Dear Diary: Biting the Bullet

Truth can come from anywhere, so i keep my ears open. I picked up a bit of truth from an old vulture of a source some years ago. He said: You can’t change what you don’t acknowledge. I can easily tear that apart, but sometimes it starts like this. There’s some truth in there that i can apply.
I’ve been out of sorts lately, and i thought i knew why. I was right, but addressing the issue didn’t help. Or rather, didn’t help enough.
There was more.

Starting the blog on the other platform is what i needed to do. Yes, i use the other site for less bloggish writings. I know that’s what i said, and it’s true. But i’d always intended it for something else, and the longer i’ve procrastinated getting it started, the heavier a burden it’s been. Sometimes, the only way i can get a thing done is by backing myself into a corner. The new diagnosis, plus the constant inner urging to start the new blog, was causing stress. Stress that amped up a little every day. Stress that twisted my guts and squeezed that muscle that pulses inside my skull.
I started eating my stress – and i’ve gained weight.

It’s not a lot, probably somewhere between 5-10lbs, but that hits me where i live. I’ve struggled with my weight since i was 8yrs old, and it’s taken me a lifetime to figure out the whole jumbled mess of abuse and disordered eating. I was as close to my goals as i’d ever been, when life came and life’d all over me. It only took a couple of weeks for me to notice, which is good. I practise mindfulness to help me curb dissociative behaviours, so one day i noticed my clothes were fitting me differently. I prefer tighter fitting clothing, so it doesn’t take much for my yoga pants to show me there’s a problem. If i’m jumping up and down and getting sweaty to put them on – i’ve got a problem.

So i was stuck in this corner, with weight gain on one side, and being a grouch with my housemates on the other.

I know what to do, and i’m doing it. I’m not freaked out or devastated. This is how i work. I’m always making small course adjustments to keep me on track, heading in the right direction. Getting this new diagnosis hasn’t changed me, it’s new information that shines a brighter light on who i am and why i do the things i do. It can help me make better decisions on how to continue forward. It has answered some questions that i’d been puzzling over for some time.

I haven’t told my family. I’m not sure why.
For one thing, i’m not completely convinced. I don’t think i will be until i go for the more intensive testing that was recommended. It was hard for me, as a multiple, to figure out who i really am. I put on all sorts of masks to survive my childhood, and the masks aren’t me, yet they are. It’s taking time and intention to suss out the “real” me. As my personality has streamlined and become more cohesive, i have a better understanding. In some areas i have a confidence that i am “x,” and i am not “y.”

For instance, i now know that i’m an introvert. That’s only become clear in the last few years. Prior to that, i’d have sworn up and down that i was an extrovert. But i’m so much quiter than i’d have thought, and being around people tires me out. Like, exhausts me. And now that i’m meeting my own needs, i’m not seeking attention and acceptance from every human with whom i have contact. I’m not as obsessive. Things like rejection and conflict don’t wield the power to destroy me as they once did.

So, there might well be other things about me that i’d not known before, things that were hidden by my system coming in to fill the gaps. Aspects of my personality and psychological makeup that my ability to cope had camouflaged. The diagnosis fits in some ways, but i’m not sure it does in others. I guess that might be the “spectrum” part of it. Heh.

What i know is, i’m snippy with my family and i’ve put on weight. These things tell me there’s something i need to handle. I know that it’s ASD and the other blog. I can hurt my loved ones, including myself, or i can bite the bullet and do the work.

I’ve got the blog started, and i’m eating healthier and exercising more.
I also understand though, that the other blog is going to trigger all kinds of crap.
The subject matter is difficult, and the path through it ain’t gonna be easy.
If you’re interested in checking out my other platform, leave me a comment and i’ll send you a link.

I’ll check in again soon. Couple days, tops.

IMAGE: Jay Rembert

Intermission

So…
That last post wasn’t exactly written by me, which hasn’t happened in a long time.
I only have a few parts that can handle today’s technology, and based on the tone of the writing i’m fairly certain who it was. While it’s a little worrisome, i’m not overly concerned. In fact, i can see this might be a good thing. If all of me can express how they feel about the body work i’m doing, and all the past issues i’m dealing with as a result, i can see how i might just be building a more cohesive unit inside this weird old noggin of mine.

She’s hurting and feeling abandoned by family. She’s feeling like we never belonged anywhere, and that no one wanted us. I do think about that. I wonder if my mother drove her adopted family away, or if it was more about her not being a part of their religion. As i’ve found tends to be the way of things, it was probably a bit of both. When it comes to my step-family, i’m the one who walked away – they just breathed a sigh of relief and told me not to let the door hit my ass on the way out.

