I Win

… it’s just a ride
It’s just a ride
And you’ve got the choice to get off anytime that you like
It’s just a ride
It’s just a ride
The alternative is nothingness
We might as well give it a try
The Ride, Amanda Palmer

I let him touch me.
Okay hey, i used to let anyone, everyone touch me. But that was by rote.
I am nothing if not a good girl.

Wait. I think that i might not actually be a good girl anymore.
Wait.
Holy shit.
I have believed for nearly the entirety of my life that to be good is all.
I was told to think that.
One day, not long enough ago, i realised they didn’t care what was good. “Good” was a dog whistle; merely a means of control. They would have what they wanted, regardless of the cost.

Oh wait.
I should specify.
Regardless of the cost to anyone save them.

It is not hard to know what good is, and it is sososo easy to not be good.
This seems to me a contradiction.

Wait, though. Hold on. I am a good girl, i was always a good girl.
First, i was good because their definition was all i knew, and i twisted and bent and remade myself to fit their requirements.
Not just for survival.
Not just because there was no other choice.
Because love.
Because goodness.

Then i had a baby, and i knew that they’d lied.
I didn’t know what good was. You would think it would be easy.
And okay, it kind of is.
But when you’re told that no is yes and wrong is right, and if you want something to eat and a bed to sleep in you need to subvert your intellect and your instincts or you will be alone and you will die…
You become the bestest girl ever.

But i had a baby and i looked at him and he set me free. He saved my life. I knew the things they’d told me were good and right were actually bad and wrong, but i had no template for goodness.

Religion failed.
Family failed.
Classes failed.
Books failed.

I tried and i tried and i tried so hard. If you are reading this i want you to know that, although i have failed my child in multiple and terrible ways – i loved him. I started working on being better because he came out of me and when i looked at him, i suddenly knew that i could be good.

And even if i couldn’t, that he was worth every effort.

I love Rupaul’s Drag Race, but when he asks for an “amen up in here”, while i understand the concept and believe it has merit, i cannot amen it, because it wasn’t until i had my wee baby boy that i wanted to love in the best way i could, and knew that there was work for me to do before i was able.

I could not love myself until i truly loved someone else.
And because he opened me up to want to love, and loving him never hurt me in the way that loving my progenitors did, i stumbled across an amazing, life-changing, just-for-me love one day.

And i had the sense, and the unmitigated gall, to pursue him without reservation.
I don’t know how. It is completely incongruous to the person i was raised to be.

But wait. I was raised, i know now, to be bad, evil, wrong… at the very least compliant.
Yet somehow, i am here, and i know what good is and i know that i am and i have finally, finally, let him touch me.

Think what you want, of course, and interpret it how you will, but i have figured out how to let him in and really touch me.

Things are tougher than they’ve been in years. There have been doctors and police and dangerous behaviours that i wished with my whole heart were long past. But i am who i am and i have done the absolute best i can with the cards i’ve been dealt.

He can now touch me, and i am not afraid.
I know how to be good; no one needs to tell me.
And if you think i’m not good, not only does it not matter, but my dear motherfucker – you are wrong.
And also, i’m not a girl anymore, i’m a woman.

I WIN.

NOTE: I’m sorry i stopped writing for so long. I’ve been struggling harder than i have in many years. But i knew it was coming, and i said so, didn’t i?
I’m back to writing through it, no matter what. I’m doing the best i can, and every day, my capacity gets a teensy, tiny bit bigger.

Thank you for sticking with me.

I hope what you read here is:
If i can get through it, maybe you can too.

Love Always,
~H~

Well, Ain’t That A Kick in the Head?

Mid-October 2016 is the last time i wrote about my physical pain at any length. It hasn’t gone away. In fact, it’s been steadily, yet thankfully slowly, building since back then. This new therapy has intensified my fibromyalgia pain, but it’s more than that. Sure, pain can be based in psychic trauma, and the stresses of day-to-day living can amp it up, but there’s more going on.

I’m just not dissociating as much.

I’ve done all this work and it’s brought me here. I know i refer to it in nearly every piece i write, but i’m not sorry for the repetition. It’s important, i think, to hammer it home for anyone reading my blog. It’s one of the most important things i want to get across. Not that this kind of thing takes a lot of work; this dealing with childhood abuse, and the way the brain and body copes with the devastation.

You already know that.

What i’m driving at is that it’s all work that we’re doing – this surviving it.
It’s all good work.

