In My Cups

I’ve been avoiding writing about this for years. Over the last year or so though, i’ve mentioned it in a somewhat ancillary fashion. I think i’ve been testing the waters. If i’m going to share how my brain works and how i pursue the life i want, while juggling my particular set of issues, however, i would be remiss if i didn’t address it. It would be a lie by omission, and i do try to avoid those, here on my blog.

My addictive nature, and how that’s manifested in my life in general, and in my journey through mental illness and being neuroatypical particularly.

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This will be a rough one for me.
I was raised to keep things hidden.
It was modeled for me that one doesn’t acknowledge one’s flaws, let alone talk about them. If one did, then various religions were the answer.

What i have learned though, is that people know anyway. Despite our best efforts, if we hang around with people for either long enough, or at the right moments – they’ll figure it out. (Not the biggest reason i became a hermit, but not a small one, either.) They may not know exactly what it is, but they’ll smell it on us. Something not quite right. Something’s gone off, and it’s rotting away inside.

For addiction, i have both nature and nurture. My mother ate her way up so high there was no scale at the time to weigh her. We’ve figured out ways in our current society to do so, but we’ve had to, because so many are afflicted with the problem. When my mom was super-morbidly obese, she was the fattest person anyone had ever seen in real life, everywhere we went. She’d always held food over me as a reward, and withheld it from me as punishment, and also due to neglect.

So i learned to comfort myself with food. I used it to numb out pain. It was a drug that filled me with a false and fleeting happiness. After a long and checkered history, i’ve learned enough about myself and nutrition to have found a way to handle my food issues.
Oh, but i have addictive behaviours, plural, and my relationship with food, eating, weight, and body image are well-documented in this blog already.

Food wasn’t the only thing that was used to control me as a child.
When you want her to like you, you start out with ice cream and candy.
When you want her to relax and lie still, you use alcohol and pills.

Abusers used pills, i was on pills to control my epilepsy, and when i was diagnosed with fibromyalgia as an adult, more pills. That was when i began using the non-prescription codeine to help me cope with the constant pain. By the time i was diagnosed bipolar, i was going through a 250 count bottle of the stuff in less than a week. At one point, i was on 6 different medications at the same time to try and regulate me, and oh, did i mention that i’d started drinking?

For years drinking wasn’t a problem. Then i had weight loss surgery, lost over 300lbs, and slammed into my first full blown mania. The weight loss got me lots of sexual attention and a job in the entertainment industry. More social interactions with me as the centre of everything than i’d had to deal with since my school and church years in plays and vocal performances. I was dealing with no impulse control and sexual and social anxiety through the roof. I didn’t want to eat because i was thin and i loved the way people were treating me… I worked mostly in bars, so i drank.

Between booze and the male gaze, my mania became so severe i lost my job. Mania didn’t just amp me up, either. Between it, the weight loss, and problematic drinking, my DID became a cyclone. And then came the years of psych wards, detox facilities, recovery centres, an actual mental hospital, and LOTS of religion.

As i’ve written before, none of it worked. Eventually, as my husband desperately searched for help for me, he found the therapist i’ve been working with ever since. I long ago laid down the pill-popping, but unfortunately, the drinking behaviours remain. Not the partying all the time kind of drinking, which is good. But when i fall down the rabbit hole – i drink. And there are many parts of my system who will naturally gravitate towards alcohol, because it’s familiar. It wasn’t just that it was a part of our regular life.
It’s that it helped, you see.

It’s easier to slide and switch around with alcohol. It greases the wheels, so to speak. And when, in that first real mania, my system decided to properly introduce themselves to me AND return to full duty, so too, did they return to alcohol. I could go without drinking for long periods of time, but then i would switch, and find myself drunk when i was back in the face. Or viciously hungover.

Sometimes in therapy, we touch on something and i know i’m going to drink over it. If i (specifically speaking) didn’t get some, i knew the issue was enough for me to switch, and then they’d just go get it anyway. There were times when someone or something would trigger me HARD, and i knew what was coming. Life would do what life does, and often become too much for me, and i’d fall down the rabbit hole. Crawling out always involves detoxing from a binge. I had to figure out a way to get, and maintain, some kind of control.

My therapist doesn’t really deal with addiction or bipolar stuffs, even. She focuses on my system, and helping me learn how to listen, address my issues, and build the kind of life i want. Problematic use of drugs, alcohol, food, sex, etc. is, let’s say rampant, with multiples. She deals with cause, rather than effects. When i first started seeing her, she would come to my house, because i couldn’t leave it. I’d have a mickey of something stuffed beside me on the couch, because i’d have needed a couple of nips to even be able to let her in the door, and i knew that after she left i’d have a couple more.

The more work i’ve done in therapy the better it’s gotten. I even stopped therapy for a few years because i thought i was done. When i found out i wasn’t, old behaviours began kicking in, like, i can’t control the face as well as i was, and this body work makes everyone want a drink.
Everyone.

I knew i had to figure out a new way to handle things during this time. I’m not going back to square 1. I know i won’t either, because my problem solving skills are rather fantastic. One of the first things i did is i stopped hiding the problem. My husband and my kids already knew, so be honest. Why have this undercurrent of tenseness for my boys, where i act like it’s not happening and they act like they don’t know that it is? Why make my husband complicit in the lie? These things aren’t healthy and they erode the trust and poison the relationships that i have with them, that i’ve worked so freaking hard to build.

Removing the hiddenness immediately calmed my impulsivity. My sons both accepted the behaviour and said it was okay. They understood, and both relayed to me that they’ve seen nothing but improvements in the way i’ve lived my life since my brain fell apart.

Hm. Maybe there’s something here for me to learn.

I told my BFF, and since the beginning of our friendship (it’s a couple of years old, now), she’s been nothing but supportive. I’ve never lied to her, and as our friendship’s grown and trust has built, i’ve let her in like i have never, ever let a friend in before. I can call her up and say, “I’m either gonna have a drink or 2, or i’m hittin’ the highway,” and she will come babysit me until my husband gets home.* I don’t bother hiding from her, because i know i don’t need to.

I’m seeing a pattern here…

I’m down the rabbit hole, right now. At first, i got drunk and stayed that way for a few days. The therapy i’m doing, plus this pandemic situation the world is in, summarily tossed me down there by the seat of my pants.
Down you go H, no choice.
But my kids kept loving me and telling me it was okay.
And my husband did things that he knows will maintain my connection to him.

Ah. I know where this is going.

So this time, my Angries didn’t come out and get belligerent. My highly sexualised parts didn’t come forward and demand more and more booze, until i was blacked out and became a parade of damaged Bits N’ Pieces that are very low functioning and can be quite troublesome (to put it mildly). In fact, i was able to slow down and even sober up for my therapy the other day. I’d been fine for a few days.

When the student is ready, the teacher will appear.
~Tao Te Ching

I was ready when i first met my therapist. She taught me a great many things and then i left, thinking i had moved on. It was not so. I simply wasn’t ready for the next lesson. I humbly returned when i realised the truth, and i’ve been learning ever since. These lessons are more painful than the previous ones, and yet, tired as i am, i see myself listening more readily and learning faster. Now it’s more like, When the student is ready, the lesson will come.

Two weeks ago i connected to my therapist in a way i’ve never connected to another human being ever. I shared grief and pain with her, not with words, but with sounds of suffering that i’ve kept buried deep, deep down inside me, at my most broken place. And i let her hold me through it – something i have never allowed before, in the dozen or more years we’ve been working together to help me.

CONNECTION. A mother’s love in her arms around me, in her voice as she soothed me, in her tears as she cried for me.