Today i’m going to rest, and try to get a bit closer to the author of yesterday’s piece. I don’t want her to feel so alone, although it’s the primary characteristic of her personality. (How’s that for meta?) I’m going to shift my focus slightly, more towards my system than my body today. I’m thinking if 1 comes out with things to say, i have a couple others who’d be capable of the same, but many only have me, and paper and pen.
I’m going to love on them and listen carefully.

Enjoy your Sunday.

Love and Peace,
~H~

Purgatory

Agonies are one of my changes of garments,
I do not ask the wounded person how he feels, I myself become
the wounded person,
My heart turns livid upon me as i lean on a cane and observe.
~ Walt Whitman, Leaves of Grass

I’ve wasted time and energy being angry at the wrong things. It wasn’t safe to be angry at the right things, and once it was, i no longer remembered why i was so angry.

I’d colour a picture, and if i made even the tiniest titch outside of that thick, black line, i’d rip out the page, crumple it into a ball and throw it out. If i was almost finished when i did it, i could get so mad that i’d scribble all over it first – grinding the coloured wax into the paper and ripping through to the pages underneath, pressing so hard my fingers were dimpled and hot, stained with the crayon that would inevitably break in two.

when it was born in me — that first what the fuck is this?
i was triplets
My heart, My guts, chubby hands holding My face
orbiting My brain like little Plutos

i hid it away and kept it safe; clever girl
little bits of me chipped off or
chiseled, floating away
My eyes filled with crocodile tears
My burning vulva
My precious 4yr old, looking in the mirror with her bottle of poison
caught and gathered in to my gravitational field
chunks and gobbets, slivers and strands, frozen
flesh and rocky bone
orbiting My mass and My might.

Last night i tried to sleep, but one dose of Cipro couldn’t buy it. I left my disco waterbed and wandered into the living room, wishing for a fire in the hearth, but settling for dogs and cat and blanket.
The fibro is fire enough for my Pomeranian companion to abandon my legs for the chair beside me – i’m a furnace of pain. The cat leaves due to bad vibes (i’m sure), and the Pit Bull sniffs concernedly at my arms and shoulders. I reach down and wrap my arms around her neck, smelling her skin as she nuzzles me. Who knew the nose-juice of a dog could be a balm?
My girl parts are numb, curled around my traitorous waterworks that feel like ice. The heavy throb underneath the mons, urging me to urinate, but i can’t. I know there’s nothing there, or at least not enough. Its slicing exit is such a trigger i talk to myself while i pee -babble, really- anything to keep me present. As much as it hurts and as easy as it would be to let someone else deal with this pain, i know that it is positively VITAL that i do not.

The gift of this pain is its/it’s preparing me for what’s to come. It is a proving ground.
Can i handle what’s coming? They watch and judge. We all want to know.
Can i bear the pain that’s in store?
Can i gather them to me and keep them?
Can they stop drifting around my periphery and finally come home?

This is why i’m so angry.

Sometimes — i don’t care what anyone says — sometimes, anger is my primary emotion. But most of the time it is as they say, a secondary one. My response to pain or the threat of pain is anger. I still do the fight, flight, or freeze thing, but i’m usually pissed about it.

I live in the land of the dead. My thoughts are not connected to my feelings or my sensations on some kind of level that i can’t yet explain. I’ve been climbing up and out on old bones, and i have the land of the living in my sights, but i’ve gotta go through Purgatory to get there. I’ve got to pick through the sea of hot flesh and refuse, find my bits and my pieces, and slap them back on my cold, naked skeleton. I’ll sew ’em, weld ’em, glue ’em, nail ’em – whatever is required.

It’s gonna hurt like a motherfucker. It’s gonna hurt in a way i’ve never been hurt before.

And none of this is my doing. None of this is my fault. But it is all -allofit- my responsibility. My duty to my system and myself.

I’m coming up on rage soon, i think. Because i’m fucking terrified.

That’s enough for today. I’m getting super-dramatic up in here, and i need to decompress and get a bit of distance. I’m hoping by tonight this cursed (pronounce this CURSE-ed for full effect) UTI will have eased enough that i can get a bit of sleep, which may soften the fibro some.

And of that second kingdom will I sing
Wherein the human spirit doth purge itself,
And to ascend to heaven becometh worthy.
~ Dante Aleghieri, Purgatorio

Y’all hang in there. I promise i will, too.