I hurt, and i had a dysfunctional and unsatisfying life and i wondered why.
I thought about it and i asked questions and took suggestions and tried things. And then i thought some more and i talked to people – professionals, friends, mentors, religious and lay folks, gurus, anybody… everybody. And then i thought some more. I pondered and i marinated, and i tried some more stuff and read books and went to lectures and joined groups and took courses, and i drew a smidge of wisdom from this and a pocketful of encouragement there and a wee cup of self-awareness from that, and i kept on going.
I picked up tiny jewels of truth here and there and i locked them up in a vault inside me, guarding them carefully, watching over them like treasure, like innocent babies who only had me to keep them safe.

All this movement, all this questing, all this work, all this surviving i did over the years, and yet i despaired a thousand times that i was getting nowhere, changing nothing, and learning little, fearing that i would be forever lost and broken and rudderless.

I kept looking back and seeing only the passage of time and my footprints.
Plus lots and lots of mess.
There were times i stopped. Sometimes frozen with fear, sometimes collapsed with exhaustion, sometimes consumed with rage, and many, many times weighed down to immobility by the cruel and crushing weight of my past.

But i learned to weather those tonic storms, to honour them, and as i’ve worked and persevered, i’ve drawn closer to the light.

There’s enough light now that i can look back and see, with emergent clarity, that nothing i did or did not do was in vain. All the mess was garbage that needed to be tossed: structures that needed to be torn down, toxic relationships that needed to be ended, hoarded memories that needed purging. The swamps filled with poison that i swam around in – it was poison that had washed out of ME, and i left it behind when i finally crawled out, cleansed. It was all good work.

Because i sought, because i wanted, because i tried, it all mattered.
Here, in this moment, i have both peace and confidence. I am, at last, at a place where i am no longer at the whim of unconscious and reflexive coping skills and protective actions that ceased being helpful long ago.
I am leaving behind my life in the land of the dead, and moving into the light, to live with the living. Yes, there are bits and pieces of me that are still afraid, but i’m not anymore.
I’m no longer stuck in a feedback loop, replaying the horrors of my past.

I’m in this current bit of business now because i want to be. I’ve done enough to manage and be okay, both for myself and my loved ones. But i want MORE. I want the next level, whatever it is that is more than just enough – and i suspect that is usefulness.

And to that end i am telling you, that i think, that as long as i keep seeking and wanting and trying, that nothing i have done or not done will be in vain.

**********

I was talking about physical pain. Right. Heh.

I was officially diagnosed with fibromyalgia in early ’98, after a car accident in August of the prior year. I tried many different treatments, all to little or no avail. I suffered tremendously – and then suddenly i didn’t. I mean, i still had pain, for sure, but it wasn’t like before. The intensity lessened and i was no longer consumed by it, every day, all day, where it even chased me into my dreams and i would moan and cry myself awake.

At first i thought it was a supplement i’d been given to try, but when that stuff was scientifically debunked, i stopped taking it and my symptoms did not intensify. I still had the occasional flareup, but my pain levels didn’t spike nearly as high as they had. I thought maybe i’d just become acclimated.
I watched other people with the diagnosis suffer far more, and i told myself i was fortunate to not’ve been afflicted as terribly as they.

This was shortly after my massive weight loss, the mania that followed, and the more conscious and chaotic experience of my multiplicity that quickly took hold of me whilst in that state.

It’s probably obvious where i’m going with this, but i’ll spell it out anyway.

As i’ve become sounder of mind and clearer of purpose, so has my pain become bigger and harder to ignore. I’ve tempered the voices in my head and adjusted their various volumes, only to have the confusion they brought replaced by so-called “fibro fog”, which happens when pain saps my energy and robs me of deep sleep.

I remember my doctor sending me to our city’s FMS specialist, for an official diagnosis. I don’t know if it’s still done this way, but one of the things he checked was my response to certain trigger points in my body. All but 2 of them were very tender.
The pain was terrific, sometimes all i knew. There were days i couldn’t move without tears. I gained a prodigious amount of weight. I slept my days away, yet never felt rested.

Then i had another baby and i needed to do better. So i had weight loss surgery, and well, i’ve already mentioned here what followed: thin begat bipolar mania begat dissociative chaos begat a parade of people who live in my brain coming out to experience life in the face and wreak not a small amount of havoc.
But my fibro had become easily manageable. I figured the weight loss had done it.

I spent years learning how my brain worked and how to coexist with my Bits N’ Pieces and live a decently functional life.
And i got there and thought i was done.
But i wasn’t satisfied after a while, and more than that, i became unsettled, my carefully constructed wa was rattled. I then did what i do — i thought about it and went looking for answers and for help finding them.
And what i found was that there was more work to do if i wanted, and i knew right away that i did.