I strongly suspect that the other day on the phone with her, i learned my most important lesson yet. I told her that shame is my driving emotion. The one that controls me at every step. Every thought, every action is somewhat shame-driven. She responded that shame isn’t bad; shame is just an emotion, a feeling. She said it’s the body’s response to the human need for connection to another human.
I believe i was ready for this lesson.

Yesterday, i was chatting with my husband after supper, and it just came up out of me. I said, “I think shame is the reason i drink – the reason we all drink.** I think what i really want is to be connected to myself, to be alive so that i can truly connect to another person. To you, to our children, to my friends… ”

I was ashamed to want connection, too. The messages that i internalised as a child were that i was filthy and disgusting and not worthy.
But all the work i’ve done has been slowly taking down this deadly razor-wire that my mother and my upbringing built around me.
It’s going to take more work, but i’m going to listen to what shame is trying to tell me, and i’m going to keep disarming the landmines around me. I will be fully alive and interactive with other human beings. I will be living.

As for the booze, i don’t know. It’s just a symptom, as destructive as it can be, and i live with multiplicity, which means i cannot (at least as of yet) always control what i’m going to do. And that’s okay, today. Sometimes i drink to cope. But it’s nothing at all like it was, and i believe with my whole heart, that it’s possible that someday it won’t be a problem at all. Today i’m neither hungover, nor am i drunk. Tomorrow may be something different.

But i’ll handle it.

I have no wise pronouncements to make on addictive behaviours. I have no solutions save the one i’m working out for myself. I won’t be bashing any of the other ways to handle such issues, because i don’t find it helpful or productive. This is me, and my way only. I share for my own continued healing and growth, but also to maybe give others hope that they can find their own way, too.

Just hang on. It’s the place where i started all this, and it’s where i return as often as needed.

Love and Peace,
~H~

*For those who are new to my blog, i run when i’m stressed or triggered. We live on a farm, and i’ll hit the highway and hitchhike into the city, where i am in immediate danger due to switching. I haven’t hitchhiked in a few years now, but i’ll still angry walk for many kilometres, in any weather, and have been in fairly desperate need of rescue a few times, just due to that.

**We means me and all my parts. My system.

Chips

The current state of the world has me at my limit, anxiety-wise. I’ve cut off reading anyone’s social media, i don’t watch the news, and i’ve had to become selective about the art i consume.

In the interest of my own mental health, i’m going to post a funny (to me, at least) story.

Fed hubby, got his lunch made and sent him off to work. I returned to bed this morning, as my stress level is keeping me up. It seems as soon as i’m able to drop off, i launch into dreaming immediately, and wake from my brain trying to figure out how to cope with living in a pandemic. That pattern didn’t change, but i did get in 2, 20min naps. Better than nothing, i’ll take it.

Ate some breakfast and watched a couple of shows with my Kiddo, while my Brat snored softly on the couch. They’ve both been sent home from work, and i can tell they’re keeping an eye on me. Yes, i’m the mom, but they’re grown men and i don’t hide my process from them. After all the mistakes i’ve made with them, probably the best gift i can give them is watching me deal with shit, push through, and get better. I don’t lie to them or hide what i’m going through (although certain details would be inappropriate).

As is my way, i then get up to accomplish a few small goals that will help keep my self-esteem up. Most of my spoons are currently going to managing anxiousness. If i don’t give some care here, it would be likely for me to fall into depression or mania without realising. Neither are ever far enough away, so i’m vigilant.

One of the first things i do is make my bed. My Pomeranian doesn’t sleep in my bed at night, but sometimes i let him have naps with me. This morning he follows me into the bedroom and does a little circle at my feet, his signal that he’d like to be picked up. I put him on the bed while i make it – he’s not bothered at all. He sits and looks at me expectantly.

My tiny doggo is the most foodcentric dog EVER. No, really. He was in the hospital for bloat, a rarity for a guy his size, not once, but twice. We learned to soften his food because otherwise, he just swallows the kibble whole. We also learned to put a tennis ball in his dish to slow him down. Without the ball he’ll eat it so fast he’ll barf it back up. He’s trained not to mooch – except in the kitchen. He’s allowed to sit there while i prepare food, as long as he doesn’t get underfoot. He’ll sit there, absolutely still, for as long as it takes for me to drop something on the floor, or offer him a wee taste. On the bed though…

I keep a lot of snack foods in my bedroom, because i want them to last a while, and i have a son that’s an eating machine. Occasionally, when i’m fetching some treat for one of us, Roland will get a bit, too.
So he’s sitting there on the bed while i’m making it, trying to find the line between mooching outside the kitchen (NO), to boring his teeny eyeballs into my back like he does when i’m cooking.

One of the things i’ve learned to do to help me manage the way my brain works, is i talk to myself. Out loud. A LOT. Getting the thoughts out of my head helps keep them from getting rancid or poisonous, if you feel me. Writing is one thing, but i’ve got constant chatter going on up there, and i can’t always write.
So i talk. And i have conversations with my Bits N’ Pieces, sure, but i also act a little. I’m on the dramatic side, doncha know. Heh. So even random thoughts that don’t come from my system fall out of my face when i’m alone. (Well okay, i talk to myself even if my family is around. It’s just a great coping skill for me and i use it all the time.) I’ll adopt voices that have nothing to do with being a multiple. I’ve been aping people and doing voices since i was a child.
I started talking as Roland within days of getting him.

K. So i’m making my bed, and he’s staring at me, but trying not to stare too hard, lest he get told to knock it off. He’s trying to stay still, but it’s hard when your mommy has a 70s disco waterbed, and is pulling the sheets and duvet into place. I’m talking in his voice (which is very cute i assure you) and saying stuff like:

Yeah, ah… i’m looking pretty cute today, huh Mom? But maybe, oh, i dunno, i think i might be looking a little on the skinny side… Are you sure i’m getting enough calories and the proper nutrients? With all this walking we’re doing now, i might be deficient. I mean –and i’m not complaining here– but you do go kinda fast. Lookit your legs, lookit my legs; you see what i’m sayin’? I see you have some chips over there on the shelf. Mm, salty and crispy deliciousness. You think maybe, uh, i could… ? Just a couple of the broken ones, you know, you won’t miss them. Top up my tank for the walk later, so i don’t slow you down. You really give ‘er out there, and i’m your fur person, ‘member? We’re best buds and lifelong pals – you help me, i help you, hey?
Hey, Mom?
Mommy?
Momma?
I love you, Mom.
Aren’t i cute?
Lookit my face, and these floofs.
I’m skin and bones under these floofs, Mom.
I think i might be dying.
Chips.

Then i respond, looking into his adorable little face as i’m smoothing out the duvet and puffing up the pillows and placing them just so.

Oh Roly, you’re very well fed, and you know it. Plus, where would you be without me to watch what you eat? We both know you’d wind up so round your toot widdow paws wouldn’t reach the floor. We’d have to roll you around to get you anywhere. Or maybe get one of those bags for bowling balls. Yes, i’d have to carry you around in a bowling ball bag, and people would ask me, Why is your bowling ball furry? And i’d say, That’s not a bowling ball, that’s my dog who ate too many chips!

And then a Little’s voice popped out of my face and said, Don’t listen to her, RolyPolyOly. You’re not fat and i’m gonna give you a chip.

And Roland’s face lit up, because he’s my fur person and he knows and loves me in all my iterations, and he recognised her voice, and he knows the word “chips”. He stood up on the bed and did a circle and wagged his tail.

So i said –to him and all of my selves–
This just got way too meta.