~H~

Image: NASA

Come With Me

Come with me, I said, and no one knew
where, or how my pain throbbed,
no carnations or barcaroles for me, 
only a wound that love had opened.
~Pablo Neruda, Come With Me, I Said, And No One Knew (VII)

Surprise twist movies have been done to death. I’m over them, especially when there’s nothing much going for it besides the twist, which is often the case these days. There are some that stand out because the story is masterfully told, the buildup too subtle to notice until it’s revealed. With them it’s like suddenly, the entire landscape of the story changes, becoming something you hadn’t foreseen, and looking back you almost can’t see what it once was. And now, oh! how you see all the little clues, and feel a fool, for you’re certainly clever enough and experienced enough in these things to have seen it coming.

I should have seen it coming.

I’m not exactly full of myself about it, but i am proud of all the hard work i’ve done. I’ve accomplished more than i’d thought i could, or perhaps it would be more accurate to say that i was afraid that i wouldn’t be able to get this far. Yet i’m here. I stubbornly, doggedly, resolutely, and with no small amount of backing myself into a corner and its resultant terror, have managed to be able to navigate the day-to-days of an almost-normal life. I must do a great many things that most others do not in order to achieve this, but these things have become a part of my daily routine, my mental toilette, if you will. My life is ordinary and average, and by me being me and it being so, it is absolutely not.
Well! Heh. I guess i do sound a bit conceited.

It’s funny (peculiar AND haha), i’ve almost always guessed correctly and way ahead of time when the twist is that someone’s a multiple (what a sad, tired trope that is, UGH). Not only do i know personally what it’s like, but i’m a smug and jaded movie lover from way back who has pissed off many a friend and family member by guessing the end, and taking an annoying amount of satisfaction in how smart i am. (Don’t hate me – i don’t do it anymore unless i’m with my husband, who must legally tolerate it, or someone who also loves guessing.)

I see dead people.
Just kidding, i only hear people who aren’t actually real and am occasionally possessed by them. It’s no big deal. Not really. Not comparatively or relatively or even practically. I did all this work and now i have this life. There will very likely always be the odd hiccough here and there, but i have this life now and i made it, and i like it this way. I’ve had enough change, and turmoil, and chaos, and drama to choke a horse, feed an army, and slap your mama. I’m happy and satisfied with this quiet, bucolic existence.
I figured i’d plug along like this for the rest of my life. Well, i think that’s what i thought.

I try not to think too much on the future, as it tends to trigger anxiety and depression. Most of my long term successes have come from small tweaks to thinking or action, built upon slowly. Sweeping changes and massive lifestyle overhauls can easily kick me into mania, which usually finds me at least 3 steps back when the dust settles.
If life is Mario Bros., i play all the way through. I know i can skip through quickly and just ride that flag to the top, but i collect all the powerups and coins available before i level up. And I don’t skip any levels either, for the same reason. When i get up to those tougher levels (like Ice World – fuck that world, man), i know i’m going to need extra life, and all the mushrooms and stars i’ve got to make it out of there.
I need to be prepared with a strong foundation, and i need practise to succeed. I need to go slowly too, because i’m clumsy and i stumble – regularly, and hard.

I keep my eyes on the ground in front of me. I choose where to put my foot next. I do look up periodically, lest i walk off a cliff or run into a tree, but i’m more concerned with firm footing, and avoiding the odd stone or embedded root.
And i’m the type that does better by looking back and seeing how far i’ve come, rather than looking ahead to see how far i’ve yet to go.
I could see some potential for trouble up ahead, but what i couldn’t see was that i was slowly descending into a valley. The scenery changed very gradually, and it all looked fine until dusk. I look up and around me now, in all directions, and it’s all vaguely sinister. I’m standing here, trepidatious, afraid to take the next step. The warmth of the day is fading with the light, replaced with the chill that tags along with the bleeding of the night, seeping into my bones as dread.

I’m frozen here. I’m unable to move. I can’t tear my eyes away from what is ahead of me. It’s like the dirty snow on the screen of my tv when i was a child, at the end of the programming day. I’d stare at the funny coloured bars that would pop up after the playing of the national anthem. The fear would gather slowly in the pit of my stomach once the late night news was over. If i was lucky there’d be a movie, but often it was just some old cop show, like Barnaby Jones or Cannon. They scared me a little, but i suffered them because it was better than being alone. My mother would be out somewhere, doing whatever, and i was 4, 5, 6 (and older), and terrified of the dark and being alone. Of course i was, and that box filled with pictures and voices of people was company and distraction from the places my superpowered, mutant imagination could take me. Would take me. Even just with the snow, at least it was a beacon of light, and i’d stare at it, and imagine i could see figures and hear whispers… The movie Poltergeist triggered me so hard; those glowing, dancing specks were alive for me, too.

What i see before me is like that dirty snow – it buzzes fuzzily, like millions of bees crammed together yet still in flight. But it’s not greyish white with black flecks like that old tv with the foil wrapped bunny ears, it’s black. It’s dozens of shades of black, giving depth and detail, giving off heat like a fever or infected flesh. It’s insidious.