This work involves being in my body and feeling my feelings -both emotions and physical sensations- while being present in my brain and listening to what it’s saying. My thoughts and my emotions and my sensations have been disconnected from each other since i was a baby enduring trauma.
I’m bringing myself back together, and the physical pain is a sign that it’s working.

Well, ain’t that a kick in the head?

It’s all coming back to me now. The pain, the insidiousness of it, the gaping maw of it. I see how it swallowed me whole back then, and i looked up hopelessly from the bottom of its belly as it slowly digested me.
This time ’round it’s different.
The pain is still incredible. I’ve woken to a painful throat from moaning in my sleep. Mornings are awful, the pain and the stiffness at times barely tolerable. I often wake as tired as i was when i fell asleep, or more. It’s advanced in severity over the years, quietly and unbeknownst to me. I can feel it seeping into the bones of my hands, like i’ve been in subzero temperatures with no gloves. I was recently diagnosed with osteopenia in my lumbar region, and i can feel the fibro ache radiating like an electric sun. I’m going in to see the doctor after a bunch of tests that were ordered because i’m now telling her about things i used to ignore, like chronic UTIs, like plummeting blood sugar, like maybe tennis elbow?

And friends, writing is a misery. I have little energy, and my brain is cloudy. I can’t find the words to formulate a cohesive sentence, and i get frustrated and tired out so quickly. Grrr. Argh.
But i’m learning too, and it’s not as hard as it once was. Because i’m in my body and feeling the pain, i can figure out where and how much i can push through it. I’m finding ways to still have the quality of life i desire, according to my current set of limitations. I’m being reasonable, and careful, and conscious. One of the most helpful things i’ve learned over the years is that small tweaks over time is what works best for me. Don’t push too hard or too fast, jumping in with both feet doesn’t tend to work well.

All the work i’ve done prior is coming into play. The small tweaks, the slow pace, the mindfulness, sharing my thoughts with a safe person, breathing, gentle self-talk, hygiene, and today, finishing a piece for my blog in spite of wicked pain. A piece that took many more days than i’d wish, but a thing that wouldn’t have been conceivable, let alone doable, all those years ago when fibromyalgia first made a meal out of me.

One more thing – i thought the urge to dissociate from this pain would be a constant battle, but amazingly, it’s not. Once again, i believe it’s all the work i’ve done that’s making this possible. I’ve been careful and diligent with the others who live with me in my brain. I’ve gotten to know them and addressed their concerns and met their needs as much as i’m able, thus winning their trust and earning their compliance and assistance. We’re as close to one mind as we’ve ever been, and so my desire has become theirs. My work, their work.

I’m not looking to suffer, i don’t think there’s anything redemptive or rewarding to be found in it, but it’s what some people do, every day. They learn to cope, to live, with suffering and pain, emotional and physical. They don’t leave their bodies, they don’t perform psychic surgery on themselves, they don’t play dead – they deal with it.

I want to be more like regular people, like normal people. Let me immediately follow that statement by saying a couple of things:

1) I don’t want to hear about What’s normal? Who’s normal?
While i grok the sentiment behind it, i know what i mean when i say that – to be just a little bit more like other people. You are of course, free to not want those things.
And,

2) I’m both mentally ill and neuroatypical, depending on your definitions, and while i’d love to ditch the Bipolar Disorder, that’s not how it works and i’m okay with that. Being a multiple is considered by some to be more neuroatypical than a disorder, and although i’m moving in a direction that some might call integration, i personally don’t see how my brain works in that regard as a “disorder”.
NOTE: I am not a professional, these are just the thoughts and feels of someone living with it, not someone who’s gone to school to understand and treat it.

I want to live as present a life as i can, including feeling pain, both physical and not.


Yeah, i’m still a bit crazy.
I like me this way.

IMAGE: Without Hope (1945), Frida Kahlo

Friendship

I’ve developed a close friendship for the first time in many years. The kind of friend i check in with most days and hang out with every week.
She’s seen me switched, and had to deal with some of my shenanigans. It’s horribly embarrassing to me, but it’s also been good. She hasn’t walked away, and she hasn’t hurt me. I’ve lost some treasured friendships to bipolar disorder and multiplicity, and the way i coped was by keeping people at arm’s length, and hermitting in my Little Crooked House. I reached out to her for more friendship because i thought the cavalcade of crazy was pretty much over. Blargh.
She’s handled it better than anyone has, ever. Having a friend who accepts me exactly as i am is great, and having a friend who doesn’t treat me any differently after she’s seen my particular brand of cuckoo has been relaxing and healing and freeing. I’ve experienced the silent reaction (pretending the conversation never happened), the bullshit reaction (you are lying, that isn’t real), and the sideshow freak reaction (wow, how many alters do you have, what are their names, can i talk to one, what happened to make you that way).* Her reaction is relatively new. It’s a bit meh, and it’s nice.