Maybe this is only funny to me, but i hope it brought a smile to your face while you’re enduring these strange and scary days.

Hang in there. This was the day before yesterday, and yesterday was a bit of a shitshow, so i may post about that. We’re already conversating about it.

*SNORT*

Okay, YES. He got chips.

1 Day in the Life of a Crazy Woman

Where i buy a turkey sandwich, but don’t eat it.

Last week i went to see my plastic surgeon. When you lose over 300lbs, you generally need some work done, and i did. I’ve had double brachioplasty, abdominoplasty, double mastopexy and breast implants. I began having tearing pain in 1 breast, and the beginnings of the same pain in the other. As my surgery was 15yrs ago, i went to see if the implants were the problem.
It was a dicey situation for me to walk into, loaded with potential triggers. I thought hard about it and tried my best to prepare. Being topless in front of someone who isn’t my husband, who’s looking at me critically and touching me… I knew it would be difficult, and i’d be dealing with a strong desire to dissociate.

It was hard, and then some. What i didn’t anticipate was that there was nothing wrong with my implants, which left waiting for a mammogram. Great. So something could be wrong with my boobs, like, my real boobs? Fantastic.
There was no way for me to not be alone after the appointment, so i’d invited myself over to my son’s house to visit my DIL and my grandchildren. I figured the bus might be another hurdle still, but doable. I got to their neighbourhood without a single hitch, and then shit happened, as shit do.

I’m on the bus, heading up the hill, and i start feeling nauseated. I know this part of the city well, and i realise i’ve failed to anticipate the real trouble. I’ve spent countless hours in this area’s local park. Waiting for abusers to pick me up and abuse me.
The dissociation happens as soon as the realisation hits, and i can’t stop it.

My body wants to run back down the hill. Get away, go downtown. The library is a haven, and i wonder when it closes. Evening comes early on my side of the equator, so dusk has fallen, and is rapidly becoming nighttime. The air is thick with moisture, and the streetlights illuminate the fog, creating little clouds every 30m or so. I’m wearing knee-high suede boots, because they’re fashionable, and because i’ve only just lost enough weight that my calves can fit any. Yes, i wear them every chance i get, and no, they don’t keep my feet warm at all.

I know the house is only a couple of blocks away, so i should be able to find it. I head up another hill, off the main road, and into the maze of suburbia. In less than 2 blocks i’m scattered, anxiety has started squeezing my heart in its icy hand, and the fog surrounding me seeps into my brain. I find a map on my phone, but it’s too late. I look at it without understanding. I try to zero in on the street names, but i can’t focus. The names bounce around in my head, echoing off bone, passing through each other like string theory. I’m in a cold, foamy sea of yellow roads and names that start with “C”. I’m treading water but i can’t feel my feet and my legs are fast becoming numb…

I startle and quickly look up and around me.
I don’t know where i am.
My feet are blocks of ice and i have snotsicles.
I’ve lost time and wandered.

I call my daughter-in-law for directions, thinking her voice might ground me a bit, or at least force me into a more conscious state. I forget that she doesn’t drive either, and between the 2 of us, we’re not getting me there.
I’m fading in and out. I hear her voice in my ear and then it moves away from me.
My guts churn and my head feels floaty; it starts pounding mercilessly. It feels like my brain is swelling, filling the space like a balloon ready to burst. It presses down into my throat, pulsing, throbbing. My neck and the base of my skull feel like broken glass.

By the time she suggests my son come out to find me, hope is lost. I’ve taken that stumbling hitch-step from Anxiety Hill into Panicland. I feel an icy-hot rush flood my skin at the suggestion of seeing my son. I can’t allow him to see me like this.
I cannot allow my dear daughter or precious granddaughters to see me this way.

Trying to sound calm and blasé, knowing that i’m failing, i tell her i’m going to make my way to the strip mall on the main road. I can hear my scared Little voice quietly harmonising with my desperately false one, but i’m helpless to temper it. All i know is that i must get away from them. She and my son have seen far too much of my calamity as it is, and i committed myself long ago to testing their acceptance and forgiveness of me as little as possible.
I get off the phone and make my way to the string of shops below.

I know i’m close to mild frostbite, but i wander back and forth in front of the various businesses, unable to decide which one i should risk entering. I see a gas station, and think i could buy some gum and use the restroom to gather myself, but as i draw nearer i see it’s a kiosk. Damn.
I see a burger place decorated like a diner set back behind it, but as i walk towards it i see it’s take-away only. Blargh.
Heading back the way i came i see a Korean restaurant, which is a favourite cuisine, but there is 1 person sitting at a table, and that’s not enough to hide, so ixnay on the Ulgogi-bay.
The coffee shop i’d first come across has closed during my indecision. Fucksticks.
Subway sandwiches is open, and while it is cramped AF so not ideal, there are a handful of patrons inside, which might afford me some anonymity.

As i open the door to the restaurant, i close the door on myself.

I look up at blurred images of melting yellows and blacks. My feet are being jabbed with long needles, but instead of delivering anaesthetic it hits me like amyl nitrate – popping me into consciousness with a gasp of pain, immediately followed by panic.
I feel small and naked and my breath is getting away. There’s food and drink in front of me, and my phone is in my hand. Only a couple of my Bits N’ Pieces can use a cell phone, and they’re strictly helping parts, so when i check i see i’ve contacted Kurt.
That should help, but it doesn’t.
I’m too far along and it has me. Full anxiety attack. My chest feels expanded and tight, metallic. My heart is a bomb inside, and it’s going to blow. I need to manage this, but i can’t. I need help, but i can’t think.
I’m scurrying around inside my brain, bumping into thoughts and parts. My emotions jangling, like cymbals crashing, filling my ears, my eyes too wide, one set of fingernails biting into my palm, the other white-knuckling my phone.
My phone.
MY PHONE.

I have a group of friends that i met nearly 20yrs ago on a fansite/message board, and we’ve remained close long after the page’s demise. They’ve stuck with me through all my crazy, supported and encouraged me, held my hand when i was lost and held me up when i was so low i had to look up to see dirt.
We have our own texting group on the phone.
I reach out as sobs are bubbling up and ask if anyone’s there.

They are.
They hop on in response to my need, and proceed to talk me off the ledge.
Helpmehelpmehelpmeplease. I’m trying not to cry but i’m crying. I’m crying alone at a table in a Subway restaurant.
Look down, they say, Look down and no one will see.
It’sokayyou’reokayeverything’sgoingtobeokay. Okay?
Okay.
Can you see 5 things? I say Yes, and whisper them out.
Name 4 sensations, 3 sounds, 2 smells…
I keep my eyes down, and smash the iwonderiftheycanhearmewho’slookingatme that comes and almost derails me.
Do you know any breathing techniques?
Yes! I can 4-7-8.
My no-yoga ass 4-7-8s its little heart out.
Quietly.
In a little curvy Subway chair that cups my rump and thighs and attaches to the table and another chair in 1 big piece.
They continue to text me and say good and kind and right things until the door tinkles open and gives me my husband. His warm and gently smiling face washes over me like a beam of sun and his strong hand knits through my shaking one as he guides me through the watercolour people and into his work van. It’s warm and purring inside, dark and quiet and safe. Safe metal box. Safe space.

I breathe into my collapse. My grateful release of sobs. Panic stops its painful squeezing and my body discharges into the night.