I can’t walk into that, let alone through it.

I can’t talk about the fear that’s in me and on me every day now. Sucking all my energy and wearing at my will, making me snappish and easily hurt. I hide and i switch and i often cannot get more than a half hour’s sleep at a time before dreams wake me. At least with dreams i can go back to sleep, but when the nightmares come i’m up, sometimes for an hour, sometimes until i get my family up and out for the day, when i’m sometimes able to nap a bit. I don’t know if i can do this work that’s presented itself for me to do.
I know myself and so i know i’m going to try – my hardest, my best – but i sincerely don’t know if i’ll succeed, or even if that’s possible.

Today i am leaning on my New Year’s Resolution to blog through the bad.
Sorry it’s mostly just a nonsensical mishmash of metaphor and analogy, seasoned liberally with histrionics, but it’s what i can do, for now.

the geysers flooding from deep in its vault:
in my mouth I felt the taste of fire again,
of blood and carnations, of rock and scald.
~Neruda

Image: Promotional poster from the movie Poltergeist (1982)

 

Homeostasis

ho·me·o·sta·sis
/ˌhōmēəˈstāsəs/
noun
  1. the tendency toward a relatively stable equilibrium between interdependent elements, especially as maintained by physiological processes.

This has been a good year; my most functional to date. I stopped hermitting, made a couple of friends, and reconnected with some old ones. It’s the year that i added exercise to all my lifestyle changes regarding food and eating, and all the work finally started paying off with some significant weight loss. I took up some parttime work, and i began volunteering my time in a couple of areas that matter to me.
By the time summer rolled around, i’d hit my stride and was feeling successful, and also like it was just the beginning.

Fall brought a change in the weather, dead leaves picked up and strewn about by chill winds, sucking the warmth from the ground, bringing the kind of silence that fills your ears and echoes in the stillness.
It’s analogous to what was happening in my brain; old voices whispered into an unsettling quiet, invading the hush. I shushed but they persisted, until i was so full of sound my body couldn’t contain it and it spilled out of me like Shhhhhhhh, bleeding off the pressure like a tire with too much air.

Dreams, too many, then nightmares and sleeplessness, and then the old urge to run. To get away, to go home, and for the first time in a very long time, wondering if it might be better to just stop. I didn’t know why it had gotten quiet, but i did know that it had caused fear and panic inside me. I went looking for answers in the dark corners of myself, but i only found emptiness, a yawning blackness where something once had been. The voices following after, soughing through my head like wind through trees.

No sleep, no peace, the anxious murmurs, old bones rustling like ancient scrolls. I have trouble hearing my therapist over the susurration – she repeats everything once, twice. Again please. Sorry.
She doesn’t say “integration”, she says “homeostasis”.

My switching tics return.
I stop exercising because i keep trying to “go home”.
I pull away from people, from work, from helping.
I don’t fit in my body correctly.
I break my ankle.

Maybe it seems like my year started out good, got great, and then got fucked.
Kinda accurate.
Maybe it looks like i started out walking, broke into a run, then tripped on a stone in the road and went sprawling.
I mean, that does look like road rash.

All those years spent fighting the urge my parents programmed into me to go home. I think in resisting it i found true direction. My Fortress of Solitude. My true north.
Homeostasis. HOME.

This has been a good year.

**********

I have some resolutions. I have some little goals and some bigger ones. I intend to continue on as i have been, one foot in front of the other, pushing doggedly forward, adding one kilometre onto the next, putting distance between myself and the place i was told to go, and instead heading towards the place i want to be.

My resolutions this year are less nebulous, more distinct and definitive.
They are little things like building my wardrobe to better reflect my own personal style, and having exercise be an integral part of my personal hygiene, like showering and brushing my teeth.
They are bigger things too, like blogging and keeping in touch with family and friends. Deepening my relationships; letting worthy people in a bit more.
Returning to helping and growing its scope.
Getting my house shipshape, top to bottom. Declutter. Organise. Move Kiddo downstairs and finally turn his room into my makeup/change room, with a day bed and a light-up mirror.
Keep moving our home toward healthier eating.
Read more fiction, and maybe even write some?
Blog more than last year, maybe even through the tough bits this time?

It’s 5:37am on January 1st, and i was woken by a bad dream a couple of hours ago. I got up, got a cup of tea, recorded what i remembered of the dream, and then i brought up my blog and clicked that little rounded rectangle button that says WRITE, with a plus sign, and bashed out this wee thingy.

Not a bad start to the year.
Homeostasis right now looks like bed and hubby-shnuggles.

Love and Peace To You, and Happy New Year!
~H~