll want to stop.
I have learned from being in the weeds many times before, that it will be okay. I will be okay. I lived through the actual experiences, anything after that is at least bearable.

It’s like when i used to smoke marijuana and hashish. Over the years i became more and more paranoid, but i could always handle it, because i knew, based on experience, that the high would end, and the feelings of paranoia were drug-induced.

So, with that in mind i’m going to post this meandering piece of weirdness, because i think it helps illustrate how my brain works. I think it could be a bridge between moments of clarity. How do i get from panic to peace? My brain isn’t always full of pithy observations and poetic imagery. Heh. Sometimes it’s on the mouthbreather setting. I’m fumbling around in here, trying to find meaning, trying to find something solid to stand on…

I’m not having much luck folks, but i’m not overly concerned at this precise moment. I think that writing has been instrumental in getting me from where i was when i first began writing this around 60hrs ago, to here, just about to smack that “publish” button.

This is part of my process. I recognise this place; i’ve been here many times before.
I can do this.

Pithiness will follow.

Image: Convergence, Jackson Pollack

La Vie Dramatique

I have learned now that while those who speak about one’s miseries usually hurt, those who keep silence hurt more
~ C. S. Lewis

My relationship with pain is as interesting as anyone’s, i guess. Maybe a bit more complicated?

I haven’t been in this much pain in a long while. I said it yesterday and i’ll say it again – it’s because i have to bear it myself. One reason why i splintered into smaller pieces was to cope with pain. It was to keep my thinking separate from my physical and emotional experiences of such. When i first split, i lacked the sophistication required to process what was happening to me. Hell, i’m not sure i can even now, but that’s where i endeavour to go and what i intend to find out.
I will go to the place where i feel what i felt, armed with what i know. I will attempt to have the experience of both of these things at the same time, in hopes of bringing more healing to my entire system, and more functionality to me, the primary face holder.

So this is an opportunity to prepare for it. And a sign that it’s already begun.

***** A Brief Aside *****

Listen, i know how dramatic i am right now. All things considered, i think i’m doing fairly well with regards to self-awareness, staying present, and being mindful.
I know myself, and making things all soap opera helps me deal. I was raised to downplay, deny, and forget anything bad that happened to me. Even minor stuff was met with admonitions that i was making a mountain out of a molehill and crying crocodile tears. Oh, and the ubiquitous, “You think YOU have it bad? Well… ”

Sharing my story like a tele novella is a personal acknowledgment that what i went through was, in fact, horrific. And perhaps more importantly, it’s standing up to those who silenced me and would still if they could.
I also think that, if my upbringing had been even a little bit better, i’d have made my living as an artist of some kind. I was heading down that road in spite of all the crap thrown at me, including my mother’s active sabotage. So it’s kinda who i am anyway. (I chose my blog name for reasons, cantcha see?)

If i can put a few poetic flourishes on this material, if i can turn it into art, i can live with what happened to me.
If these weird, quirky, tragic, and yes, histrionic little word pieces can enlighten, enrich, or dare i hope, assist, other humans in their own quests for health and happiness?
Then maybe i can do more of living than the surviving it part.

**********

I created Bits N’ Pieces to cope with trauma, and once i knew i’d done so, i quickly learned that dissociation could be helpful, useful, and occasionally preferable.
I was diagnosed with Fibromyalgia in 1995. Finding community to help me learn to live with it, showed me some who suffered so terribly they were bedridden, some dependent on pain medication, some driven to the deepest depths of depression. While i knew i was in a great deal of pain, i observed this from a distance. When i began working with multiplicity as the diagnosis for the way my brain works, i realised that i’d been dissociating from the pain.
Which was just peachy as far as i was concerned.
I always knew i had a high pain tolerance, but now i knew why.

I learned that, like most ailments, the fibro was exacerbated by stress. Fear and anxiety caused a noticeable uptick in pain and sleeplessness, but i think i simply adjusted my level of dissociation to handle it.
I dialed it up a notch or 2.

I am not doing that right now.

DJ-who-sounds-like-a-car-salesman: Hey Listeners, don’t touch that dial! We have more fatigue and achiness comin’ up after this brief message from our sponsor.

Car-salesman-who-sounds-like-a-DJ: Looking to get an upgrade? Drive off our lot in style with one of our luxury sedans!

I could get approved, but i couldn’t keep up with the payments. I may need to take a leave of absence from work, so i’ve gotta drive this one until the wheels fall off. Heh.

What i mean is, i’ve got to feel this physical pain because i’ve got to feel the psychic pain that’s coming, and it’s very possible it could take me out of life for a while. I’m not a danger to myself, i have no urges to harm nor any ideations. I just have a limited amount of energy and i may need it all.