My mother would pick me up from the babysitter’s after work. When she turned left off Northmount before 14th Street, i knew. Sometimes, a man would already be there, waiting. On many occasions though, she would just drop me off in the parking lot of the park, where i would wait.
Wait for a man who was coming to hurt me.
Winter and weekends were the worst.
Weekdays they were usually prompt, but weekends seemed at times to take hours, and our winters are very cold.
My babysitter was the next suburb over, and my grandparents, the one on the other side. A few times i panicked and tried to find them, wandering the streets up and down, looking for help and safety, but never finding it.
Those times my mother would find me, get me into the car, and hit me all the way home. I’d run straight to my room, hoping she was too tired for anything else besides denying me food.

As my husband drove me home i was an earthquake in my seat. My thighs quivered helplessly, my knees knocked together, my shoulders shook, my body heaved and my guts writhed, nausea snaking its way into my mouth. I sobbed and retched as my body discharged and discharged, until i went completely rigid. I arched up against the seatbelt, as if in the grips of a seizure, and then everything let go and i fell back, limp and exhausted.

The panic was gone, and with it went the fear and embarrassment, too. And i wasn’t just emotionally spent, i was calm. I felt noticeably lighter. I felt relief. I felt clearheaded.
As we drove the 50 or so minutes home, i looked back upon what’d happened and i didn’t see failure. I saw success – i felt successful. I was less amorphous in my body; my thoughts and sensations felt firm, solid, like they carried physical weight. My head and my limbs weren’t trying to rise and float away from me, i could feel where they attached to my neck and torso. I was a human being, individual, and contained in 1 whole piece.

All this trying, all this trytrytry, try more, try again, wait and try harder, try different, try her, him, this, that, them. This struggle. This work.
It’s all brought me here.
My brain is afraid and it runs and hides.
My body hurts and it curls up tight like a fist and tries to make the pain disappear.
But all this struggle, all this work, all this freaking TIME i’ve put in, to figure out where i’m broken and put myself back together has brought me here.

Today i have a kit full of tools and a phone full of support.
I still slide and switch and freak right the fuck out, but today i can figure out why. I dig around in my bag and pull out something that helps. There are dozens –yes, DOZENS– of people who will love me and help me through it. The crises that inevitably come are not beyond my ability to cope. I’m no longer left drowning in wreckage, wretched and lost in the aftermath.

This is life as me.
It’s changing and it’s good.
And that’s storytime for today.
Be well readers, friends.

Love and Peace to You All,
~H~

The Gift of Estrangement

Hello.

Sleep left me hanging around 3:30 this morning*, so here i am.
I did the few dishes left in the sink from last night while i brewed some freshly ground beans in my French press – because fancy! I thought i’d treat myself to peanut butter ice cream for breakfast, but i haven’t got the taste for it. It’s sitting beside me, melted, so i guess i’m tossing it when i get up next.

I’m so fucking tired. Like, all the time. Staying present takes so much focus and commitment, it takes all my energy. Even when i do nothing, i’m tired. I wish i could go back to bed, but i know how that’ll go, and my husband doesn’t get many opportunities to sleep in, so i won’t subject him to my frustrated restlessness.

I don’t speak about family that’s living. That’s because if i did, they might get the idea that they can contribute some thoughts or opinions, some counter arguments, to my own. I’m comfortably estranged from them, and have no desire to go and mend any fences or let go any bygones.
Today though.
Today, how do i not think of family?
Perhaps i wouldn’t if i still celebrated this infernal holiday, but i don’t. My day would be busy with celebratory activities, and i’d be too busy to think. Wonder. Ponder.
But as it stands, my children are grown, i’m an atheist and the conspicuous consumption and crass commercialism all turn me off. I don’t feel the need to tear down other people’s enjoyment and celebration, but this is my blog, so it seems okay to me to put it here.

This is the third year we haven’t decorated, exchanged presents, had a huge meal, watched holiday programming or listened to festive music. I’m more convinced each year that it was a wise and self-loving decision. It’s too much for me.
My expectations, my perceived expectations of others, the money spent, all the obligations, the places i must go, the people i must see, and i must bring tasty things. The heightened danger on the road because of the office party tipsies and the revelling chronic drunks, and no one is paying attention to their driving or the road because their minds are filled up with ALL THE THINGS. So many brittle smiles and everyone looks like they’re desperately in need of a decent night’s sleep.
And if i heard Santa Baby one more time i was gonna drop my packages on the department store floor and just start screaming…

I know it’s not that way for everyone.
It was that way for me.
My blog, my experiences, and my thoughts about them.
I’m happy for anyone who enjoys this season.
I enjoy it, too.
Now.

I’ve found that one of the most effective ways to limit, or better control my stress and anxiety levels, is to eliminate the things causing them to rise. Maybe as i get healthier and more functional, i can bring some things back. I Hallowe’ened with my BFF this year, for the first time in 5 or so years, and it went okay. Perhaps one day i’ll Christmas again. I leave room to grow and to change and to become capable of handling more if i want to. For now, i have this, and it suits me well.

I didn’t so much make a decision to cut my family out of my life as i decided i wasn’t going to work at it anymore. I was tired of being told what i could and couldn’t do. I was tired of the gossip and backstabbing. Most of all i was tired of all the fakery. Going to family gatherings and pretending that there weren’t sick and dangerous people there. People who’d done serious damage to me. People who’d gravely harmed me. Pretending i was one of them because i wanted so badly to belong to someone. To be claimed by someone. And then pretending i didn’t see and feel what was really happening behind the facades. It was clear i wasn’t one of them. I was merely a religious feather in their ridiculously large caps.
(For reference, watch Carlin’s bit on the religious and their hats.)

It took years to figure it all out, like it sometimes does for me. As i increased the distance i saw more and more clearly. I pulled away because i was beginning to listen to what my system was saying, and i was trying to pay attention to emotions and respond with something other than dissociation. I felt anxious and depressed and exhausted after family associations. I felt like i wasn’t good enough. I felt unloved. I felt hurt and lonely and left out.

So the pulling away was a direct response to the symptoms. It took some time before i started a full examination of my family situation. I sought the cause of my malaise.
I was right. I wasn’t one of them – never was.

I think when i was young it was different, because there was hope i could still be molded into someone more acceptable. However, as i grew into adulthood, i became too different. I strayed too far from the fold. Maybe i was too much like my mother? I don’t know. Beyond our looks and intelligence level, i don’t see that i have much in common with her. I can be scary when i’m pissed off, like her, but i never got pissed off at them. I was only ever scared of losing them – of not being accepted. I was terrified they’d reject me, as i was taught so well to be.

I’d be invited to big celebrations, like the holidays, or the head of the family’s birthday. If i wanted to get together for lunch or shopping or a cup of tea and some connection, i had to make the call. They seemed to enjoy those kinds of things like i did, i just wasn’t on their call list. I’d hear about all the casual get-togethers they’d enjoyed with each other at big holiday celebrations. I’d see pictures and hear funny stories that i wasn’t invited to be a part of. The chatter at the supper table let me know they were always in contact with each other.

Maybe i was a trophy? A sign of how well they lived their religion. Their holiday oblation.
Look how generous and forgiving and pious we are, to have this orphan, this urchin, this weird, loud, awkward woman in our midst. See how we treat her like family when she’s clearly not one of us.

Their smiles looked like grimaces.
Their children avoided me like i had a communicable disease.
But i bashed about these gatherings like a moth on a light bulb, completely unaware. Spastic AF. Trying so hard to be liked and loved, accepted and wanted. I think the truth is i was merely tolerated. I was their charity case. I was the pat on their back that reassured them that they’re good people. (Spoiler: They’re not.)