Friendship has been a loaded issue my whole life. I’ve wanted connection, but the first half of my life i was running blind, and after that i pulled myself out of the race.
I’ve always been able to draw people in, i can make friends quickly and easily when i’m settled inside. Where i have trouble is building something deep and hanging on long term.

For the years since i accepted my diagnosis and began working on how to live with multiplicity, i’ve shouldered the blame for all my failed relationships.
I’m not easy to get to know.
It’s hard to get close to me.
I can be unreliable.
I’ve disappeared for weeks, even months, with no contact.
I can be histrionic and chaotic.
I can be emotionally unavailable, cold even.
I can be so focused on my own stuff, that i’m clueless about anyone else’s problems.

That’s not so much the case anymore, but back when i had a number of dear friends, those descriptors fit me rather well. I needed to know myself better in order to be able to function more effectively, and i studied it all, good, bad, or indifferent. I looked under every rock i found. It’s a tricky bit of business, trying to find the balance between being understandably broken because of how i was raised, and taking responsibility for the wreckage of my life. I wasn’t much of a success at life, beyond surviving. Don’t misunderstand me though, this is a balance thing, as i stated. I don’t believe in miracles, but the fact that i lived through my childhood and managed not to be a shitty human is as close to one as i’ve ever seen. I’m amazing, and i know it. I should either be far less functional and barely living, or a high-functioning, horrible person. But i’m not. I’m a likable, lovable woman who’s getting a little bit more awesome every day.

What i’m talking about here is an appropriate, adult level of personal responsibility.
And when it came to all the people i’ve lost, i took all the blame. I truly thought it was mine.

Recently, my new close girlfriend told me she’d been reading my blog, and bluntly stated that i’m too hard on myself. A couple of days later, someone who doesn’t know me but reads my blog offered up some similar commentary. I immediately bristled with my friend, but i noticed that i did, and so i went home and thought about it. By the time i received the second comment, i was more receptive, and more still when an online friend who’s known me for 15+yrs shared some lovely thoughts she had about my last piece. She also implied that i’m a harsh critic of my own work.

I’ve been pondering this for a week or 2 now, and i think it’s a valid criticism. I’m too critical of myself. (There’s a joke in there somewhere, but my current headache won’t let me find it. Pfft.) This is difficult for me to accept, as it runs contrary to my upbringing. I was the family scapegoat. I was bad, i was wrong, and i screwed it all up. My every move was scrutinised, and regularly and soundly criticised. I never met my mother’s expectations, nothing i did was good enough. There is constant chatter in my head from my Peanut Gallery, and someone is always picking at me: how i look, how i talk, how i cook, how i clean, how i write, how i mother, wife, friend… They sound like my mom.

I want to deal with this inner critic issue, but i have enough on my plate already. I do counter the voices quite often when the subject is how i look.

System: You look ridiculous in that outfit.
Me: I feel pretty, so it’s staying on.

I realise now that i don’t deal with the other stuff, though. I’ll try countering those voices where and when i can, but i won’t be pushing too hard right now. However, i do want to do one thing, it’s been percolating in my brain since that day in the car with my friend.

It’s not all my fault that i’ve lost the friends i’ve lost. Some of them naturally faded away, but a few were toxic to me in one way or another. The truth is they were shitty to me, and did me a favour by leaving. I was taught loyalty is all, and crappy treatment is to be expected. I didn’t see the behaviours until they were long gone, nevertheless i still saw the blame as mine.

But they used me, and i just loved them the best way i knew how, and when they weren’t getting enough from me to tolerate how sick i was getting, they left. I desperately needed help, and they left.

So there, i said it. I have a bowling ball in my belly and i feel like puking, but it’s out there. I may have sucked, but they also sucked.

There is my bit of growth for the day.
I’m not the bad guy, i’m the good guy. I also think i might be a pretty decent friend. It’s their loss, and they can kiss my pale, fallen ass.
Heh.

*I don’t particularly have a problem with any of these reactions. If it’s too much or you just don’t have the spoons to deal with my stuff, that’s okay, we can pretend i never said anything. I’m not lying, it is real, but i don’t blame you for thinking it’s a load of crap. I thought the same thing for most of my life. It’s cool to be curious, too. Feel free to ask me anything you’d like, just be aware that i might choose not to answer; some things i don’t share.