So today i can barely move. The bone-grinding ache has crept into my wrists, my hands, up into my face, and this afternoon it moved into my lower back and the front of my thighs. My headache throbs incessantly. I want to sleep, but the anxiety, the head and body aches, plus the UTI, have all kept me from getting more than a couple of hours at a time. And there is no sleep without dreams, dreams where the pain always finds me and although i’m lucid, i don’t wake myself because, Why bother? I stay in the dream and i clean other people’s messes and i care for other people’s children. Various family members pop in and out, looking at me with contempt and condemnation and i’m drowning in shame and embarrassment. My head feels like it’s cracking open and my whole body throbs and my waterworks are freezing.

Maybe emerg again tonight, and more therapy fun tomorrow.

Whee?
(There’s a pun there.)

UTI TMI

I’m angry. It doesn’t take me long to figure these things out anymore. This time was less than half the day.
First, i want to be alone. It’s a priority, even wanting to be away from those i love and need, and who love and need me, too. It’s a not wanting to be seen kind of feeling. Don’t look at me.
Next, i’m more emotional than usual. Like, if feelings had a volume, mine could be turned down a bit right now. It’s not loud, but it’s drowning out lesser sounds at this point. Which leads me to another sign that things aren’t right: my focus.
I’m snarky. I’m complaining about things that normally wouldn’t bother me, or if they do, they’re the kind of bother that i would purposely let go of, because i can’t affect it, or it doesn’t concern me, or it’s just bloody petty. I need to economise my emotional expenditures right now, and i can’t spare the energy. Sometimes it’s good for me to let loose with a pointless and/or shallow rant about things that don’t matter, like a bleed valve. This is not one of those times. It feels wrong, this morning chirping on social media.

This is about something else, and since i don’t have any reserves, i’d better deal with it before it throws a wrench in my current plans.
So yeah – i’m pissed off.

I’m tired of being in this much physical pain, for one thing.
My fibro flared up right away when all this -whatever the fuck you wanna call this- started coming up for me. The losing voices, losing face, losing time. It wavers between enough pain i almost long for my heavy drinking, pill popping days, and so much that i wish my shoulders, neck, and arms were detachable.
I have a headache that never leaves. In the morning it’s like a band of steel across my forehead and temples, but over the course of the day it travels to the base of my skull, where it becomes so intense it hurts to turn my head in any direction.

And there’s the thing that i don’t talk about. I’ve had bladder and kidney trouble since birth, and what i went through as a child likely made everything worse. I had dozens of yeast infections as a little girl, and it made me very susceptible to them ever after. I know how to avoid them now, but i have never been able to combat the UTIs. I’ve been plagued by them ever since i can remember. I’ve had so many, in fact, that i stopped seeing a doctor for them unless they were particularly painful. I would just resist the urge to pee, and drink great quantities of fluids, until i didn’t feel it anymore. I thought i’d flushed it out. When i confessed this to my GP recently, she told me that i was at an age where doing so was damaging my kidneys, and i needed to stop ignoring it and seek immediate treatment.
Pfft, i say to myself.
So of course i get a spectacular one that i can’t ignore.

Well, i can’t ignore it for long. I could feel one starting a couple of weeks ago, but even then i was wondering if it’s ever even totally gone away. I cycle in and out of the physical symptoms of having a mild one so often and i use my dissociative skills so reflexively and unconsciously for pain and discomfort… I don’t know wtf is going on down there.
My middle son was visiting this weekend, so i was focused on being present and enjoying every second he was here. I was happy to push it into the background, but by last night i knew it was going to need handling. When i woke this morning i knew immediately i’d waited too long. I’d been discussing its presence a few days before with a friend, and she shared her experience of them as “pissing razor blades”. I told her i remembered having some that serious, but they were a long time ago.
Ha. Am i that suggestible, or is it serious?
The visible pooch in my belly, and the feeling like a gorilla is sitting on it make me think it’s real and not the nocebo effect.

I’m going to emerg to get a ‘scrip.
Tffp. I’m taking back my pfft. I hope y’all are happy now.

See this? I’m testy, even with you.
I’m not sure why pain makes me angry. I could pop-psychology it easily i’m sure, but i’m going to give it the attention it deserves. The attention i deserve. Due diligence.

I’m also mad about more than this. I caught a whiff of it on Friday, and it’s been lurking in the background, conspiring with the pain, plotting more fuckery.
I’m sure i’ll get into that later.

I’m going to now spam my social media with unicorns and puppy dogs and syrupy poetry, in hopes of balancing out my wall full of grumpitudes this morning.

Ciao.
Italian makes me feel less rumpled, or at least like i’m a whiny sack of sad with some style. Heh.