Just dodged a bullet. I was 2 deep and into my third example of how they’re not good people. That’s an invitation. They aren’t welcome here, and i have nothing to prove. I get to feel and think whatever i want about them, even if i’m wrong. And it’s not like i talk shit about them. I don’t talk about them much at all, except to my therapist or my husband if something comes up for me, like a bad memory or a nightmare.
They’re fake and sick and toxic to me. To me.
Anyone else’s opinion is their right to have and not my business. All i know for sure is that i felt noticeably better about myself and the world when i stopped associating with them, and that’s increased over time.
When i let go and stopped begging for love and chasing them for belonging, it was one of the quickest lessons i’ve learned. The relief was immediate, and the pain of separation, not that bad.

It was last year around this time when a family member sent me a gift. It was a card with the Footprints poem thingy on it, and instead of signing with the name that i’ve called them since i was 11, they signed it with their proper, “Christian” name.
Message received. It was passive-aggressive, hypocritical, petty, and mean-spirited.
I’m genuinely grateful, because it helped me stop looking back and wishing. It showed me who i was dealing with, and confirmed that i’d done the best thing for me.

I’ve spent today with my husband, one of my children, 2 doggos, 1 kitty cat, and my BFF.
It’s been calm and low-key and relaxing. We only listened to one holiday tune, and it was totally perverted. There has been laughter and junk food. I haven’t felt for one single second like i have to be anyone other than myself. I haven’t felt like i’m not enough or i’ve done anything wrong. (Except i burnt the breakfast sausages on one side, and i told my brain that no one would care – and no one did.) We played games, and drank coffee, tea, and ginger ale with cranberry juice in it, because again – FANCY! One son spent the day crafting and making jokes, one son went to work and made double time and a half, woohoo! There were naps, and i had time and space to write. There was music and chatter and hugs.

I think today i’ve written the final chapter on my association with a group of people that aren’t my people. They don’t need to like, love, agree with, or understand me. I never needed anything from them, and now i don’t want anything, either. Here today, i see that i’ve triumphed over not just one family’s lies, but two. All their threats and emotional blackmail, all their cozening ways – none of it stuck. One side of my family died, and it felt so good, a part of me wondered if it wouldn’t feel just as good to be rid of the other side.

It did.
It does.

If you’re reading this and you have tumultuous, painful, difficult relationships with your family, i’m truly sorry for you. What i’ve written here is for me and about me. If you’ve made the decision to suck it up and remain connected to them, i don’t condemn you. I don’t think you’re weak or dumb. I support you in your process, in doing what you think best. Your journey is yours. I hope you have safe people that you can talk to about it; people that you trust who will tell you the truth and support you while you try to navigate the minefield of familial relationships.

The best thing for me was to let go and walk away.
I don’t know what the best thing is for you. If you’ve gotta slap a smile on your face and act like you’re enjoying yourself, then maybe you could do something you enjoy with someone you love after. You know, to wash the stink off you and recharge your batteries.
Hear me though, when i say that there’s no shame in trying something else when what you’re currently doing isn’t working.

All i did initially was to take some time away, because i couldn’t think straight when i was around them. So many of my actions and responses were pure reflex. I’d act instinctually. I found quiet and safety away, and once there, i felt so much better that i never wanted to go back. They don’t miss me and i don’t miss them.
Your mileage may vary.
Do what you want, do what you will.
But if i’m any indication, there aren’t as many MUSTs as we’ve been raised and trained to think there are.
I’m not lonely and i’m not dead.
In fact, i’m quite happy sometimes, and if i keep dropping deadweight like this, i think there’s at least an outside chance i might fly.

Enjoy Your Holiday If You Can,
~H~
*Yesterday, Christmas morning.

Dancing Elephants

Even 10 years ago i would have told you that anxiety wasn’t that much of an issue for me.

HAAAA-HAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAAAA
*gaspsforair*
HAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHA!!

I think being a multiple hid it from me, because i’d just dissociate/slide/switch to cope when the feeling came up. As i learned more about myself and my system, i became more conscious of my thoughts and emotions, and more aware of my physical body and my “presence” in it. I discovered that –ZOUNDS!– anxiety is a huge issue for me. It slows down my personal progress, it limits my opportunities, it stifles my creativity, it thins my skin, it uses spoons that would be far better used elsewhere.

Fuck anxiety, man.

Over the last few years i’ve intentionally endeavoured to cut as much of this heartache-y bullshit stress out of my life as i can. I thought this morning that i might share with you a list of things i’ve done to hike this old piano off of my chest.

Let me be very clear here: This is not a step-by-step. This is my list, based on who i am and how i work. This is a personal list, specific to me. I share this list to share my process, which is a big part of what i do on this blog, and to stand as evidence that it can be done. Some of what i do or don’t do to reduce/remove anxiety might have precisely the opposite affect on you. You have your own past, your own personality, your own burdens, your own path. You do you, Boo. I am. here. for it. 100%

Things I Have Done To Reduce Anxiety

1) Stopped watching talk shows,
lifestyle programs,
nighttime news,
anything to do with celebrities:
This is a big one for a few reasons. Talk shows triggered envy, lifestyle programs triggered guilt, and nighttime news supported catastrophising. I also figured out that learning more about the celebrities/artists i like, jeopardised my enjoyment of them/their art. I’m all for killing your heroes, but sometimes not listening to them chat is enough;

2) Put down fashion, gossip, and lifestyle magazines:
See above for reasons. The lifestyle and celebrity gossip rags were easy to put down, the fashion died a little harder. It’s not just that i wished i was slim and beautiful and young and glamourous like the models, it’s also that fashion is art, to me. I’ve discovered that, like sports, i can love the thing itself, and shun the machine that surrounds it;

3) No shopping alone, not even online:
Too many choices causes me to freeze up. If there were two ice cream shops, and one was 100 flavours and one was 3, i would go to the store with three. If i went to the store with 100, i’d stand there for an hour, hemming and hawing, stress over which would be the best flavour, and either pick one and regret it, wondering if i shouldn’t have picked a different one instead –OR– i’d get completely overwhelmed and end up picking one i could have gotten in 5 minutes at the other store.

If i shop alone, a version of this happens every time. This is why i limit the amount of time i spend in a store, and don’t even enter certain stores, like Sephora, for instance, because there’s just too many choices. I wind up walking out with nothing, and so stressed i could cry. When i shop online i’ve either got my husband or a kid beside me, or i shop where they let me narrow my search (and boy oh boy, do i narrow).

4) Walk my doggos every day:
Dogs and exercise are great relievers of stress. E’erybody know dat.

5) Keep To-Do lists loose, and rarely on paper:
If i write down a list, it becomes too important and too rigid.* If it’s in my head, it’s easier for me to make amendments when and where appropriate, and not kick myself if it all doesn’t get done;

6) Share all anxiety-producing thoughts with a safe person:
Truth is, i share most of my thoughts with a safe person. The negative or stress-producing ones so that they don’t get a chance to get bigger and badder, but even the positive, happyhappy stuffs. I want to remember the good ones, and sharing the words is like planting them as seeds and giving them a chance to grow and bear good fruit;

7) See my GP every 3mos:
I have both mental and physical health issues that are important to monitor. Also, i can be obsessive, and have a tendency to imagine worst case scenarious. Oh yeah, and i’m terrified of dying. I don’t think i qualify as a hypochondriac, but i can take a pimple and WebMD it into cancer in about 3mins flat. I always bring a list to my doctor appointments, so she can address all my causes for concern, and i never lie to her or hide things from her;

8) Biweekly therapy:
‘Nuff said;

9) Stopped weighing myself:
The number on the scale has only ever caused me anxiety, even when i think it’s a good number. I keep track based on how my clothes fit, and how i look in the mirror after a shower, naked. I get weighed every 3mos at my doctor’s office. I don’t look at the number, and the nurse doesn’t tell me, she only tells my doctor;

10) Become particular about who i hang out with:
I love people, but always find it somewhat stressful, and sometimes even painful to be around them. I only have so much energy and a few spoons a day, so i’ve had to get selective. Basing it on this reasoning also relieved some anxiety, because this is about me and for my wellbeing. Sometimes the reason isn’t personal, and sometimes it IS;

11) Watch telly less – read more:
I was a latchkey kid, so the television was regularly my only companion. My whole adult life i’ve switched on the tv in the morning, and not turned it off until i go to bed at night. I didn’t always watch it, but i liked the background noise. These last few months the tv’s barely on during the day. Television was a great distraction for my system when things got busy and/or stressful up in my brain. These days i’m learning to listen to what’s going on, rather than trying to tune it all out. And the quiet is actually kinda nice;

12) One hit of caffeine in the morning only, if home all day:
I like some to get me going, but after that first mug of black tea, i switch to herbal ones. I struggle with sleep and anxiety, and too much caffeine only amplifies those issues. If i’m out and about in the city or visiting with friends, i do allow myself to indulge, though. And i feel fine about that;

13) Limit socialisation:
I don’t want to cut it out entirely (although sometimes i NEED to do that), but i’m easily overwhelmed and human interaction can bleed my energy dry in a matter of hours. I’m talking about people i choose to be social with, here;

14) BLOG:
Yeah. Dumping thoughts is important for my wellbeing. I may have said this once or twice before. Heh;

15) Take stock of the day with hubby each evening:
More thought-dumping sure, but also helps to keep me on track, gives me a chance to problem-solve, and affords opportunities for encouragement, support, and human connection. Invaluable for managing my most typical anxieties;

16) Take breaks between tasks, and/or limit amount of time spent on tasks:
All that happens when i push too hard and get a whole bunch of shit done is i feel like it wasn’t enough and i need to beat my last score the next day, if that makes sense. Respite gives me a chance for checking in and self-talk, too.
e.g. I did the dishes, yay! Now i can play online Scrabble for half an hour, then maybe i’ll scrub the toilets… Ah, w00t?

17) Reduce house-clutter:
The less i have to take care of besides myself and my dog – the better;

18) Set time to obsess:
I struggle with obsessive thinking. To date, i haven’t found a way to eliminate it. In the past i would kick myself over not being able to control it. Now, i work within my capabilities. So maybe i can’t quit obsessing, but i can give myself a half hour to gnaw it like a dog on a bone. I have something to do to distract me when the time to obsess is over. It can be very hard to stop, so i’ll schedule an obsess-sesh say, right before i meet a friend for coffee;

19) Use 4-7-8 breathing method:
While i do simple yoga, i’m a nonbeliever and i just like this particular method of breathing. It calms me, it brings my focus down into my body and relieves that heavy, squinchy feeling in my chest that anxiety brings. It’s occasionally helped me get to sleep, too. Not magic, but still awesome;

20) Reduce volume:
When things are quieter on the outside of me, things are often quieter on the inside of me;

21) Walk away from toxic associations:
I’m just gonna say it. Family. I walked away from family (and not a few friends). To be fair, i think i could be pretty toxic myself, when i was around them;

22) Be conscious, be cautious when sharing opinions:
I was raised with a finely tuned sense of tribalism. I also learned that being considered 1 of the gang made me far less likely to be hurt. I’d figure out what the group dynamic and their values were, and promptly reflect them. When i broke free of that programming, i wanted to tell everyone what i thought about everything, all the time. I’ve got that t-shirt now, thanks. I don’t require anyone’s agreement or approval of my opinions because, well, they’re opinions. I share my opinions with safe and loved people. I’m supportive of those who want to stand up and shout theirs from the rooftops, and i’m also supportive of those like me, who want to go far away from the rooftops;

23) Stay home:
Socialising takes a lot out of me; too much, right now;

24) Shnuggle pets:
For those who love and have pets, explanations are unnecessary;

25) Consume comedy (shows, books, podcasts, conversations):
There’s nothing quite like laughter, to give that elephant sitting on my chest a chance to get up and do some pirouettes, maybe even grand jetés!

26) Ask, “Is this any of my business?” regularly:
Cuts down on brain clutter, and keeps me from stressing over what other people think and do. You be you and i be me;

27) Say “I’m sorry” less:
This is mostly concerning my upbringing. As the scapegoat, i was the reason shit went south. I’m always apologising, and i know it drives my loved ones bonkers. I’m learning that most of the time when i say sorry it’s unconscious, reflexive programming. I don’t have to apologise for who i am. Any apologies still remaining from my past will be dealt with as they present themselves. I’m not in constant danger of being harmed anymore, like i was when i was a child. Offering unnecessary sorries just brings up old wounds and reinforces the lies my mother told me about myself in order to control me;

28) Say “I don’t know” more:
Same original motivators as above. Not knowing things as a child left me more open to harm, so i tried to know everything. And my family was the very model of knowitallishness. I don’t have to protect myself that way anymore. Plus, it’s annoying AF, and nobody likes a smarty-pants;

29) Be more physically affectionate with husband and children:
Touch is difficult for me. While it’s been a relief to put no-touch boundaries up, i’m a human animal who does better in life with some physical connection. My husband and children are safe. I reinforce that i’m safe and they won’t hurt me, when i touch them. I experience love and healthy attachment. It calms me, grounds me, makes me feel more normal, strengthens bonds and heals old hurts;

30) Strictly limit and curate social media exposure:
Do i need to go into how anxiety-producing social media can be? If you’re reading my blog, probably not. You already know;

31) Don’t compare myself to others:
A biiiig one, and one that’s proven hard to master. Different nature, different nurture, different choices, different paths. It makes for different people, H. Duh. I do sometimes use others as a general metric, but only to keep myself honest and on track. An example would be when i thought i might be overreacting to a certain person’s behaviour. I compared my reactions to those of other people around him, and quickly figured out NOPE.

One more time for the people in the back:

This is my list. There’s more, and i’ll probably make alterations, additions and subtractions to this list over time.
My point is, anxiety is awful and takes energy i need for other stuff that feels better, or at least yields good fruit. Anxiety produces nothing for me but pain, poor choices, and more anxiety.

And what you think about this post and my list is entirely your business. Heh.

Try to enjoy your weekend, if you can. I will too.

*Wait a second, is this irony?

The Golden Chain

WARNING: References to paedophilia and childhood sexual abuse.

“Touch me not, touch me not, come back tomorrow.”
Oh my heart, oh my heart shies from the sorrow.
I’m as puzzled as a newborn child.
I’m as riddled as the tide.
Should I stand amid the breakers?
Or shall I lie with death my bride?
~ This Mortal Coil, Song to the Siren

As i’ve said many times before, as a highly dissociative person, it can take me a while to figure out wtf is going on. I knew therapy – duh. Yeah, that’s going on, and it’s about learning to feel what my body is feeling and tend to its needs. To allow my body to release the pain and torment and terror it has stored for all these years, and in so doing, to rebuild a connection between my brain and my body. It was severed before i could even speak, due to severe childhood trauma. I knew that part, so all i was going through emotionally, the downward spiral that i expected, and all its attendant intensity, i attributed to the process.

But life doesn’t stop happening just because i’m doing some serious internal self-improvement, does it? And life happened to me a few months ago – it happened hard and fast and it exploded all over me. It splattered me and my safe place with blood. No one’s dead, and no one’s dying (except for everyone – you’re welcome), but beyond that, i cannot speak about it. My blog is public, and i intend for it to remain so, which means that unsafe people have access to it. I will share about it eventually, but not for some time. I only bring it up to say that, as i’ve been spiralling, it made perfect sense that it was a contributing factor. As it most certainly TF is.

I started using a Fitbit a few months ago. I find it motivational and informative for my slow and careful journey from overweight and unfit to something healthier. One aspect i didn’t expect, and immediately found interesting, is its sleep tracking. I’ve always been a terrible sleeper. I’ve struggled with insomnia for my entire life… For years i identified myself as a nighthawk and lived my life that way, as much as i could manage it. However, as i slowly got healthier in other ways, a couple of years ago i decided to see if my quality of life would improve if i tried being a “morning person”. Since then, with the exception of Sundays, i rise at 5, and try to be in bed between 10 and 11. The change in my mood was immediate and rather drastic. My Fitbit gave me information i didn’t have though, and more detail. I’m a very light sleeper, i wake repeatedly, and i’m restless most of the night. It also reminded me that, as a person with fibromyalgia, i never get much D-level, or restorative, sleep.

Over the last few months i’ve been tinkering with ways to improve my sleep, with some success. Then everything stopped working. My sleep was tanking. I honestly didn’t give it much thought because it happens whenever i spiral. I picked up booze again, to knock me out. It works, but the price i pay is high. My hangovers are epic. As i got more tired and more strung out emotionally, i became less able to say No to the booze.

Alcohol and pills, and for the particularly young, food too, are integral in most paedophile’s toolkits. Therefore, some of the people that live in my brain crave that regularly. Some see it as an escape, some see it as a reward, and some see it as just the way things are supposed to be.
First, i stopped eating compulsively, and then i quit the pills. But then booze, which prior to my weight loss had never been much of an issue, became one, as i sped along on my first full-blown bipolar mania.

I hope i’m setting this up so that it’s understandable. I’m doing my best.

Another thing that happens when i’m struggling mentally/emotionally, is i go to ground. It can be a wise decision. I find people exhausting at the best of times. I mean, i love humans, but y’all can be a lot, man.
I do it partly because i need more energy to cope with my current inner chaos. I do it so i can focus. I do it so as to eliminate the problem of always having to fight the programming i received as a child: to be good, to be liked, to figure out what people want/expect of me and do my best to give it to them. To fit in and be like the person/group i’m with. To please, to placate… to hide myself deep inside. To avoid pain and rejection. It’s easier to be myself than it used to be, but i may always have to deal with the need to feel safe couched in the desire to please.

And so it made sense to me that i was once again hermitting in my Little Crooked House.

So i’m continuing my therapy, i’m getting some sleep thanks to drinking, and i’ve removed the extra stress that peopling adds.
But my anxiety is through the roof. It’s so high i find it difficult to breathe. My brain is catastrophising every thought. I feel terrified all the time. Not scared. Terrified.  I stop sleeping because i’m afraid to close my eyes. I am convinced every night that if i do, i will never open them again. I get an hour or 2 every couple of nights due to pure exhaustion, but i wake up with a scream caught in my throat and my body fully gripped by panic.

I’m switching and sliding around without much control, but there are moments of clarity, where i am fully in the face. My husband tries to help, but i have no words to offer him, no thoughts to share. There is too much going on in my brain, too many conversations, so many voices crying out. I sit beside him in bed at night, mostly playing mindless games and watching shitty horror flicks on YouTube. Sometimes i grab onto him and wrap my body tight around him, thinking it may very well be the last time i ever do so.

I tried so very hard to write, but i was completely unable to do so. I couldn’t even bash out any weird, crappy not-poetry or stream-of-consciousness bullshit. I’d stare at the screen and will my fingers to type something; i could feel that elephant sitting on my chest, and then he’d do a fancy swan dive into the the roiling waters in the pit of my belly (he’s an asshole).

A few nights ago i was drunk, but in the face, my system having abandoned me to their respective corners as i got more panicked and out of control. We amp each other up when things get that bad. It’s like mass hysteria. I tried to sleep, but i woke to me trying to put my clothes on and go outside. Hubby tried to comfort me by taking me for a drive (it’s 12am and he gets up at 5).
I have trouble crying, but when i get like that, the floodgates can open. I was sobbing, the tears running in rivers down my face and soaking my shirt. Hitching sobs and a wrenching in my heart, my throat burning and feeling almost bruised by the force of my wailing.

I try to think of what my therapist tells me to do when i’m in utter crisis. I’m already feeling my body, no need to breathe and drop down into body awareness, right? What is my body asking for? What comfort, soothing, or action can i offer it?
I hear myself saying, over and over, I can’t do this.
I can’t do this, it’s too much.
I can’t breathe i can’t breathe i’m going to die.
I try to tell my husband that i am terrified of death. I’m afraid to close my eyes because i’m terrified i’ll never open them again.
The weight on my chest.
My burning throat.
A lifetime of insomnia and light sleeping.
A deep and debilitating fear of death.
I can’t breathe.
I’m dying.

I lay my hands on my chest, above my breasts, and i press down, splaying my fingers in some strange hug. I take the fingers  of 1 hand and gently, eversogently stroke my throat. I take the fingers of both hands and massage the back of my neck, which throbs, and then i take the bottom of my palms, the bony part just above the wrist, and i carefully, slowly massage my jawline, switching to my thumbs to massage my upper jaw just underneath my cheekbones.

This is when my body communicates to my brain.
Being woken in the middle of the night, sometimes knowing who, sometimes not. Baby, toddler, preschool, elementary… Jaws forced open, not being able to breathe, the weight of a grown body on my tiny one.

This is the work. My body carrying the terrible truth because my brain could not bear it. The sensations containing information that my brain would interpret and cause emotions that i could not live through. I split apart so that i could live.

I’m putting myself back together and this is the work.
One brilliant, gossamer strand between my body and my brain. Attached. Communicating. Mended. I will continue to weave until i am brilliantly, fully alive.
This is the work.

Maybe i can sleep?

Sleep is the golden chain that ties health and our bodies together.
~ Thomas Dekker

IMAGE: Caught In Her Eye, ElleShaped

Treading Water

I’m having trouble writing.

Yes, again.

It’s not because i’m going through a bunch of crud and i’m waiting for it to be done so i might over analyse it and package it up prettily, replete with a spiffy bow for your easy consumption. I’ve shared before that i struggle with this – i hesitate to share when i’m in the trenches, because it can get so damn dark and cold down there, and i’m trying to bring a message of hope. But i’ve learned that the truth can bring hope, even if the truth is ugly. I’ve also learned that it’s not my responsibility to save the world. As all my children are now grown, i’m no longer responsible for anyone but myself, and my dog.

The best i can do is throw life buoys in the water. They’ll keep you afloat for a while. Allow you to rest. But i can’t make you swim over to it, or grab onto it, or keep holding on. I hope you do, though. I want us all to make it.

I’m having trouble writing because i’m tired. The effort it requires for me to stay present in my body and resist dissociation is maximal. I don’t seem to have much left over for anything else. That’s okay, because i’ve tailored my life to accommodate this kind of thing. I have a very supportive partner, my kids aren’t kids anymore, and i live on a farm. I enjoy private space all around me, and the people in my life all know that “just popping by” is not an option.

So yeah, i’ve got an excellent setup for the work i’m doing, and i’ve settled into a groove. Well, it’s less groove than zombie-shuffle, but i’m gettin’ through it.
Except life has this way of happening, and life has gone and done happened on me.
My life has absolutely and utterly changed. To what extent, and whether for good or ill i don’t yet know, but i’ll never be the same.

It’s not appropriate to talk about it yet. I’m gathering information and sitting with it for a while, first. It’s not a diagnosis; i’m not sick. Well, nothing has been added to my current laundry list, and nothing has intensified or become life-threatening, at least. And my primary relationship is solid. So for any of my readers who’re inclined to worry – don’t. It’s a big deal, but it’s not bad. It’s just BIG. I don’t have any energy left over for anything besides functioning in the day-to-days, listening to my body and trying not to dissociate.

But life isn’t a consciousness. It has no feelings or intents or plans. It’s not trying to mess with me. It’s not laughing at me. I’m not a rat in its maze. Life just lives until it doesn’t. It doesn’t care about timing. It isn’t concerned with how many spoons i have in my coping drawer. It just rolls along and happens. And oh boy, has it ever happened.

What i’m going to do here is just update. Just mention some things and check in with how i’m doing. Living stuff. Coping. Processing. Thoughts and sundry.

My physical health is okay. Not great, but manageable. I’m learning to live with osteopenia (low bone density, not severe enough to be classified osteoporosis) by taking prophylactic medication and the right exercise. The result has been a reduction in pain, and far less of the “crunching” that i was hearing by late afternoon. The pain wasn’t terrible, but the noise was quite disturbing. I’m currently working on bringing up my fitness level. I started with walking.

Walking is something i’ve been doing a lot of, since i was able to do it. When we lived in cities, my mother would send me to the corner store for snacks and cigarettes, and out to panhandle. One of the best ways for me to escape from my home life for a while was to be outside, so i was outside a LOT. Whatever the weather, and long after other children had gone home, you could find me outside. When we moved into more small town living, we tended to live far away from the school. We were a wrong-side-of-the-tracks sort of family, so there was usually a few miles between me and the school. Another thing i did to stay out of her hair/way/path (although i didn’t see it that way at the time), was to join clubs. I was in lots of clubs growing up: girl scout type clubs, choirs, drama troupes, sports clubs, military clubs… I didn’t do too much school oriented after school activities, because bullies, but other clubs seemed mostly populated with nerds and misfits like me, so i didn’t get picked on much.

Walking is where i come closest to a quiet state of mind, too. Meditation is beyond the capabilities of many multiples. My brain is never silent, even when i’m dreaming i can pick up background chatter if i’m lucid enough. After decades of having professionals and non alike tell me that meditation could fix a number of my issues (even cure my anxiety, tap into my deeper intellect, and become a spiritual giant!), i finally found a therapist i could work with, who told me straight away that my being unable to meditate at even the most basic level was not at all uncommon for those diagnosed with DID.

Walking is also my system’s response to extreme stress. I was programmed to “go home” if i got in a bad spot, and it’s still a hard reflex inside me. I’ve taken off hundreds and hundreds of times, and probably logged thousands of kilometres.
All this to say – i can walk, honey.
So i’m walking, and it’s good, and i’m good at it, and it’s good for me.

Except for the fibro flare it’s causing, of course. That’s the crap part of it. I’ve been living with this chronic pain since 1995, so i’m fairly educated on my condition, and i know this is to be expected. The key is to increase gently, with long periods of status quo in between. I’ve also taken up some beginners yoga stretching, which i’m finding calms me rather nicely, while warming up my muscles for the distances i put in during the day.

(This is where my dark and twisty sense of humour comes in handy, because it’s just so **ME** to be working on my fitness and pushing through the resultant uptick in pain, while also trying to cut back/eliminate dissociation. I have this built in ability to distance myself from pain, and i can’t use it. I mean, i can, but i choose not to. Ah well, the hard way is just a way in the end, amirite? Heh.)

My diet is good. I’m calorie restricting for weight loss, but i eat soundly. My FitBit is helping with keeping me mindful of what i eat, although i don’t use any of their programs – that stuff can easily trigger obsession in me. I’m just logging my calories so that i can keep track. Sometimes i weigh and measure just to give me a better idea where my calories are being spent. Sunday i take the FitBit off, i don’t exercise per se, and i have a slight cheat day, food wise. I don’t go all out cheat though, because i find that hard to bounce back from sometimes, and i need the momentum i’ve built up to cruise me through while i’m dealing with this overwhelming exhaustion.

Socialising is hard for me right now. It happened suddenly, but that’s not out of the ordinary. I don’t want to go out and i don’t want to see anyone, but it’s slightly different now; i’m less extreme. In the past, i would hole up in my Little Crooked House and just hermit. No phones, no answering the door, no leaving the house except when unavoidable. Now i can see someone if i need to, for instance, i know a lovely woman who’s helping me with eyelash extensions while mine grow out after nuking them and my eyebrows in the Burning Barrel Incident that i mentioned a few posts ago. She’s softspoken and very kind and low key, and i don’t want to scream when she touches my face. If only there were eyebrow extensions. <insertruefulexpressionhere>

A dear friend invited me out to supper last Saturday  and i said Yes. When i got there, my body and brain started acting up immediately, and i knew i couldn’t stay. I did a quick negotiation with my Peanut Gallery: Yo, if y’all will just STFU and let me touch base with my friend, i won’t stay any longer than an hour. So i ordered my food to go, and had a nice chat with my friend while it was being prepared.
That’s some gold standard problem solving for me, right there.

I think what i’m seeing is, i can do one-on-ones, but i’m finding any more than that quickly saps what little energy i have. I love humans and enjoy their company – except when i don’t, and these last couple of weeks i’ve occasionally felt almost misanthropic. That’s a neon sign that my stress level is high.

I don’t like ending on a low note, but yeah… As i mentioned to my online group of friends yesterday, i’ve gotta look up to see dirt. Depression is seeping in, making me sluggish and mopey. These last couple of days i’ve felt sad and alone. There’s some self-pity there, sure. I can hear the sad trombone. But i’m going to allow myself a bit of ass-dragging, because i’ve learned if i don’t acknowledge what’s happening and just let myself BE™, a little, my condition will just get bigger and bigger until i pay attention. I must give it some space to breathe, and move, and act in accordance with my emotions (scared, mad, sad, etc.) and sensations (pain, ache, emptiness, etc.). I must listen to what my brain and my body are trying to tell me.

I haven’t been this down and heavy in my bones for a long time.
I can hang on until therapy tomorrow. Little goals.
My body is heavy and slow, so i do a few things around the house, with long breaks of doing sweet fuck all in between. My brain is foggy and fuzzy and full of low thoughts, so i read for entertainment only, and limit who i share space with, and i curate conversations to avoid topics that will feed my depressive feelings. I’m watching emotional stuff that helps me cry, because tears want to come, but i have trouble crying for myself. I can always cry for someone else, so sappy movies it is. I start crying because The Fisher King or RENT, but i keep crying because holy shit am i ever going through it right now.

This work is hard and it’s taking everything i have to do it. And life just has no heart, no mercy, no grace for me – it just keeps doing its thing and that’s just how life does things and i’ve gotta get with the program, man.
I’m plodding along, but it’s forward.
I’m doing the minimum, but i’m DOING.
I’m standing here on the shore as the tide advances, lapping at my feet, then swirling around my knees, and now it’s pulling me out, out into the deep…
And i’m letting it pull me.
I’m treading water for now, but i’ll get to swimming at some point.
I will.
You watch me.

Love and Peace,
~H~